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  1. The Timing of Research Consent.Benjamin Sachs - 2021 - Ethical Theory and Moral Practice 24 (4):1033-1046.
    This essay is about the timing of research consent, a process that involves participants being given information about, among other things, upcoming research interventions and then being invited to waive their claims against those interventions being undertaken. The standard practice, as regards timing, is as follows: participants are invited to waive all their claims at a single moment in time, and that point in time immediately follows the information-provision. I argue that there we’re not justified in keeping to this practice. (...)
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  • Differential Payment to Research Participants in the Same Study: An Ethical Analysis.Govind Persad, Holly Fernandez Lynch & Emily Largent - 2019 - Journal of Medical Ethics 45 (5):318-322.
    Recognising that offers of payment to research participants can serve various purposes—reimbursement, compensation and incentive—helps uncover differences between participants, which can justify differential payment of participants within the same study. Participants with different study-related expenses will need different amounts of reimbursement to be restored to their preparticipation financial baseline. Differential compensation can be acceptable when some research participants commit more time or assume greater burdens than others, or if inter-site differences affect the value of compensation. Finally, it may be permissible (...)
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  • Participants' Responsibilities in Clinical Research.David B. Resnik & Elizabeth Ness - 2012 - Journal of Medical Ethics 38 (12):746-750.
    Discussions on the ethics and regulation of clinical research have a great deal to say about the responsibilities of investigators, sponsors, research institutions and institutional review boards, but very little about the responsibilities of research participants. In this article, we discuss the responsibilities of participants in clinical research. We argue that competent adult participants are responsible for complying with study requirements and fulfilling other obligations they undertake when they make an informed choice to enrol in a study. These responsibilities are (...)
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  • The Evolution of Withdrawal: Negotiating Research Relationships in Biobanking.Karen Melham, Linda Briceno Moraia, Colin Mitchell, Michael Morrison, Harriet Teare & Jane Kaye - 2014 - Life Sciences, Society and Policy 10 (1).
    The right to withdraw from research, along with the necessity of adequately informed consent, is at the heart of the post-Nuremburg code of ethical safeguards in biomedical research on human participants. As biomedical research moves away from direct interventional studies towards research using networks of linked human tissue samples and data, however, questions arise about what withdrawal can and should mean in these new contexts. Some of the more expansive traditional understandings, such as the right to withdraw from a study (...)
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  • Withdrawing From Research: A Rethink in the Context of Research Biobanks. [REVIEW]Søren Holm - 2011 - Health Care Analysis 19 (3):269-281.
    It is generally assumed in research ethics that research participants have an unconditional right to withdraw from research without any detriment or reprisal. This paper analyses this right in the context of biobank research and argues that the traditional shape of the right in clinical research can be modified in biobank research without incurring significant ethical cost. The paper falls in three parts. The first part is a brief explication of the philosophical justification of the right to withdraw. The second (...)
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  • The Case Against Contract: Participant and Investigator Duty in Clinical Trials.Kenneth De Ville - 2011 - American Journal of Bioethics 11 (4):16-18.
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  • Reevaluating the Right to Withdraw From Research Without Penalty.G. Owen Schaefer & Alan Wertheimer - 2011 - American Journal of Bioethics 11 (4):14-16.
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