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  1. An exploratory study of therapeutic misconception among incarcerated clinical trial participants.Paul P. Christopher, Michael D. Stein, Sandra A. Springer, Josiah D. Rich, Jennifer E. Johnson & Charles W. Lidz - 2016 - AJOB Empirical Bioethics 7 (1):24-30.
    Background: Therapeutic misconception, the misunderstanding of differences between research and clinical care, is widely prevalent among non-incarcerated trial participants. However, little attention has been paid to its presence among individuals who participate in research while incarcerated. Methods: This study examined the extent to which 72 incarcerated individuals may experience therapeutic misconception about their participation in one of six clinical trials, and its correlation with participant characteristics and potential influences on research participation. Results: On average, participants endorsed 70% of items suggestive (...)
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  • How participatory is parental consent in low literacy rural settings in low income countries? Lessons learned from a community based study of infants in South India.Divya Rajaraman, Nelson Jesuraj, Lawrence Geiter, Sean Bennett, Harleen Ms Grewal & Mario Vaz - 2011 - BMC Medical Ethics 12 (1):3.
    BackgroundA requisite for ethical human subjects research is that participation should be informed and voluntary. Participation during the informed consent process by way of asking questions is an indicator of the extent to which consent is informed.AimsThe aims of this study were to assess the extent to which parents providing consent for children's participation in an observational tuberculosis (TB) research study in India actively participated during the informed consent discussion, and to identify correlates of that participation.MethodsIn an observational cohort study (...)
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  • Accessing health services through the back door: a qualitative interview study investigating reasons why people participate in health research in Canada. [REVIEW]Anne Townsend & Susan M. Cox - 2013 - BMC Medical Ethics 14 (1):40.
    Although there is extensive information about why people participate in clinical trials, studies are largely based on quantitative evidence and typically focus on single conditions. Over the last decade investigations into why people volunteer for health research have become increasingly prominent across diverse research settings, offering variable based explanations of participation patterns driven primarily by recruitment concerns. Therapeutic misconception and altruism have emerged as predominant themes in this literature on motivations to participate in health research. This paper contributes to more (...)
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