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Hoping Someday Never Comes: Deferring Ethical Thinking About Noninvasive Prenatal Testing

Jessica Mozersky

AJOB Empirical Bioethics 6 (1):31-41 (2015)

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Non-Invasive Prenatal Testing for “Non-Medical” Traits: Ensuring Consistency in Ethical Decision-Making.Hilary Bowman-Smart, Christopher Gyngell, Cara Mand, David J. Amor, Martin B. Delatycki & Julian Savulescu - 2021 - American Journal of Bioethics 23 (3):3-20.details The scope of noninvasive prenatal testing (NIPT) could expand in the future to include detailed analysis of the fetal genome. This will allow for the testing for virtually any trait with a genetic contribution, including “non-medical” traits. Here we discuss the potential use of NIPT for these traits. We outline a scenario which highlights possible inconsistencies with ethical decision-making. We then discuss the case against permitting these uses. The objections include practical problems; increasing inequities; increasing the burden of choice; negative (...) Download Export citation Bookmark 16 citations
Women’s perspectives on the ethical implications of non-invasive prenatal testing: a qualitative analysis to inform health policy decisions.Meredith Vanstone, Alexandra Cernat, Jeff Nisker & Lisa Schwartz - 2018 - BMC Medical Ethics 19 (1):27.details Non-Invasive Prenatal Testing is a technology which provides information about fetal genetic characteristics very early in pregnancy by examining fetal DNA obtained from a sample of maternal blood. NIPT is a morally complex technology that has advanced quickly to market with a strong push from industry developers, leaving many areas of uncertainty still to be resolved, and creating a strong need for health policy that reflects women’s social and ethical values. We approach the need for ethical policy-making by studying the (...) Download Export citation Bookmark 7 citations
Fetal information as shared information: using NIPT to test for adult-onset conditions.Michelle Taylor-Sands & Hilary Bowman-Smart - 2021 - Monash Bioethics Review 39 (Suppl 1):82-102.details The possibilities of non-invasive prenatal testing (NIPT) are expanding, and the use of NIPT for adult-onset conditions may become widely available in the near future. If parents use NIPT to test for these conditions, and the pregnancy is continued, they will have information about the child’s genetic predisposition from birth. In this paper, we argue that prospective parents should be able to access NIPT for an adult-onset condition, even when they have no intention to terminate the pregnancy. We begin by (...) Download Export citation Bookmark 1 citation
The Shifting Landscape of Prenatal Testing: Between Reproductive Autonomy and Public Health.Vardit Ravitsky - 2017 - Hastings Center Report 47 (s3):S34-S40.details Since the 1970s, prenatal testing has been integrated into many health care systems on the basis of two competing and largely irreconcilable rationales. The reproductive autonomy rationale focuses on nondirective counseling and consent as ways to ensure that women's decisions about testing and subsequent care are informed and free of undue pressures. It also represents an easily understandable and ethically convincing basis for widespread access to prenatal testing, since the value of autonomy is well established in Western bioethics and widely (...) Download Export citation Bookmark 19 citations
Mandating Moral Reflection?Jessica Mozersky & Pamela Sankar - 2017 - American Journal of Bioethics 17 (1):32-34.details Download Export citation Bookmark 2 citations
Old Questions, New Paradigms: Ethical, Legal, and Social Complications of Noninvasive Prenatal Testing.Marsha Michie & Megan Allyse - 2015 - AJOB Empirical Bioethics 6 (1):1-4.details Download Export citation Bookmark

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