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  1. (1 other version)The wounded storyteller: body, illness, and ethics.Arthur W. Frank - 1995 - Chicago: University of Chicago Press.
    In At the Will of the Body , Arthur Frank told the story of his own illnesses, heart attack and cancer. That book ended by describing the existence of a "remission society," whose members all live with some form of illness or disability. The Wounded Storyteller is their collective portrait. Ill people are more than victims of disease or patients of medicine they are wounded storytellers. People tell stories to make sense of their suffering when they turn their diseases into (...)
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  • Feminist morality: transforming culture, society, and politics.Virginia Held - 1993 - Chicago: University of Chicago Press.
    How is feminism changing the way women and men think, feel, and act? Virginia Held explores how feminist theory is changing contemporary views of moral choice. She proposes a comprehensive philosophy of feminist ethics, arguing persuasively for reconceptualizations of the self of relations between the self and others and of images of birth and death, nurturing and violence. Held shows how social, political, and cultural institutions have traditionally been founded upon masculine ideals of morality. She then identifies a distinct feminist (...)
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  • Recreating Motherhood: Ideology and Technology in a Patriarchal Society.Barbara Katz Rothman - 1990 - W. W. Norton.
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  • Embodied Progress: A Cultural Account of Assisted Conception.Sarah Franklin - 1997 - Psychology Press.
    New reproductive technologies, such as in vitrio fertilization, have been the subject of intense public discussion and debate worldwide. In addition to difficult ethical, moral, personal and political questions, new technologies of assisted conception also raise novel socio-cultural dilemmas. How are parenthood, kinship and procreation being redefined in the context of new reproductive technologies? Has reproductive choice become part of consumer culture? Embodied Progress offers a unique perspective on these and other cultural dimensions of assisted conception techniques. Based on ethnographic (...)
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  • The Lady Vanishes: What’s Missing from the Stem Cell Debate.Donna L. Dickenson - 2006 - Journal of Bioethical Inquiry 3 (1):43-54.
    Most opponents of somatic cell nuclear transfer and embryonic stem cell technologies base their arguments on the twin assertions that the embryo is either a human being or a potential human being, and that it is wrong to destroy a human being or potential human being in order to produce stem cell lines. Proponents’ justifications of stem cell research are more varied, but not enough to escape the charge of obsession with the status of the embryo. What unites the two (...)
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  • Border disputes across bodies: Exploitation in trafficking for prostitution and egg sale for stem cell research.Heather Widdows - 2009 - International Journal of Feminist Approaches to Bioethics 2 (1):5-24.
    In recent decades, debates about exploitation have tended to be subsumed by debates about choice and autonomy. This phenomenon has affected international feminism adversely, creating polarized debates over such issues as prostitution. Equally grave is the more recent tendency, even among some feminists, to assume that a woman’s free choice to accept payment for egg “donation” in somatic cell nuclear transfer stem cell research absolves researchers of any charge of exploitation or abuse of research subjects. This paper suggests that much (...)
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  • (1 other version)Wanted—egg donors for research: A research ethics approach to donor recruitment and compensation.Angela Ballantyne & Sheryl de Lacey - 2008 - International Journal of Feminist Approaches to Bioethics 1 (2):145-164.
    As the demand for human eggs for stem cell research increases, debate about appropriate standards for recruitment and compensation of women intensifies. In the majority of cases, the source of eggs for research is women undergoing fertility treatment requiring ovarian stimulation and egg retrieval. The principle of "just participant selection" requires that research subjects be selected from the population that stands to benefit from the research. Based on this principle, infertile women should be actively recruited to donate eggs for fertility-related (...)
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  • Tissue Economies: Blood, Organs, and Cell Lines in Late Capitalism.Catherine Waldby & Robert Mitchell - 2007 - Science and Society 71 (4):504-506.
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  • (1 other version)Autonomy, social disruption and women.Marilyn Friedman - 2000 - In Catriona Mackenzie & Natalie Stoljar (eds.), Relational Autonomy: Feminist Perspectives on Autonomy, Agency, and the Social Self. New York: Oxford University Press.
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  • Body Images: Embodiment as Intercorporeality.Gail Weiss - 1999 - Routledge.
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  • When concretized emotion-belief complexes derail decision-making capacity.Jodi Halpern - 2010 - Bioethics 26 (2):108-116.
    There is an important gap in philosophical, clinical and bioethical conceptions of decision-making capacity. These fields recognize that when traumatic life circumstances occur, people not only feel afraid and demoralized, but may develop catastrophic thinking and other beliefs that can lead to poor judgment. Yet there has been no articulation of the ways in which such beliefs may actually derail decision-making capacity. In particular, certain emotionally grounded beliefs are systematically unresponsive to evidence, and this can block the ability to deliberate (...)
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  • Feminist Morality: Transforming Culture, Society, and Politics.Virginia Held - 1996 - Hypatia 11 (1):155-167.
    Virginia Held's Feminist Morality defends the idea that it is possible to transform the "public" sphere by remaking it on the model of existing "private" relationships such as families. This paper challenges Held's optimism. It is argued that feminist moral inquiry can aid in transforming the public sphere only by showing just how much the allegedly "private" realms of families and personal relationships are shaped-and often misshapen-by public demands and concerns.
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  • Taking Consent Seriously: Feminist Practical Ethics and Actual Moral Dialogue.Alison Jaggar - 1993 - In Earl Raye Winkler & Jerrold R. Coombs (eds.), The Applied Ethics Reader. Cambridge [Mass.]: Blackwell.
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  • The role of regret in informed consent.Miles Little - 2008 - Journal of Bioethical Inquiry 6 (1):49-59.
    Informed consent to medical procedures tends to be construed in terms of principle-based ethics and one or other form of expected utility theory. These constructions leave problems created by imperfect communication; subjective distress and other emotions; imperfect knowledge and incomplete understanding; complexity, and previous experience or the lack of it. There is evidence that people giving consent to therapy or to research participation act intuitively and assess consequences holistically, being influenced more by the magnitude of outcomes than their probability. People (...)
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  • Ova donation for stem cell research: An international perspective.Donna Dickenson & Itziar Alkorta Idiakez - 2008 - International Journal of Feminist Approaches to Bioethics 1 (2):125-144.
    Should clinicians ask women to donate or even sell their eggs for stem cell research? Enucleated ova are crucial in somatic cell nuclear transfer technologies, but risky for women’s health. Until comparatively recently, very few commentators debated the ethical issues in egg donation and sale, concentrating on the embryo’s status. The unmasking of Hwang Woo Suk, who used over 2,200 ova in his fraudulent research, has finally brought the question of ova donation and sale into prominence. In this article we (...)
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  • “It’s the Knowledge That Puts You in Control”: The Embodied Labor of Gynecological Educators.Kelly Underman - 2011 - Gender and Society 25 (4):431-450.
    Studies have recently begun to attend to the ways paid labor is embodied. However, the literature on embodied labor has not adequately addressed occupations for which the site of labor is the worker’s own body. One such occupation is that of gynecological educators—female-bodied instructors who teach breast and pelvic examinations to medical students using their own bodies as models. Drawing on interviews with current and former gynecological educators and professional directors, I ask how workers use their bodies to produce legitimated (...)
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  • The contributions of empirical evidence to socio-ethical debates on fresh embryo donation for human embryonic stem cell research.Erica Haimes & Ken Taylor - 2009 - Bioethics 25 (6):334-341.
    This article is a response to McLeod and Baylis (2007) who speculate on the dangers of requesting fresh ‘spare’ embryos from IVF patients for human embryonic stem cell (hESC) research, particularly when those embryos are good enough to be transferred back to the woman. They argue that these embryos should be frozen instead. We explore what is meant by ‘spare’ embryos. We then provide empirical evidence, from a study of embryo donation and of embryo donors' views, to substantiate some of (...)
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  • Women's Ways of Knowing: The Development of Self, Voice, and Mind.Mary Field Belenky, Blythe Mcvicker Clinchy, Nancy Rule Goldberger & Jill Mattuck Tarule - 1988 - Hypatia 3 (2):177-179.
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  • Empty Ethics: The Problem with Informed Consent.Oonagh Corrigan - 2003 - Sociology of Health & Illness 25 (3):768-792.
    Informed consent is increasingly heralded as an ethical panacea, a tool to counter autocratic and paternalistic medical practices. Debate about the implementation of informed consent is constricted and polarised, centring on the right of individuals to be fully informed and to freely choose versus an autocratic, paternalistic practice that negates individual choice. A bioethical framework, based on a principle-led form of reductive/deductive reasoning, dominates the current model of informed consent. Such a model tends to abstract the process of consent from (...)
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  • Lay concepts in informed consent to biomedical research: The capacity to understand and appreciate risk.Ana Iltis - 2006 - Bioethics 20 (4):180–190.
    ABSTRACT Persons generally must give their informed consent to participate in research. To provide informed consent persons must be given information regarding the study in simple, lay language. Consent must be voluntary, and persons giving consent must be legally competent to consent and possess the capacity to understand and appreciate the information provided. This paper examines the relationship between the obligation to disclose information regarding risks and the requirement that persons have the capacity to understand and appreciate the information. There (...)
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  • The ethics of managing affective and emotional states to improve informed consent: Autonomy, comprehension, and voluntariness.Hillel Braude & Jonathan Kimmelman - 2010 - Bioethics 26 (3):149-156.
    Over the past several decades the ‘affective revolution’ in cognitive psychology has emphasized the critical role affect and emotion play in human decision-making. Drawing on this affective literature, various commentators have recently proposed strategies for managing therapeutic expectation that use contextual, symbolic, or emotive interventions in the consent process to convey information or enhance comprehension. In this paper, we examine whether affective consent interventions that target affect and emotion can be reconciled with widely accepted standards for autonomous action. More specifically, (...)
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