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  1. Bioethics and the Moral Authority of Experience.Ryan H. Nelson, Bryanna Moore, Holly Fernandez Lynch, Miranda R. Waggoner & Jennifer Blumenthal-Barby - 2022 - American Journal of Bioethics 23 (1):12-24.
    While experience often affords important knowledge and insight that is difficult to garner through observation or testimony alone, it also has the potential to generate conflicts of interest and unrepresentative perspectives. We call this tension the paradox of experience. In this paper, we first outline appeals to experience made in debates about access to unproven medical products and disability bioethics, as examples of how experience claims arise in bioethics and some of the challenges raised by these claims. We then motivate (...)
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  • Epistemic Oppression and Ableism in Bioethics.Christine Wieseler - 2020 - Hypatia 35 (4):714-732.
    Disabled people face obstacles to participation in epistemic communities that would be beneficial for making sense of our experiences and are susceptible to epistemic oppression. Knowledge and skills grounded in disabled people's experiences are treated as unintelligible within an ableist hermeneutic, specifically, the dominant conception of disability as lack. My discussion will focus on a few types of epistemic oppression—willful hermeneutical ignorance, epistemic exploitation, and epistemic imperialism—as they manifest in some bioethicists’ claims about and interactions with disabled people. One of (...)
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  • Missing Phenomenological Accounts: Disability Theory, Body Integrity Identity Disorder, and Being an Amputee.Christine Wieseler - 2018 - International Journal of Feminist Approaches to Bioethics 11 (2):83-111.
    Phenomenology provides a method for disability theorists to describe embodied subjectivity lacking within the social model of disability. Within the literature on body integrity identity disorder (BIID), dominant narratives of disability are influential, individual bodies are considered in isolation, and experiences of disabled people are omitted. Research on BIID tends to incorporate an individualist ontology. In this article, I argue that Merleau-Ponty's conceptualization of “being in the world,” which recognizes subjectivity as embodied and intersubjective, provides a better starting point for (...)
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  • Against Philosophy, Against Disability.Johnathan Flowers - 2022 - Journal of Philosophy of Disability 2:79-111.
    This paper argues that the field of philosophy, and bioethics spe­cifically, engages in a series of speech acts that identify scholarship advocating for increased philosophical engagement with the experiences of disability as “activism.” In doing so, the field of philosophy treats these calls as not worthy of consideration, and therefore, to be ignored in “serious scholarship.” Further, this paper makes clear the ways that philosophy relies upon ableism through what Peter Railton calls the “culture of smartness,” which serves as a (...)
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  • An AI Bill of Rights: Implications for Health Care AI and Machine Learning—A Bioethics Lens.Jennifer Blumenthal-Barby - 2022 - American Journal of Bioethics 23 (1):4-6.
    Just last week (October 4, 2022), the U.S. White House released a blueprint for an A.I. Bill of Rights, consisting of “five principles and associated practices to help guide the design, use, and de...
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