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The patient's view

Theory and Society 14 (2):175-198 (1985)

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  1. Die Existenz, Abwesenheit und Macht des Wahnsinns. Eine kritische Übersicht zu Michel Foucaults Arbeiten zur Geschichte und Philosophie der PsychiatrieExistence, Absence and Power of Madness: A Critical Review of Michel Foucault’s Writings on the History and Philosophy of Madness.Burkhart Brückner, Lukas Iwer & Samuel Thoma - 2017 - NTM Zeitschrift für Geschichte der Wissenschaften, Technik und Medizin 25 (1):69-98.
    ZusammenfassungIn diesem Artikel diskutieren wir Michel Foucaults Hauptwerke zum Thema „Wahnsinn und Psychiatrie“ von den Frühschriften bis in die siebziger Jahre. Zum einen rekonstruieren wir die globale theoretische und methodologische Entwicklung seiner Positionen im Lauf der verschiedenen Werkperioden. Zum anderen arbeiten wir Foucaults philosophische Überlegungen zum Gegenstand seiner Untersuchungen heraus. Nach der einleitenden Problemstellung zeigen wir entsprechend der neueren Forschung, inwiefern Foucaults frühe Positionen von 1954 (in der Einführung zu Binswangers Traum und Existenz sowie in Geisteskrankheit und Persönlichkeit) das spätere (...)
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  • „Für einen Aktivisten wie mich muß es in einem sozialistischen Staat doch effektive Medikamente geben“„In a Socialist State it Should be Possible for Activists like me to Receive Effective Medication.“ Psychotropic Drugs and Consumer Interests in the GDR.Viola Balz - 2013 - NTM Zeitschrift für Geschichte der Wissenschaften, Technik und Medizin 21 (3):245-271.
    This article investigates how much influence consumers could have in the GDR during the 1960s by means of a case study of a patient striving towards an apparently reasonable psychiatric treatment through his actions in- and outside the clinic. The patient tried to obtain an effective therapy by referring to his model socialist work and life. The former patient also subsequently acted as a consumer via different activities, both within the GDR and abroad. Finally, against the background of different theories (...)
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  • Our Newspaper as Care: Narrative Approaches in Fanon’s Psychiatry Clinic.Nathalie Egalité - forthcoming - Journal of Medical Humanities:1-14.
    This paper argues that the newspaper Notre Journal enshrined the importance of narrative in the revolutionary psychiatry of its founder and editor, Frantz Fanon. Anchoring my analysis in the interdisciplinarity of the medical humanities, I demonstrate how care at Hôpital Blida-Joinville in colonial Algeria was mediated by the written word. I examine Fanon’s physician writing and editorial texts detailing the use of narrative approaches in the clinic. As an object of care, Notre Journal’s promotion of psychic healing, social actions, and (...)
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  • The Painful Reunion: The Remedicalization of Homosexuality and the Rise of the Queer.Lance Wahlert - 2012 - Journal of Bioethical Inquiry 9 (3):261-275.
    This article considers the late 19th-century medical invention of the category of the homosexual in relation to homosexuality’s moment of deliverance from medicine in the 1970s, when it was removed as a category of mental aberration in the Diagnostic and Statistical Manual (DSM). With the rise of the AIDS pandemic in gay communities in the early 1980s, I argue that homosexuals were forcibly returned to the medical sphere, a process I call “the painful reunion.” Reading a collection of queer narratives (...)
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  • Anti-Love or Anti-“Lifestyle”: Historical Reflections on Reparative Therapies for Homosexuality.Lance Wahlert - 2013 - American Journal of Bioethics 13 (11):36-38.
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  • Scale in the history of medicine.Karin Tybjerg - 2022 - Studies in History and Philosophy of Science Part A 91 (C):221-233.
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  • Aetiologies of Blame: Fevers, Environment, and Accountability in a War Context (France and Italy, ca. 1800).Paul-Arthur Tortosa & Guillaume Linte - 2023 - Centaurus 65 (1):63-90.
    During the Italian campaigns of the French Revolutionary Wars (1796–1801), several epidemic outbreaks sparked acrimonious aetiological debates: were the fevers spread by soldiers and prisoners of war, or produced by environmental factors? This debate was not only a scientific issue, but also a political one, for causation was linked to accountability. Looking at a series of medical investigations written by French military practitioners, this paper argues that theories of contagion were used by civilians to accuse the army of spreading disease, (...)
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  • Listening to Quackery: Reading John Wesley’s Primitive Physic in an Age of Health Care Reform.Daniel Skinner & Adam Schneider - 2019 - Journal of Medical Humanities 40 (1):69-83.
    This article uses a reading of John Wesley's Primitive Physic, or An Easy and Natural Method of Curing Most Diseases (1747) to resist the common rejection—often as "quackery"—of Wesley's treatments for common maladies. We engage Wesley not because he was right but because his approach offers useful moments of pause in light of contemporary medical epistemology. Wesley's recommendations were primarily oriented towards the categories of personal responsibility and capability, but he also sought to empower individuals—especially the poor—with the knowledge to (...)
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  • Sexual science and self-narrative: epistemology and narrative technologies of the self between Krafft-Ebing and Freud.Paolo Savoia - 2010 - History of the Human Sciences 23 (5):17-41.
    The aim of this article is to understand an important passage in the history of the sciences of the psyche: starting from the psychiatric problematization — and the consequent emergence — of the concept and the object called ‘sexuality’ in the second half of the 19th century, it attempts to show a series of continuities and discontinuities between this kind of reasoning and the birth of psychoanalysis in the first years of the 20th century. The particular focus is therefore directed (...)
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  • A Material History of Electroshock TherapyEine Geschichte der Elektroschocktherapie,von unten‘. Elektroschocktechnologie in Europa bis 1945.Lara Rzesnitzek & Sascha Lang - 2016 - NTM Zeitschrift für Geschichte der Wissenschaften, Technik und Medizin 24 (3):251-277.
    The article considers the history of electroshock therapy as a history of medical technology, professional cooperation and business competition. A variation of a history from below is intended; though not from the patients’ perspective (Porter, Theory Soc 14:175–198, 1985), but with a focus on electrodes, circuitry and patents. Such a ‘material history’ of electroshock therapy reveals that the technical make-up of electroshock devices and what they were used for was relative to the changing interests of physicians, industrial companies and mental (...)
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  • Die Entwicklung der Medizingeschichte seit 1945.Volker Roelcke - 1994 - NTM Zeitschrift für Geschichte der Wissenschaften, Technik und Medizin 2 (1):193-216.
    During the last decades, medical historiography has undergone considerable changes. This review attempts an outline of the developments since 1945. The first section sketches the institutional background of the discipline focusing on the characteristic features which emerged in different national traditions. The following sections—essentially restricted to the German speaking context—describe the development of the fields in research and teaching, ranging from the history of ideas to the social history of medicine, from philogical and editorial work to the philosophy and sociology (...)
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  • Between Stigmatization and Acceptance: Diabetic Patients as Civil Servants in West Germany, 1950–1970.Livia Prüll - 2022 - NTM Zeitschrift für Geschichte der Wissenschaften, Technik und Medizin 30 (1):63-88.
    Patient history has enriched medical history since about the 1980s. But there are still research gaps in certain periods and themes, especially in topics related to the medical history of West Germany. This paper deals with the efforts of patients, lay persons, and medical advisors (diabetologists) to enable diabetics to secure employment as civil servants (Verbeamtung). Attention will be payed to the fact that this success relied on the activities of mediators, who translated and conveyed the patients’ interests to society (...)
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  • Zwischen Stigmatisierung und Akzeptanz: Diabeteskranke und Verbeamtung in Westdeutschland, 1950–1970. [REVIEW]Livia Prüll - 2022 - NTM Zeitschrift für Geschichte der Wissenschaften, Technik und Medizin 30 (1):63-88.
    ZusammenfassungWiewohl die Patientengeschichte seit Mitte der 1980er Jahre die Medizingeschichte stark bereichert hat, finden sich noch starke Forschungsdesiderate, so beispielsweise im Rahmen der Forschung zur Medizingeschichte der frühen Bundesrepublik. Der Beitrag behandelt die Bemühungen von Diabeteskranken auf der einen Seite sowie Laienhelfern und Mediziner_innen, d. h. Diabetologen, auf der anderen Seite, um einen Zugang zur Verbeamtung von Patient_innen. Es wird herausgearbeitet, dass die Erfolge auf der Arbeit von Mediatoren beruhte, welche die Bedürfnisse der Diabeteskranken mit der Gesellschaft aushandelten. Diese Erfolge (...)
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  • Testimonies of precognition and encounters with psychiatry in letters to J. B. Priestley.Katy Price - 2014 - Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 48:103-111.
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  • Epidemic Inequities: Social and Racial Inequality in the History of Pandemics.Michael F. McGovern & Keith A. Wailoo - 2023 - Isis 114 (S1):206-246.
    The historiography of pandemics and inequality can be characterized by two distinct but often overlapping traditions. One centers structural and political analysis, the other a race-critical approach to the production of human difference. This bibliographic essay reviews historical scholarship in these traditions spanning the past hundred years, with a focus on Anglophone literature in the history of medicine in the United States over the past half century. Early writing on the history of epidemics celebrated the conquest of disease through the (...)
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  • A Material History of Electroshock Therapy: Electroshock Technology in Europe until 1945.Sascha Lang & Lara Rzesnitzek - 2016 - NTM Zeitschrift für Geschichte der Wissenschaften, Technik und Medizin 24 (3):251-277.
    The article considers the history of electroshock therapy as a history of medical technology, professional cooperation and business competition. A variation of a history from below is intended; though not from the patients’ perspective (Porter, Theory Soc 14:175–198, 1985), but with a focus on electrodes, circuitry and patents. Such a ‘material history’ of electroshock therapy reveals that the technical make-up of electroshock devices and what they were used for was relative to the changing interests of physicians, industrial companies and mental (...)
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  • The Value of the Patient Voice: A Review of Salt in My Soul by Mallory Smith. [REVIEW]Michelle LaBonte - 2023 - Cambridge Quarterly of Healthcare Ethics 32 (3):443-446.
    Mallory Smith’s posthumously published book, Salt in My Soul: An Unfinished Life, is an insightful and moving account of one young woman’s experience living with a chronic, often invisible, illness.1 Mallory was diagnosed with cystic fibrosis (CF) at age three and began writing in a journal when she was 15. According to those close to her, Mallory wrote consistently over the span of 10 years, until shortly before she died at age 25 from complications related to a double lung transplant. (...)
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  • Science, Technology, and Human Health: The Value of STS in Medical and Health Humanities Pedagogy.Julia Knopes - 2019 - Journal of Medical Humanities 40 (4):461-471.
    As the number of medical and health humanities degree programs in the United States rapidly increases, it is especially timely to consider the range of specific disciplinary perspectives that might benefit students enrolled in these programs. This paper discusses the inclusion of one such perspective from the field of Science and Technology Studies The author asserts that STS benefits students in the medical and health humanities in four particular ways, by: challenging the “progress narrative” around the advancement of biomedicine as (...)
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  • Solidarité, agentivité, autorité. Un siècle de tentatives d'autonomisation des patient.es en France (1918–2009).Alexandre Klein - 2022 - Dialogue 61 (1):5-16.
    The patient empowerment process that took place in France during the 20th century can, artificially, be divided into three major periods, marked by the principles of solidarity, agency, and authority. This tripartition makes it possible to better understand the challenges of this movement and to see how the advent of health democracy, which took place at the beginning of the 21st century, led, through its depoliticization of autonomy issues, to the dismissal of patients towards a form of subalternity. Paradoxically, the (...)
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  • Diagnosing Alzheimer’s disease in Kraepelin’s clinic, 1909–1912.Lara Keuck - 2018 - History of the Human Sciences 31 (2):42-64.
    Existing accounts of the early history of Alzheimer’s disease have focused on Alois Alzheimer’s (1864–1915) publications of two ‘peculiar cases’ of middle-aged patients who showed symptoms associated with senile dementia, and Emil Kraepelin’s (1856–1926) discussion of these and a few other cases under the newly introduced name of ‘Alzheimer’s disease’ in his Textbook of Psychiatry. This article questions the underpinnings of these accounts that rely mainly on publications and describe ‘presenility’ as a defining characteristic of the disease. Drawing on archival (...)
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  • Searching for the patient's voice in the Irish asylums.Brendan D. Kelly - 2016 - Medical Humanities 42 (2):87-91.
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  • Dirty Bread, Forced Feeding, and Tea Parties: the Uses and Abuses of Food in Nineteenth-Century Insane Asylums.Madeline Bourque Kearin - 2020 - Journal of Medical Humanities 43 (1):95-116.
    Nineteenth-century psychiatrists ascribed to a model of health that was predicated on the existence of objective and strictly defined laws of nature. The allegedly “natural” rules governing the production of consumption of food, however, were structured by a set of distinctively bourgeois moral values that demonized over-indulgence and intemperance, encouraged self-discipline and productivity, and treated gentility as an index of social worth. Accordingly, the asylum acted not only as a therapeutic instrument but also as a moral machine that was designed (...)
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  • The “Spanish” Flu and the Pandemic Imaginary.Mark Honigsbaum - 2023 - Isis 114 (S1):143-161.
    Few diseases are extensively diffused as influenza, but though flu pandemics occur with regularity throughout history the bibliography is dominated by the 1918-1919 “Spanish influenza” pandemic. This review argues that this preoccupation is largely a product of historical epidemiology and retrospective statistical analysis which has made the Spanish flu the reference point against which other modern respiratory pandemics, including COVID-19, are measured—hence the Spanish flu’s importance for the 21st century pandemic imaginary. The review identifies six distinct thematic areas within the (...)
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  • Virtual power: gendering the nurse-technology relationship.Julie Fairman & Patricia D'Antonio - 1999 - Nursing Inquiry 6 (3):178-186.
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  • Heritage and Stigma. Co-producing and communicating the histories of mental health and learning disability.Rob Ellis - 2017 - Medical Humanities 43 (2):92-98.
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  • The Obvious in a Nutshell: Science, Medicine, Knowledge, and History.Fabio De Sio & Heiner Fangerau - 2019 - Berichte Zur Wissenschaftsgeschichte 42 (2-3):167-185.
    The scope and mission of the history of science have been constant objects of reflection and debate within the profession. Recently, Lorraine Daston has called for a shift of focus: from the history of science to the history of knowledge. Such a move is an attempt at broadening the field and ridding it of the contradictions deriving from its modernist myth of origin and principle of demarcation. Taking the move from a pluralistic concept of medicine, the present paper explores the (...)
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  • Pillow Talk: Credibility, Trust and the Sexological Case History.Ivan Crozier - 2008 - History of Science 46 (4):375-404.
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  • The turn of the body: history and the politics of the corporeal.Roger Cooter - 2010 - Arbor 186 (743):393-405.
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  • A History of the Locked-In-Syndrome: Ethics in the Making of Neurological Consciousness, 1880-Present.Stephen T. Casper - 2020 - Neuroethics 13 (2):145-161.
    Extensive scholarship has described the historical and ethical imperatives shaping the emergence of the brain death criteria in the 1960s and 1970s. This essay explores the longer intellectual history that shaped theories of neurological consciousness from the late-nineteenth century to that period, and argues that a significant transformation occurred in the elaboration of those theories in the 1960s and after, the period when various disturbances of consciousness were discovered or thoroughly elaborated. Numerous historical conditions can be identified and attributed to (...)
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  • Working in cases: British psychiatric social workers and a history of psychoanalysis from the middle, c.1930–60.Juliana Broad - 2021 - History of the Human Sciences 34 (3-4):169-194.
    Histories of psychoanalysis largely respect the boundaries drawn by the psychoanalytic profession, suggesting that the development of psychoanalytic theories and techniques has been the exclusive remit of professionally trained analysts. In this article, I offer an historical example that poses a challenge to this orthodoxy. Based on extensive archival material, I show how British psychiatric social workers, a little-studied group of specialist mental hygiene workers, advanced key organisational, observational, and theoretical insights that shaped mid-century British psychoanalysis. In their daily work (...)
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  • Perspectives on patienthood, practitioners and pedagogy.Ciara Breathnach & Brendan D. Kelly - 2016 - Medical Humanities 42 (2):73-75.
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  • Making psychiatric history: madness as folie à plusieurs.Mikkel Borch-Jacobsen - 2001 - History of the Human Sciences 14 (2):19-38.
    Is mental illness an object of knowledge? The history of psychiatry teaches us to doubt it, by emphasizing the infinitely variable and fluctuating character of psychiatric entities. Mental illness is not simply ‘out there’, waiting to be described and theorized by psychiatrists; it interacts with psychiatric theories, clinical entities waxing and waning in accordance with diagnostic fashions, institutional practices and methods of treatment. This should be a warning to psychiatrists and therapists: their intervention is part of the ‘etiological equation’ of (...)
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  • Voices from the Newspaper Club: Patient Life at a State Psychiatric Hospital.Emily Beckman, Elizabeth Nelson & Modupe Labode - 2020 - Journal of Medical Humanities 43 (1):179-195.
    The authors conducted a qualitative analysis of thirty-seven issues of The DDU Review, a newsletter produced by residents of the Dual Diagnosis Unit, a residential unit for people who had diagnoses of developmental disability and serious mental illness in the Central State Hospital. The analysis of the newsletters produced between September 1988 and June 1992 revealed three major themes: 1) the mundane; 2) good behavior; and 3) advocacy. Contrary to the authors’ expectations, the discourse of medicalization—such as relations with physicians, (...)
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  • Patients' Revenge: Judging Healers in Early Modern Italy.Martha Baldwin - 2001 - Early Science and Medicine 6 (2):123-129.
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  • „Für einen Aktivisten wie mich muß es in einem sozialistischen Staat doch effektive Medikamente geben“: Psychopharmaka und Konsumenteninteresse in der DDR.Viola Balz - 2013 - NTM Zeitschrift für Geschichte der Wissenschaften, Technik und Medizin 21 (3):245-271.
    This article investigates how much influence consumers could have in the GDR during the 1960s by means of a case study of a patient striving towards an apparently reasonable psychiatric treatment through his actions in- and outside the clinic. The patient tried to obtain an effective therapy by referring to his model socialist work and life. The former patient also subsequently acted as a consumer via different activities, both within the GDR and abroad. Finally, against the background of different theories (...)
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  • Ivan Illich’s Medical Nemesis and the ‘age of the show’: On the Expropriation of Death.Babette Babich - 2018 - Nursing Philosophy 19 (1):e12187.
    What Ivan Illich regarded in his Medical Nemesis as the ‘expropriation of health’ takes place on the surfaces and in the spaces of the screens all around us, including our cell phones but also the patient monitors and (increasingly) the iPads that intervene between nurse and patient. To explore what Illich called the ‘age of the show’, this essay uses film examples, like Creed and the controversial documentary Vaxxed, and the television series Nurse Jackie. Rocky’s cancer in his last film (...)
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  • Grand master of Bedlam: Roy Porter and the history of psychiatry.Jonathan Andrews - 2003 - History of Science 41 (3):269-286.
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