- Reframing Consent for Clinical Research: A Function-Based Approach.Scott Y. H. Kim, David Wendler, Kevin P. Weinfurt, Robert Silbergleit, Rebecca D. Pentz, Franklin G. Miller, Bernard Lo, Steven Joffe, Christine Grady, Sara F. Goldkind, Nir Eyal & Neal W. Dickert - 2017 - American Journal of Bioethics 17 (12):3-11.details
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The ethics of big data: current and foreseeable issues in biomedical contexts.Brent Daniel Mittelstadt & Luciano Floridi - 2016 - Science and Engineering Ethics 22 (2):303–341.details
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Using informed consent to save trust.Nir Eyal - 2014 - Journal of Medical Ethics 40 (7):437-444.details
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Linking Trust to Trustworthiness.Onora O’Neill - 2018 - International Journal of Philosophical Studies 26 (2):293-300.details
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Sociological Practice: Linking Theory and Social Research.Derek Layder - 1998 - SAGE Publications.details
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Trust and the ethical challenges in the use of whole genome sequencing for tuberculosis surveillance: a qualitative study of stakeholder perspectives.Carly Jackson, Jennifer L. Gardy, Hedieh C. Shadiloo & Diego S. Silva - 2019 - BMC Medical Ethics 20 (1):43.details
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Solidarity in Biomedicine and Beyond.Barbara Prainsack & Alena Buyx - 2016 - Cambridge University Press.details
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Informed Consent, Big Data, and the Oxymoron of Research That Is Not Research.John P. A. Ioannidis - 2013 - American Journal of Bioethics 13 (4):40 - 42.details
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We’re not in it for the money—lay people’s moral intuitions on commercial use of ‘their’ biobank.Kristin Solum Steinsbekk, Lars Øystein Ursin, John-Arne Skolbekken & Berge Solberg - 2013 - Medicine, Health Care and Philosophy 16 (2):151-162.details
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Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research.Stephanie A. Kraft, Mildred K. Cho, Katherine Gillespie, Meghan Halley, Nina Varsava, Kelly E. Ormond, Harold S. Luft, Benjamin S. Wilfond & Sandra Soo-Jin Lee - 2018 - American Journal of Bioethics 18 (4):3-20.details
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Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies.Mhairi Aitken, Jenna de St Jorre, Claudia Pagliari, Ruth Jepson & Sarah Cunningham-Burley - 2016 - BMC Medical Ethics 17 (1):73.details
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If you build it, they will come: unintended future uses of organised health data collections.Kieran C. O’Doherty, Emily Christofides, Jeffery Yen, Heidi Beate Bentzen, Wylie Burke, Nina Hallowell, Barbara A. Koenig & Donald J. Willison - 2016 - BMC Medical Ethics 17 (1):54.details
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Modernizing Research Regulations Is Not Enough: It's Time to Think Outside the Regulatory Box.Suzanne M. Rivera, Kyle B. Brothers, R. Jean Cadigan, Heather L. Harrell, Mark A. Rothstein, Richard R. Sharp & Aaron J. Goldenberg - 2017 - American Journal of Bioethics 17 (7):1-3.details
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Thinking ethical and regulatory frameworks in medicine from the perspective of solidarity on both sides of the Atlantic.Barbara Prainsack & Alena Buyx - 2016 - Theoretical Medicine and Bioethics 37 (6):489-501.details
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Responsible data sharing in international health research: a systematic review of principles and norms.Shona Kalkman, Menno Mostert, Christoph Gerlinger, Johannes J. M. van Delden & Ghislaine J. M. W. van Thiel - 2019 - BMC Medical Ethics 20 (1):21.details
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The “We” in the “Me”: Solidarity and Health Care in the Era of Personalized Medicine.Barbara Prainsack - 2018 - Science, Technology, and Human Values 43 (1):21-44.details
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Solidarity can make a difference: Addressing transformations in healthcare, demographics and technological replacement.Alena Buyx & Barbara Prainsack - 2018 - Bioethics 32 (9):537-540.details
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Qualitative study on custodianship of human biological material and data stored in biobanks.Michiel Verlinden, Herman Nys, Nadine Ectors & Isabelle Huys - 2016 - BMC Medical Ethics 17 (1):1-10.details
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