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  1. Clinical ethics support services during the COVID-19 pandemic in the UK: a cross-sectional survey.Mariana Dittborn, Emma Cave & David Archard - 2022 - Journal of Medical Ethics 48 (10):695-701.
    Background Non-adherence to medication is associated with increased risk of relapse in patients with bipolar disorder. Objectives To validate patient-evaluated adherence to medication measured via smartphones against validated adherence questionnaire; and investigate characteristics for adherence to medication measured via smartphones. Methods Patients with BD evaluated adherence to medication daily for 6–9 months via smartphones. The Medication Adherence Rating Scale and the Rogers’ Empowerment questionnaires were filled out. The 17-item Hamilton Depression Rating Scale, the Young Mania Rating Scale and the Functional (...)
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  • Institutional Challenges for Clinical Ethics Committees.Andrea Dörries, Pierre Boitte, Ana Borovecki, Jean-Philippe Cobbaut, Stella Reiter-Theil & Anne-Marie Slowther - 2011 - HEC Forum 23 (3):193-205.
    Clinical ethics committees (CECs) have been developing in many countries since the 1980s, more recently in the transitional countries in Eastern Europe. With their increasing profile they are now faced with a range of questions and challenges regarding their position within the health care organizations in which they are situated: Should CECs be independent bodies with a critical role towards institutional management, or should they be an integral part of the hospital organization? In this paper, we discuss the organizational context (...)
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  • Quality in ethics consultations.Gerard Magill - 2013 - Medicine, Health Care and Philosophy 16 (4):761-774.
    There is an increasing need for quality in ethics consultations, though there have been significant achievements in the United States and Europe. However, fundamental concerns that place the profession in jeopardy are discussed from the perspective of the U.S. in a manner that will be helpful for other countries. The descriptive component of the essay (the first two points) explains the achievements in ethics quality (illustrated by the IntegratedEthics program of the Veterans Health Administration) and the progress on standards and (...)
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  • “It scares me to know that we might not have been there!”: a qualitative study into the experiences of parents of seriously ill children participating in ethical case discussions.Reidun Førde & Trude Linja - 2015 - BMC Medical Ethics 16 (1):1-8.
    BackgroundAll hospital trusts in Norway have clinical ethics committees. Some of them invite next of kin/patients to be present during the discussion of their case. This study looks closer at how parents of seriously ill children have experienced being involved in CEC discussions.MethodsTen next of kin of six seriously ill children were interviewed. Their cases were discussed in two CECs between April of 2011 and March of 2014. The main ethical dilemma was limitation of life-prolonging treatment. Health care personnel who (...)
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  • Evaluation of case consultations in clinical ethics committees.Reidun Førde & Reidar Pedersen - 2012 - Clinical Ethics 7 (1):45-50.
    If ethics consultation services influence medical decisions it is important to evaluate how ethical dilemmas are dealt with by clinical ethics committees (CECs). Such evaluation is rare. This study presents a feasible and practical method of evaluating case discussions in CECs and the results emerging from the use of this method. A written presentation of an end-of-life dilemma was sent to all Norwegian ethics committees. The committees were asked to deal with the case as they would do if it was (...)
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  • Finding their voices again: a media project offers a floor for vulnerable patients, clients and the socially deprived. [REVIEW]Ralf Stutzki, Markus Weber & Stella Reiter-Theil - 2013 - Medicine, Health Care and Philosophy 16 (4):739-750.
    ‘DU bist Radio’ (DBR) is an award winning [DBR has been awarded with the “Catholic Media Award of the German Bishops Conference, Prädikat WERTvoll” (2011), the Suisse “Media Prize Aargau/Solothurn” (2010), the German “Alternative Media Award” (2009) and was nominated for the “Prix Europa” (2009)] monthly radio format that goes on air on three Swiss radio stations. The purpose of this program which was first broadcast in 2009 is the development of a new media format which—without applying any journalistic (or (...)
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  • Clinical Ethics Committees in Norway: What Do They Do, and Does It Make a Difference?Reidun Førde & Reidar Pedersen - 2011 - Cambridge Quarterly of Healthcare Ethics 20 (3):389-395.
    The first clinical ethics committees in Norway were established in 1996. This started as an initiative from hospital clinicians, the Norwegian Medical Association, and health authorities and politicians. Norwegian hospitals are, by and large, publicly funded through taxation, and all inpatient treatment is free of charge. Today, all the 23 hospital trusts have established at least one committee. Center for Medical Ethics , University of Oslo, receives an annual amount of US$335,000 from the Ministry of Health and Care Services to (...)
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  • Clinical Ethics Committees in Africa: lost in the shadow of RECs/IRBs?Keymanthri Moodley, Siti Mukaumbya Kabanda, Leza Soldaat, Anita Kleinsmidt, Adetayo Emmanuel Obasa & Sharon Kling - 2020 - BMC Medical Ethics 21 (1):1-10.
    Background Clinical Ethics Committees are well established at healthcare institutions in resource-rich countries. However, there is limited information on established CECs in resource poor countries, especially in Africa. This study aimed to establish baseline data regarding existing formal CECs in Africa to raise awareness of and to encourage the establishment of CECs or Clinical Ethics Consultation Services on the continent. Methods A descriptive study was undertaken using an online questionnaire via SunSurveys to survey healthcare professionals and bioethicists in Africa. Data (...)
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  • Moral competence, moral teamwork and moral action - the European Moral Case Deliberation Outcomes (Euro-MCD) Instrument 2.0 and its revision process. [REVIEW]J. C. de Snoo-Trimp, H. C. W. de Vet, G. A. M. Widdershoven, A. C. Molewijk & M. Svantesson - 2020 - BMC Medical Ethics 21 (1):1-18.
    BackgroundClinical Ethics Support (CES) services are offered to support healthcare professionals in dealing with ethically difficult situations. Evaluation of CES is important to understand if it is indeed a supportive service in order to inform and improve future implementation of CES. Yet, methods to measure outcomes of CES are scarce. In 2014, the European Moral Case Deliberation Outcomes Instrument (Euro-MCD) was developed to measure outcomes of Moral Case Deliberation (MCD). To further validate the instrument, we tested it in field studies (...)
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  • Client Participation in Moral Case Deliberation: A Precarious Relational Balance. [REVIEW]F. C. Weidema, T. A. Abma, G. A. M. Widdershoven & A. C. Molewijk - 2011 - HEC Forum 23 (3):207-224.
    Moral case deliberation (MCD) is a form of clinical ethics support in which the ethicist as facilitator aims at supporting professionals with a structured moral inquiry into their moral issues from practice. Cases often affect clients, however, their inclusion in MCD is not common. Client participation often raises questions concerning conditions for equal collaboration and good dialogue. Despite these questions, there is little empirical research regarding client participation in clinical ethics support in general and in MCD in particular. This article (...)
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  • The development of a descriptive evaluation tool for clinical ethics case consultations.R. Pedersen, S. A. Hurst, J. Schildmann, S. Schuster & B. Molewijk - 2010 - Clinical Ethics 5 (3):136-141.
    There is growing interest in clinical ethics. However, we still have sparse knowledge about what is actually going on in the everyday practice of clinical ethics consultations. This paper introduces a descriptive evaluation tool to present, discuss and compare how clinical ethics case consultations are actually carried out. The tool does not aim to define ‘best practice’. Rather, it facilitates concrete comparisons and evaluative discussions of the role, function, procedures and ideals inherent in clinical ethics case consultation practices. The tool (...)
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  • Ethical regulation of biomedical research in Brazil: a quality improvement initiative.Daniel Ribeiro Paes de Castro, Camilo Hernan Manchola Castillo, João Paulo Dias Ferreira, João Paulo Alves Oliveira, Tassila Fernandes Kirsten, Paulo Henrique Condeixa de França, Lisiane Silveira Zavalhia, Regina Kuhmmer Notti, Renata Kochhann & Sérgio Luís Amantéa - 2024 - BMC Medical Ethics 25 (1):1-9.
    Background Q-CEP (Qualificação dos Comitês de Ética em Pesquisa que compõem o Sistema CEP/Conep) is a nationwide project resulting from a partnership between the Brazilian National Research Ethics Commission (Conep), the Ministry of Health and Hospital Moinhos de Vento (HMV). It was developed to consolidate policy for ethical review of research with human beings in all members of the CEP/Conep System, Brazil’s national system of institutional review boards. The aim of this study was therefore to report on the experience and (...)
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