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  1. Physicians’ views on the role of relatives in euthanasia and physician-assisted suicide decision-making: a mixed-methods study among physicians in the Netherlands.H. Roeline Pasman, Agnes van der Heide, Bregje D. Onwuteaka-Philipsen & Sophie C. Renckens - 2024 - BMC Medical Ethics 25 (1):1-14.
    BackgroundRelatives have no formal position in the practice of euthanasia and physician-assisted suicide (EAS) according to Dutch legislation. However, research shows that physicians often involve relatives in EAS decision-making. It remains unclear why physicians do (not) want to involve relatives. Therefore, we examined how many physicians in the Netherlands involve relatives in EAS decision-making and explored reasons for (not) involving relatives and what involvement entails.MethodsIn a mixed-methods study, 746 physicians (33% response rate) completed a questionnaire, and 20 were interviewed. The (...)
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  • Relational influences on experiences with assisted dying: A scoping review.Caroline Variath, Elizabeth Peter, Lisa Cranley, Dianne Godkin & Danielle Just - 2020 - Nursing Ethics 27 (7):1501-1516.
    Background: Family members and healthcare providers play an integral role in a person’s assisted dying journey. Their own needs during the assisted dying journey are often, however, unrecognized and underrepresented in policies and guidelines. Circumstances under which people choose assisted dying, and relational contexts such as the sociopolitical environment, may influence the experiences of family members and healthcare providers. Ethical considerations: Ethics approval was not required to conduct this review. Aim: This scoping review aims to identify the relational influences on (...)
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  • Developing new ways to listen: the value of narrative approaches in empirical (bio)ethics.Carlo Leget, Megan Milota & Bernadette Roest - 2021 - BMC Medical Ethics 22 (1):1-13.
    The use of qualitative research in empirical bioethics is becoming increasingly popular, but its implementation comes with several challenges, such as difficulties in aligning moral epistemology and methods. In this paper, we describe some problems that empirical bioethics researchers may face; these problems are related to a tension between the different poles on the spectrum of scientific paradigms, namely a positivist and interpretive stance. We explore the ideas of narrative construction, ‘genres’ in medicine and dominant discourses in relation to empirical (...)
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  • Relational autonomy in end-of-life care ethics: a contextualized approach to real-life complexities.Carlos Gómez-Vírseda, Yves de Maeseneer & Chris Gastmans - 2020 - BMC Medical Ethics 21 (1):1-14.
    BackgroundRespect for autonomy is a paramount principle in end-of-life ethics. Nevertheless, empirical studies show that decision-making, exclusively focused on the individual exercise of autonomy fails to align well with patients’ preferences at the end of life. The need for a more contextualized approach that meets real-life complexities experienced in end-of-life practices has been repeatedly advocated. In this regard, the notion of ‘relational autonomy’ may be a suitable alternative approach. Relational autonomy has even been advanced as a foundational notion of palliative (...)
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  • Relational autonomy: lessons from COVID-19 and twentieth-century philosophy.Carlos Gómez-Vírseda & Rafael Amo Usanos - 2021 - Medicine, Health Care and Philosophy 24 (4):493-505.
    COVID-19 has turned many ethical principles and presuppositions upside down. More precisely, the principle of respect for autonomy has been shown to be ill suited to face the ethical challenges posed by the current health crisis. Individual wishes and choices have been subordinated to public interests. Patients have received trial therapies under extraordinary procedures of informed consent. The principle of respect for autonomy, at least in its mainstream interpretation, has been particularly questioned during this pandemic. Further reflection on the nature (...)
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  • Euthanasia in persons with advanced dementia: a dignity-enhancing care approach.Carlos Gómez-Vírseda & Chris Gastmans - 2022 - Journal of Medical Ethics 48 (11):907-914.
    In current Western societies, increasing numbers of people express their desire to choose when to die. Allowing people to choose the moment of their death is an ethical issue that should be embedded in sound clinical and legal frameworks. In the case of persons with dementia, it raises further ethical questions such as: Does the person have the capacity to make the choice? Is the person being coerced? Who should be involved in the decision? Is the person’s suffering untreatable? The (...)
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