Disability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health Care

Hastings Center Report 50 (3):28-32 (2020)
  Copy   BIBTEX

Abstract

In this essay, we suggest practical ways to shift the framing of crisis standards of care toward disability justice. We elaborate on the vision statement provided in the 2010 Institute of Medicine (National Academy of Medicine) “Summary of Guidance for Establishing Crisis Standards of Care for Use in Disaster Situations,” which emphasizes fairness; equitable processes; community and provider engagement, education, and communication; and the rule of law. We argue that interpreting these elements through disability justice entails a commitment to both distributive and recognitive justice. The disability rights movement's demand “Nothing about us, without us” requires substantive inclusion of disabled people in decision‐making related to their interests, including in crisis planning before, during, and after a pandemic like Covid‐19.

Author Profiles

Joel Michael Reynolds
Georgetown University
Eva Kittay
State University of New York, Stony Brook
Laura Guidry-Grimes
Georgetown University (PhD)
5 more

Analytics

Added to PP
2020-06-30

Downloads
607 (#34,872)

6 months
99 (#54,115)

Historical graph of downloads since first upload
This graph includes both downloads from PhilArchive and clicks on external links on PhilPapers.
How can I increase my downloads?