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  1. The practical ethics of repurposing health data: how to acknowledge invisible data work and the need for prioritization.Sara Green, Line Hillersdal, Jette Holt, Klaus Hoeyer & Sarah Wadmann - 2023 - Medicine, Health Care and Philosophy 26 (1):119-132.
    Throughout the Global North, policymakers invest in large-scale integration of health-data infrastructures to facilitate the reuse of clinical data for administration, research, and innovation. Debates about the ethical implications of data repurposing have focused extensively on issues of patient autonomy and privacy. We suggest that it is time to scrutinize also how the everyday work of healthcare staff is affected by political ambitions of data reuse for an increasing number of purposes, and how different purposes are prioritized. Our analysis builds (...)
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  • Farming futures: Perspectives of Irish agricultural stakeholders on data sharing and data governance.Claire Brown, Áine Regan & Simone van der Burg - 2022 - Agriculture and Human Values 40 (2):565-580.
    The current research examines the emergent literature of Critical Data Studies, and particularly aligns with Michael and Lupton’s (2016) manifesto calling for researchers to study the Public Understanding of Big Data. The aim of this paper is to explore Irish stakeholders’ narratives on data sharing in agriculture, and the ways in which their attitudes towards different data sharing governance models reflect their understandings of data, the impact that data hold in their lives and in the farming sector, as well as (...)
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  • Digital participatory democracy: A normative framework for the democratic governance of the digital commons.Alec Stubbs - 2022 - Journal of Social Philosophy 54 (3):385-403.
    This paper serves a dual function: (1) it is intended to proffer a stable understanding of our digital engagement on the Internet as a form of labor that is co-opted by digital firms for private profit; (2) it extends the concept of participatory democracy to our digital world, arguing that our collective or common production of value for digital firms (in the form of what I call“knowledge goods”) requires the implementation of participatory democratic governance mechanisms over these digital firms and (...)
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  • Alternative data and sentiment analysis: Prospecting non-standard data in machine learning-driven finance.Christian Borch & Kristian Bondo Hansen - 2022 - Big Data and Society 9 (1).
    Social media commentary, satellite imagery and GPS data are a part of ‘alternative data’, that is, data that originate outside of the standard repertoire of market data but are considered useful for predicting stock prices, detecting different risk exposures and discovering new price movement indicators. With the availability of sophisticated machine-learning analytics tools, alternative data are gaining traction within the investment management and algorithmic trading industries. Drawing on interviews with people working in investment management and algorithmic trading firms utilizing alternative (...)
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  • A comparative analysis of data governance: Socio-technical imaginaries of digital personal data in the USA and EU (2008–2016). [REVIEW]Kean Birch & Rob Guay - 2022 - Big Data and Society 9 (2).
    Personal data are produced through our daily interactions with digital technologies like search engines, social media, and online shopping, and is often referred to as our “digital exhaust.” It has been characterized as the key resource or asset for our economies in the 21st century. This paper focuses on the socio-technical imaginaries of digital personal data as a way to understand how desired forms of data governance are co-produced with collective understandings of personal data as a political-economic asset. We examine (...)
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  • Tracking ambivalence: an existential critique of datafication in the context of chronic pain.Michelle Charette - forthcoming - Medicine, Health Care and Philosophy:1-12.
    In recent years, data-driven approaches to chronic pain care have increased dramatically. However, people living with chronic pain are ambivalent about datafication practices. Drawing on in-depth interviews with individuals living with chronic pain, I discuss and analyze this ambivalence. On the one hand, participants imbibe the promissory rhetoric of data as that which may organize and control the body in pain. On the other hand, they dismiss and critique the type of data collected. This micro-level analysis of the pain tracking (...)
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