A Neglected Ethical Issue in Citizen Science and DIY Biology

American Journal of Bioethics 19 (8):46-48 (2019)
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Andrea Wiggins and John Wilbanks’ article (2019) presents us with a welcome overview of the neglected, novel ethical issues raised by the advent of citizen science in health and biomedical contexts. This contribution takes a rather different approach, focusing on a very specific (yet also overlooked) problem in this context - the ethical implications of self-administered genetic testing. This problem, however, is particularly illustrative of the “ethics gap” between traditional medical settings and new public-driven scientific practices, emphasized by Wiggins and Wilbanks in their more wide-ranging treatment.
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European Do-It-Yourself Biology: Beyond the Hope, Hype and Horror.Seyfried, Günter; Pei, Lei & Schmidt, Markus

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