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  1. Getting Real: The Maryland Healthcare Ethics Committee Network’s COVID-19 Working Group Debriefs Lessons Learned.Norton Elson, Howard Gwon, Diane E. Hoffmann, Adam M. Kelmenson, Ahmed Khan, Joanne F. Kraus, Casmir C. Onyegwara, Gail Povar, Fatima Sheikh & Anita J. Tarzian - 2021 - HEC Forum 33 (1):91-107.
    Responding to a major pandemic and planning for allocation of scarce resources under crisis standards of care requires coordination and cooperation across federal, state and local governments in tandem with the larger societal infrastructure. Maryland remains one of the few states with no state-endorsed ASR plan, despite having a plan published in 2017 that was informed by public forums across the state. In this article, we review strengths and weaknesses of Maryland’s response to COVID-19 and the role of the Maryland (...)
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  • Disability bioethics and the commitment to equality.Laura Guidry-Grimes - 2022 - Theoretical Medicine and Bioethics 43 (4):209-220.
    Robert Veatch’s The Foundations of Justice: Why the Retarded and the Rest of Us Have Claims to Equality delves into deep questions of justice through the case of a child with disabilities. I describe what is basically right about this vision, as well as what is problematic from the standpoint of contemporary disability bioethics. From there, I dive into the notion of vulnerability that is at play in his work. He describes disability as necessarily a condition of weakness, lesser-than existence, (...)
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  • Disability Cultural Competence for All as a Model.Rosemarie Garland-Thomson & Lisa I. Iezzoni - 2021 - American Journal of Bioethics 21 (9):26-28.
    Berger and Miller assert that race and ethnicity based cultural competence is a failure because medicine grounds its conceptualization of cultural competence on a “flawed” understanding of r...
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  • The Disruptive Power of Intersectionality.Jenny Kingsley, Emily R. Berkman & Sabrina F. Derrington - 2021 - American Journal of Bioethics 21 (9):28-30.
    We agree with Berger and Miller that the focus on cultural competence in medical education fails to name or confront key drivers of health inequity such as structural racism, social determin...
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  • COVID-19 pandemic, the scarcity of medical resources, community-centred medicine and discrimination against persons with disabilities.Nicola Panocchia, Viola D'ambrosio, Serafino Corti, Eluisa Lo Presti, Marco Bertelli, Maria Luisa Scattoni & Filippo Ghelma - 2021 - Journal of Medical Ethics 47 (6):362-366.
    This research aims to examine access to medical treatment during the COVID-19 pandemic for people living with disabilities. During the COVID-19 pandemic, the practical and ethical problems of allocating limited medical resources such as intensive care unit beds and ventilators became critical. Although different countries have proposed different guidelines to manage this emergency, these proposed criteria do not sufficiently consider people living with disabilities. People living with disabilities are therefore at a higher risk of exclusion from medical treatments as physicians (...)
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  • Insurance Discrimination on the Basis of Health Status: An Overview of Discrimination Practices, Federal Law, and Federal Reform Options.Sara Rosenbaum - 2009 - Journal of Law, Medicine and Ethics 37 (s2):101-120.
    Actuarial underwriting, or discrimination based on an individual's health status, is a business feature of the voluntary private insurance market. The term “discrimination” in this paper is not intended to convey the concept of unfair treatment, but rather how the insurance industry differentiates among individuals in designing and administering health insurance and employee health benefit products. Discrimination can occur at the point of enrollment, coverage design, or decisions regarding scope of coverage. Several major federal laws aimed at regulating insurance discrimination (...)
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  • Ethical Guidance for Hard Decisions: A Critical Review of Early International COVID-19 ICU Triage Guidelines.Yves Saint James Aquino, Wendy A. Rogers, Jackie Leach Scully, Farah Magrabi & Stacy M. Carter - 2022 - Health Care Analysis 30 (2):163-195.
    This article provides a critical comparative analysis of the substantive and procedural values and ethical concepts articulated in guidelines for allocating scarce resources in the COVID-19 pandemic. We identified 21 local and national guidelines written in English, Spanish, German and French; applicable to specific and identifiable jurisdictions; and providing guidance to clinicians for decision making when allocating critical care resources during the COVID-19 pandemic. US guidelines were not included, as these had recently been reviewed elsewhere. Information was extracted from each (...)
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