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  1. How Disability Activism Advances Disability Bioethics.Joseph A. Stramondo - 2022 - Ethical Theory and Moral Practice 25 (2):335-349.
    In this paper, I argue that, even when disability rights activists are most clearly acting as activists, they can advance the scholarly activity of disability bioethics. In particular, I will argue that even engaging in non-violent direct action, including civil disobedience, is an important way in which disability rights activists directly support the efforts of disability bioethics scholars. I will begin by drawing upon Hilde Lindemann’s work on relational narrative identity to describe how certain damaging master narratives about disability hinder (...)
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  • Bioethics and the Moral Authority of Experience.Ryan H. Nelson, Bryanna Moore, Holly Fernandez Lynch, Miranda R. Waggoner & Jennifer Blumenthal-Barby - 2022 - American Journal of Bioethics 23 (1):12-24.
    While experience often affords important knowledge and insight that is difficult to garner through observation or testimony alone, it also has the potential to generate conflicts of interest and unrepresentative perspectives. We call this tension the paradox of experience. In this paper, we first outline appeals to experience made in debates about access to unproven medical products and disability bioethics, as examples of how experience claims arise in bioethics and some of the challenges raised by these claims. We then motivate (...)
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  • An AI Bill of Rights: Implications for Health Care AI and Machine Learning—A Bioethics Lens.Jennifer Blumenthal-Barby - 2022 - American Journal of Bioethics 23 (1):4-6.
    Just last week (October 4, 2022), the U.S. White House released a blueprint for an A.I. Bill of Rights, consisting of “five principles and associated practices to help guide the design, use, and de...
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  • Activism and the Clinical Ethicist.Christopher Meyers - 2021 - Hastings Center Report 51 (4):22-31.
    Although clinical ethics scholarship and practice has largely avoided assuming an activist stance, the many health care crises of the last eighteen months motivated a distinct change: On listserves, in blog postings, and in published essays, activist language has permeated conversations over such issues as the impact of triage policies on persons with disabilities and of color, and how the health care system has historically failed African Americans. In this paper, I defend this turn, arguing that clinical ethicists should embrace (...)
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