View topic on PhilPapers for more information
Related categories

28 found
Order:
More results on PhilPapers
  1. added 2019-07-29
    A Neglected Ethical Issue in Citizen Science and DIY Biology.Lucie White - 2019 - American Journal of Bioethics 19 (8):46-48.
    Andrea Wiggins and John Wilbanks’ article (2019) presents us with a welcome overview of the neglected, novel ethical issues raised by the advent of citizen science in health and biomedical contexts. This contribution takes a rather different approach, focusing on a very specific (yet also overlooked) problem in this context - the ethical implications of self-administered genetic testing. This problem, however, is particularly illustrative of the “ethics gap” between traditional medical settings and new public-driven scientific practices, emphasized by Wiggins and (...)
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark  
  2. added 2019-06-24
    Can Children and Young People Consent to Be Tested for Adult Onset Genetic Disorders.Donna Dickenson - 1999 - British Medical Journal 318:1063-1066.
    What should we do about children and young people who want to be tested for incurable, adult onset, genetic disorders? In particular, what should a general practitioner do if he or she believes the young person is competent to decide, but the regional genetics unit refuses to test anyone under 18? In this article I discuss such a case (drawn from actual practice, but anonymised), and consider the arguments for and against allowing the young person to be tested in terms (...)
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark  
  3. added 2019-06-20
    Ethical Issues in Pre-Cancer Testing: The Parallel with Huntington's Disease.Donna L. Dickenson - 2002 - In Bill Fulford, Donna Dickenson & Thomas Murray Murray (eds.), Healthcare Ethics and Human Values: An Introductory Text with Readings and Case Studies. Oxford: Blackwell. pp. 97-100.
    This chapter considers ethical issues involved in genetic testing and screening for susceptibility to various forms of cancer.
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark  
  4. added 2019-06-17
    Personalised Medicine, Individual Choice and the Common Good.Britta van Beers, Sigrid Sterckx & Donna Dickenson (eds.) - 2018 - Cambridge: Cambridge University Press.
    This is a volume of twelve essays concerning the fundamental tension in personalised medicine between individual choice and the common good.
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark  
  5. added 2019-06-17
    Personalized Genetic Medicine: Present Reality, Future Prospects.Donna Dickenson - 2013 - In Sheldon Krimsky & Jeremy Gruber (eds.), Biotechnology in Our Lives. Skyhorse Publishing.
    The soaring promises made by personalized genetic medicine advocates are probably loftier than those in any other medical or scientific realm today. Are they justified?
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark  
  6. added 2019-06-17
    It's All About Me.Donna Dickenson - 2013 - New Scientist 2934.
    The growth of personalised medicine threatens the communal approach that has brought our biggest health gains.
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark  
  7. added 2019-06-17
    Me Medicine Vs. We Medicine: Reclaiming Biotechnology for the Common Good.Donna Dickenson - 2013 - New York, USA: Columbia University Press.
    Even in the increasingly individualized American medical system, advocates of 'personalized medicine' claim that healthcare isn't individualized enough. With the additional glamour of new biotechnologies such as genetic testing and pharmacogenetics behind it, 'Me Medicine'-- personalized or stratified medicine-- appears to its advocates as the inevitable and desirable way of the future. Drawing on an extensive evidence base, this book examines whether these claims are justified. It goes on to examine an alternative tradition rooted in communitarian ideals, that of the (...)
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark   1 citation  
  8. added 2019-06-14
    Testing Times for the Consumer Genetics Revolution.Donna Dickenson - 2014 - The New Scientist 221 (2251):26-27.
    With the highest profile seller of $99 genetic tests under fire, will public trust in personalised medicine suffer?
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark  
  9. added 2019-06-13
    Ethical Qualms About Genetic Prognosis.Donna Dickenson - 2016 - Canadian Medical Association Journal 188 (6):1-2.
    The debate about direct-to-consumer genetic testing has centred on whether consumers are the best judges of their own clinical care. Inthis article, I also examine whether the science of personalized medicine is really as advanced as its proponents claim, and how the availability of genetic markers affects decisions on who gets and does not get medical treatment.
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark  
  10. added 2019-06-06
    Social Epigenetics and Equality of Opportunity.Michele Loi, Lorenzo Del Savio & Elia Stupka - 2013 - Public Health Ethics 6 (2):142-153.
    Recent epidemiological reports of associations between socioeconomic status and epigenetic markers that predict vulnerability to diseases are bringing to light substantial biological effects of social inequalities. Here, we start the discussion of the moral consequences of these findings. We firstly highlight their explanatory importance in the context of the research program on the Developmental Origins of Health and Disease (DOHaD) and the social determinants of health. In the second section, we review some theories of the moral status of health inequalities. (...)
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark   6 citations  
  11. added 2019-06-06
    Genetic Privacy: A Challenge to Medico-Legal Norms: G Laurie. Cambridge University Press, 2002, 50.00 (Hbk), Pp 335. ISBN 0521660270. [REVIEW]D. Dickenson - 2003 - Journal of Medical Ethics 29 (6):373-374.
    Review of Graeme Laurie, Genetic Privacy.
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark   6 citations  
  12. added 2019-02-26
    The Trust Game CRISPR for Human Germline Editing Unsettles Scientists and Society.Matthias Braun & Darian Meacham - 2019 - EMBO Reports 20 (2).
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark  
  13. added 2018-11-02
    Well-Being, Opportunity, and Selecting for Disability.Andrew Schroeder - 2018 - Journal of Ethics and Social Philosophy 14 (1).
    In this paper I look at the much-discussed case of disabled parents seeking to conceive disabled children. I argue that the permissibility of selecting for disability does not depend on the precise impact the disability will have on the child’s wellbeing. I then turn to an alternative analysis, which argues that the permissibility of selecting for disability depends on the impact that disability will have on the child’s future opportunities. Nearly all bioethicists who have approached the issue in this way (...)
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark  
  14. added 2018-07-24
    Eugenics in Philosophy.Robert A. Wilson - 2017 - Oxford Bibliographies Online.
    Annotated bibliography on eugenics and philosophy.
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark  
  15. added 2018-01-12
    Procreative Beneficence and Genetic Enhancement.Walter Veit - 2018 - Kriterion - Journal of Philosophy 32 (1):75-92.
    Imagine a world where everyone is healthy, intelligent, long living and happy. Intuitively this seems wonderful albeit unrealistic. However, recent scienti c breakthroughs in genetic engineering, namely CRISPR/Cas bring the question into public discourse, how the genetic enhancement of humans should be evaluated morally. In 2001, when preimplantation genetic diagnosis (PGD) and in vitro fertilisation (IVF), enabled parents to select between multiple embryos, Julian Savulescu introduced the principle of procreative bene cence (PPB), stating that parents have the obligations to choose (...)
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark   2 citations  
  16. added 2017-02-16
    The Return of Lombroso? Ethical Aspects of Preventive Forensic Screening.Christian Munthe & Susanna Radovic - 2015 - Public Health Ethics 8 (3):270-283.
    The vision of legendary criminologist Cesare Lombroso to use scientific theories of individual causes of crime as a basis for screening and prevention programmes targeting individuals at risk for future criminal behaviour has resurfaced, following advances in genetics, neuroscience and psychiatric epidemiology. This article analyses this idea and maps its ethical implications from a public health ethical standpoint. Twenty-seven variants of the new Lombrosian vision of forensic screening and prevention are distinguished, and some scientific and technical limitations are noted. Some (...)
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark   4 citations  
  17. added 2017-02-08
    Silence About Screening.Peter H. Schwartz - 2007 - American Journal of Bioethics 7 (7):46-48.
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark   1 citation  
  18. added 2017-01-21
    The Value of Information and the Ethics of Personal-Genomic Screening.Peter H. Schwartz - 2009 - American Journal of Bioethics 9 (4):26-27.
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark   2 citations  
  19. added 2017-01-16
    When Should Genome Researchers Disclose Misattributed Pahentage?Amulya Mandava, Joseph Millum & Benjamin E. Berkman - 2015 - Hastings Center Report 45 (4):28-36.
    Research studies increasingly use genomic sequencing to draw inferences based on comparisons between the genetic data of a set of purportedly related individuals. As use of this method progresses, it will become much more common to discover that the assumed biological relationships between the individuals are mistaken. Consequently, researchers will have to grapple with decisions about whether to return incidental findings of misattributed parentage on a much larger scale than ever before. In this paper we provide an extended argument for (...)
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark   2 citations  
  20. added 2015-10-02
    Cystic Fibrosis Carrier Screening in Veneto (Italy): An Ethical Analysis. [REVIEW]Tommaso Bruni, Matteo Mameli, Gabriella Pravettoni & Giovanni Boniolo - 2012 - Medicine, Health Care and Philosophy 15 (3):321-328.
    A recent study by Castellani et al. (JAMA 302(23):2573–2579, 2009) describes the population-level effects of the choices of individuals who underwent molecular carrier screening for cystic fibrosis (CF) in Veneto, in the northeastern part of Italy, between 1993 and 2007. We discuss some of the ethical issues raised by the policies and individual choices that are the subject of this study. In particular, (1) we discuss the ethical issues raised by the acquisition of genetic information through antenatal carrier testing; (2) (...)
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark  
  21. added 2015-03-10
    Military Genomic Testing: Proportionality, Expected Benefits, and the Connection Between Genotypes and Phenotypes.Charles H. Pence - 2015 - Journal of Law and the Biosciences 2 (1):85-91.
    Mehlman and Li offer a framework for approaching the bioethical issues raised by the military use of genomics that is compellingly grounded in both the contemporary civilian and military ethics of medical research, arguing that military commanders must be bound by the two principles of paternal- ism and proportionality. I agree fully. But I argue here that this is a much higher bar than we may fully realize. Just as the principle of proportionality relies upon a thorough assessment of harms (...)
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark  
  22. added 2015-02-15
    The Preference Toward Identified Victims and Rescue Duties.Tomasz Żuradzki - 2015 - American Journal of Bioethics 15 (2):25-27.
    Jeremy R. Garrett claims that the nature and scope of our rescue duties cannot be properly understood and addressed without reference to social context or institutional background conditions. In my comment I focus not on social or institutional but on psychological background conditions that are also necessary for the conceptualization of rescue cases. These additional conditions are of crucial importance since an entire paradigm of “rescue medicine” is founded, as Garret notices, on the powerful and immediate “impulse to rescue” (Garrett (...)
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark   1 citation  
  23. added 2015-01-06
    Response to Tomasz Zuradzki's Preimplantation Genetic Diagnosis and Rational Choice Under Risk or Uncertainty.Xavier Symons - 2014 - Journal of Medical Ethics 40 (11):779-779.
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark   1 citation  
  24. added 2014-10-29
    A Situation of Ethical Limbo and Preimplantation Genetic Diagnosis.Tomasz Zuradzki - 2014 - Journal of Medical Ethics 40 (11):780-781.
    In my previous paper I argued that if in vitro fertilization (IVF) is legal and practiced there is no moral ground to object to legalization of preimplantation genetic diagnosis (PGD). My opponent raises an objection that my paper “fails to address the ethical argumentation of one key opponent of IVF – the Catholic Church”. In this reply I show that her/his thesis that embryos created during IVF are in ‘ethical limbo’ and “fall outside the moral universe of Christian ethics” does (...)
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark   1 citation  
  25. added 2014-05-22
    Preimplantation Genetic Diagnosis and Rational Choice Under Risk or Uncertainty.Tomasz Zuradzki - 2014 - Journal of Medical Ethics 40 (11):774-778.
    In this paper I present an argument in favour of a parental duty to use preimplantation genetic diagnosis (PGD). I argue that if embryos created in vitro were able to decide for themselves in a rational manner, they would sometimes choose PGD as a method of selection. Couples, therefore, should respect their hypothetical choices on a principle similar to that of patient autonomy. My thesis shows that no matter which moral doctrine couples subscribe to, they ought to conduct the PGD (...)
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark   6 citations  
  26. added 2013-09-17
    Empirical Analysis of Current Approaches to Incidental Findings.Frances Lawrenz & Suzanne Sobotka - 2008 - Journal of Law, Medicine and Ethics 36 (2):249-255.
    This paper presents results found through searching publicly available U.S. data sources for information about how to handle incidental fndings (IF) in human subjects research, especially in genetics and genomics research, neuroimaging research, and CT colonography research. We searched the Web sites of 14 federal agencies, 22 professional societies, and 100 universities, as well as used the search engine Google for actual consent forms that had been posted on the Internet. Our analysis of these documents showed that there is very (...)
    Remove from this list   Download  
     
    Export citation  
     
    Bookmark   12 citations  
  27. added 2013-07-13
    Ślepy traf a preimplantacyjna diagnostyka genetyczna.Tomasz Żuradzki - 2013 - Przeglad Filozoficzny - Nowa Seria 85 (1):31-46.
    Wedle Stanowiska Komitetu Bioetyki przy Prezydium PAN nr 2/2012 z dnia 8. czerwca 2012 r. w sprawie preimplantacyjnej diagnostyki genetycznej (PDG) jednym z głównych problemów wiążących się z prawnym uregulowaniem PDG jest nierozstrzygalność sporu na temat statusu moralnego ludzkich zarodków. Stanowisko i zgłoszone do niego zdania odrębne stwierdzają, że ci, którzy uznają, że wczesne zarodki mają pełny status moralny, nie mogą się zgodzić na diagnostykę preimplantacyjną. W artykule pokazuję, że przyjęcie nawet skrajnie konserwatywnego poglądu na status wczesnych embrionów ludzkich, czyli (...)
    Remove from this list   Download  
    Translate
     
     
    Export citation  
     
    Bookmark   1 citation  
  28. added 2013-06-01
    Niepewność na temat moralnego statusu embrionów ludzkich a preimplantacyjna diagnostyka genetyczna.Tomasz Żuradzki - 2012 - Diametros 34:179-189.
    W tekście omawiam tę część internetowej dyskusji, przeprowadzonej w listopadzie 2012 r. na stronie Polskiego Towarzystwa Bioetycznego, która dotyczyła niepewności na temat moralnego statusu embrionów ludzkich. W trakcie dyskusji PTB na temat Stanowiska Komitetu Bioetyki przy Prezydium PAN w sprawie preimplantacyjnej diagnostyki genetycznej (PDG) pojawił się następujący argument: skoro spór o moralny status embrionu jest nierozstrzygalny, to powinniśmy opowiedzieć się przeciwko moralnej dopuszczalności wykonywania PDG na embrionach, a także przeciwko prawnej dopuszczalności tego rodzaju diagnostyki. W tekście omawiam tezy Stanowiska i (...)
    Remove from this list   Download  
    Translate
     
     
    Export citation  
     
    Bookmark   2 citations