- Consideration and Disclosure of Group Risks in Genomics and Other Data-Centric Research: Does the Common Rule Need Revision?Carolyn Riley Chapman, Gwendolyn P. Quinn, Heini M. Natri, Courtney Berrios, Patrick Dwyer, Kellie Owens, Síofra Heraty & Arthur L. Caplan - forthcoming - American Journal of Bioethics:1-14.details
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Participant views on practical considerations for feedback of individual genetic research results: a case study from Botswana.Dimpho Ralefala, Mary Kasule, Olivia P. Matshabane, Ambroise Wonkam, Mogomotsi Matshaba & Jantina de Vries - 2023 - Global Bioethics 34 (1):1-14.details
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Managing community engagement in research in Uganda: insights from practices in HIV/aids research.Nancy E. Kass & John Barugahare - 2022 - BMC Medical Ethics 23 (1):1-12.details
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Preventing ethics dumping: the challenges for Kenyan research ethics committees.Kate Chatfield, Doris Schroeder, Anastasia Guantai, Kirana Bhatt, Elizabeth Bukusi, Joyce Adhiambo Odhiambo, Julie Cook & Joshua Kimani - 2021 - Research Ethics 17 (1):23-44.details
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Community Engagement in Precision Medicine Research: Organizational Practices and Their Impacts for Equity.Janet K. Shim, Nicole Foti, Emily Vasquez, Stephanie M. Fullerton, Michael Bentz, Melanie Jeske & Sandra Soo-Jin Lee - 2023 - AJOB Empirical Bioethics 14 (4):185-196.details
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Biosafety, biosecurity, and bioethics.David B. Resnik - 2024 - Monash Bioethics Review 42 (1):137-167.details
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(1 other version)What constitutes good ethical practice in genomic research in Africa? Perspectives of participants in a genomic research study in Uganda.Rwamahe Rutakumwa, Jantina de Vries, Michael Parker, Paulina Tindana, Oliver Mweemba & Janet Seeley - 2020 - Global Bioethics 31 (1):169-183.details
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Rules of engagement: perspectives on stakeholder engagement for genomic biobanking research in South Africa.Ciara Staunton, Paulina Tindana, Melany Hendricks & Keymanthri Moodley - 2018 - BMC Medical Ethics 19 (1):13.details
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Community engagement in genetics and genomics research: a qualitative study of the perspectives of genetics and genomics researchers in Uganda.Harriet Nankya, Edward Wamala, Vincent Pius Alibu & John Barugahare - 2024 - BMC Medical Ethics 25 (1):1-13.details
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Perspectives on returning individual and aggregate genomic research results to study participants and communities in Kenya: a qualitative study.Gershim Asiki, Michele Ramsay, Anita Ghansah, Paulina Tindana, Catherine Kyobutungi, Shukri F. Mohamed & Isaac Kisiangani - 2022 - BMC Medical Ethics 23 (1):1-11.details
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Lay persons’ perception of the requirements for research in emergency obstetric and newborn care.Dan Kabonge Kaye - 2021 - BMC Medical Ethics 22 (1):1-13.details
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Community involvement in biomedical research conducted in the global health context; what can be done to make it really matter?Federica Fregonese - 2018 - BMC Medical Ethics 19 (S1).details
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The challenge of community engagement and informed consent in rural Zambia: an example from a pilot study.Joseph Mumba Zulu, Ingvild Fossgard Sandøy, Karen Marie Moland, Patrick Musonda, Ecloss Munsaka & Astrid Blystad - 2019 - BMC Medical Ethics 20 (1):45.details
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Forming and implementing community advisory boards in low- and middle-income countries: a scoping review.Yang Zhao, Thomas Fitzpatrick, Bin Wan, Suzanne Day, Allison Mathews & Joseph D. Tucker - 2019 - BMC Medical Ethics 20 (1):1-11.details
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Engaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa model.Paulina Tindana, Aminu Yakubu, Ciara Staunton, Alice Matimba, Katherine Littler, Ebony Madden, Nchangwi Syntia Munung & Jantina de Vries - 2019 - BMC Medical Ethics 20 (1):1-7.details
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Can biosampling really be “non-invasive”? An examination of the socially invasive nature of physically non-invasive biosampling in urban and rural Malawi.Myness Kasanda Ndambo, Christopher Bunn, Martyn Pickersgill, Robert C. Stewart, Amelia C. Crampin, Maisha Nyasulu, Beatson Kanyenda, Wisdom Mnthali, Eric Umar, Rebecca M. Reynolds & Lucinda Manda-Taylor - 2024 - Global Bioethics 35 (1).details
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Researchers’ perspectives on return of individual genetics results to research participants: a qualitative study.Erisa Sabakaki Mwaka, Deborah Ekusai Sebatta, Joseph Ochieng, Ian Guyton Munabi, Godfrey Bagenda, Deborah Ainembabazi & David Kaawa-Mafigiri - 2021 - Global Bioethics 32 (1):15-33.details
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Evaluating community engagement in global health research: the need for metrics.Kathleen M. MacQueen, Anant Bhan, Janet Frohlich, Jessica Holzer & Jeremy Sugarman - 2015 - BMC Medical Ethics 16 (1):1-9.details
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