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  1. Exploring Partial Disclosure in Research: Challenges, Justifications, and Recommendations for Ethical Oversight.Ifeanyichukwu Akuma & Vina Vaswani - forthcoming - Asian Bioethics Review:1-21.
    Deception in research is contentious, as ethical codes stress informed consent, yet complete disclosure may jeopardise validity. Indian Council for Medical Research (ICMR) guidelines classify deception into active, incomplete, and authorised forms. This study explores the ethical justification for incomplete (partial disclosure), permissible instances, and the dilemma faced by ethics committees in balancing scientific rigour and participant protection. The qualitative, non-experimental cross-sectional research, using in-depth interviews, identifies themes through thematic analysis. Findings reveal challenges for ethics committees, as incomplete information hampers (...)
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  • Discussing End-of-Life Decisions in a Clinical Ethics Committee: An Interview Study of Norwegian Doctors’ Experience.Marianne K. Bahus & Reidun Førde - 2016 - HEC Forum 28 (3):261-272.
    With disagreement, doubts, or ambiguous grounds in end–of-life decisions, doctors are advised to involve a clinical ethics committee. However, little has been published on doctors’ experiences with discussing an end-of-life decision in a CEC. As part of the quality assurance of this work, we wanted to find out if clinicians have benefited from discussing end-of-life decisions in CECs and why. We will disseminate some Norwegian doctors’ experiences when discussing end-of-life decisions in CECs, based on semi-structured interviews with fifteen Norwegian physicians (...)
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  • The Current State and Challenges of Clinical Ethics Consultation for Prenatal Diagnosis: A Qualitative Study of Committee Employee Perspectives in China.Ying Wu, Tianchi Hao, Xing Liu, Xin Zhang, Yuqiong Zhong, Dan Luo & Xiaomin Wang - forthcoming - Asian Bioethics Review:1-18.
    Clinical ethics consultations (CECs) play an important role in resolving ethical issues in clinical practice worldwide. The government has encouraged the development of CECs in China to address the ethical challenges arising in prenatal diagnosis. So far, the current state and challenges facing CEC remain understudied. This study aimed to explore the perspectives of employees on ethics committees for prenatal diagnosis in 13 medical institutions in Hunan Province, China. Twenty-eight employees participated in interviews. Our qualitative approach employed content analysis to (...)
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  • Making the (Business) Case for Clinical Ethics Support in the UK.L. L. Machin & Mark Wilkinson - 2020 - HEC Forum 33 (4):371-391.
    This paper provides a series of reflections on making the case to senior leaders for the introduction of clinical ethics support services within a UK hospital Trust at a time when clinical ethics committees are dwindling in the UK. The paper provides key considerations for those building a case for clinical ethics support within hospitals by drawing upon published academic literature, and key reports from governmental and professional bodies. We also include extracts from documents relating to, and annual reports of, (...)
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  • Written institutional ethics policies on euthanasia: an empirical-based organizational-ethical framework.Joke Lemiengre, Bernadette Dierckx de Casterlé, Paul Schotsmans & Chris Gastmans - 2014 - Medicine, Health Care and Philosophy 17 (2):215-228.
    As euthanasia has become a widely debated issue in many Western countries, hospitals and nursing homes especially are increasingly being confronted with this ethically sensitive societal issue. The focus of this paper is how healthcare institutions can deal with euthanasia requests on an organizational level by means of a written institutional ethics policy. The general aim is to make a critical analysis whether these policies can be considered as organizational-ethical instruments that support healthcare institutions to take their institutional responsibility for (...)
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  • ‘Value, values and valued’: a tripod for organisational ethics.Raj Mohindra - 2022 - Journal of Medical Ethics 48 (3):154-159.
    Public benefit corporations are National Health Service, that is, state, entities whose function to provide healthcare in discharge of public duties. If we regardvalue as the output of such organisations, it seems logical to connect the values of the organisation to thevalue produced by such organisations. But, on closer examination there are competing underlying logics in play: (1) those based on promoting organisational efficiency and efficacy; and (2) those based on the idea of building service provision around the clinician–patient relationship. (...)
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  • Evaluating the effectiveness of clinical ethics committees: a systematic review.Chiara Crico, Virginia Sanchini, Paolo Giovanni Casali & Gabriella Pravettoni - 2021 - Medicine, Health Care and Philosophy 24 (1):135-151.
    Clinical Ethics Committees (CECs), as distinct from Research Ethics Committees, were originally established with the aim of supporting healthcare professionals in managing controversial clinical ethical issues. However, it is still unclear whether they manage to accomplish this task and what is their impact on clinical practice. This systematic review aims to collect available assessments of CECs’ performance as reported in literature, in order to evaluate CECs’ effectiveness. We retrieved all literature published up to November 2019 in six databases (PubMed, Ovid (...)
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  • The impact of an ethics training programme on the success of clinical ethics services.Andrea Dörries, Alfred Simon, Jochen Vollmann & Gerald Neitzke - 2014 - Clinical Ethics 9 (1):36-44.
    The interdisciplinary Hannover Qualification Programme on ethics consultation has trained hospital staff to operate clinical ethics services in their respective hospitals since 2003. To evaluate Hannover Qualification Programme, all former participants were contacted using an online questionnaire including four domains: status quo before attending Hannover Qualification Programme, present status, impact of Hannover Qualification Programme, future challenges. Research objectives were the long-term satisfaction with Hannover Qualification Programme and its impact on clinical ethics services. The response rate was 45% (167/369). Hannover Qualification (...)
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  • Quality in ethics consultations.Gerard Magill - 2013 - Medicine, Health Care and Philosophy 16 (4):761-774.
    There is an increasing need for quality in ethics consultations, though there have been significant achievements in the United States and Europe. However, fundamental concerns that place the profession in jeopardy are discussed from the perspective of the U.S. in a manner that will be helpful for other countries. The descriptive component of the essay (the first two points) explains the achievements in ethics quality (illustrated by the IntegratedEthics program of the Veterans Health Administration) and the progress on standards and (...)
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