- Public expectations for return of results from large-cohort genetic research.Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy & Kathy Hudson - 2008 - American Journal of Bioethics 8 (11):36 – 43.details
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Privacy and disclosure in medical genetics examined in an ethics of care.Dorothy C. Wertz & John C. Fletcher - 1991 - Bioethics 5 (3):212–232.details
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Collective Fear, Individualized Risk: the social and cultural context of genetic testing forbreast cancer.N. Press, J. R. Fishman & B. A. Koenig - 2000 - Nursing Ethics 7 (3):237-249.details
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Balancing autonomy and responsibility: the ethics of generating and disclosing genetic information.Nina Hallowell, Claire Foster, Ros Eeles, A. Ardern-Jones, Veronica Murday & Maggie Watson - 2003 - Journal of Medical Ethics 29 (2):74-79.details
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Personalized Genomic Medicine and the Rhetoric of Empowerment.Eric T. Juengst, Michael A. Flatt & Richard A. Settersten - 2012 - Hastings Center Report 42 (5):34-40.details
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Genomic Inheritances: Disclosing Individual Research Results From Whole-Exome Sequencing to Deceased Participants' Relatives.Ben Chan, Flavia M. Facio, Haley Eidem, Sara Chandros Hull, Leslie G. Biesecker & Benjamin E. Berkman - 2012 - American Journal of Bioethics 12 (10):1-8.details
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"They just don't get it!" When family disagrees with expert opinion.A. Ho - 2009 - Journal of Medical Ethics 35 (8):497-501.details
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Preferences Regarding Return of Genomic Results to Relatives of Research Participants, Including after Participant Death: Empirical Results from a Cancer Biobank.Carmen Radecki Breitkopf, Gloria M. Petersen, Susan M. Wolf, Kari G. Chaffee, Marguerite E. Robinson, Deborah R. Gordon, Noralane M. Lindor & Barbara A. Koenig - 2015 - Journal of Law, Medicine and Ethics 43 (3):464-475.details
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Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations.Susan M. Wolf, Frances P. Lawrenz, Charles A. Nelson, Jeffrey P. Kahn, Mildred K. Cho, Ellen Wright Clayton, Joel G. Fletcher, Michael K. Georgieff, Dale Hammerschmidt, Kathy Hudson, Judy Illes, Vivek Kapur, Moira A. Keane, Barbara A. Koenig, Bonnie S. LeRoy, Elizabeth G. McFarland, Jordan Paradise, Lisa S. Parker, Sharon F. Terry, Brian Van Ness & Benjamin S. Wilfond - 2008 - Journal of Law, Medicine and Ethics 36 (2):219-248.details
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Balancing autonomy and responsibility: the ethics of generating and disclosing genetic information * Commentary * Author's reply.N. Hallowell - 2003 - Journal of Medical Ethics 29 (2):74-79.details
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‘Is this knowledge mine and nobody else's? I don't feel that.’ Patient views about consent, confidentiality and information-sharing in genetic medicine: Table 1.Sandi Dheensa, Angela Fenwick & Anneke Lucassen - 2016 - Journal of Medical Ethics 42 (3):174-179.details
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Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.Susan M. Wolf, Rebecca Branum, Barbara A. Koenig, Gloria M. Petersen, Susan A. Berry, Laura M. Beskow, Mary B. Daly, Conrad V. Fernandez, Robert C. Green, Bonnie S. LeRoy, Noralane M. Lindor, P. Pearl O'Rourke, Carmen Radecki Breitkopf, Mark A. Rothstein, Brian Van Ness & Benjamin S. Wilfond - 2015 - Journal of Law, Medicine and Ethics 43 (3):440-463.details
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Disclosing Individual Genetic Research Results to Deceased Participants' Relatives by Means of a Qualified Disclosure Policy.Annelien L. Bredenoord & Johannes Jm van Delden - 2012 - American Journal of Bioethics 12 (10):10-12.details
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Informed decision making about predictive DNA tests: arguments for more public visibility of personal deliberations about the good life.Marianne Boenink & Simone Burg - 2010 - Medicine, Health Care and Philosophy 13 (2):127-138.details
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INTRODUCTION: Return of Research Results: What About the Family?Susan M. Wolf - 2015 - Journal of Law, Medicine and Ethics 43 (3):437-439.details
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The Double Helix: Applying an Ethic of Care to the Duty to Warn Genetic Relatives of Genetic Information.Meaghann Weaver - 2015 - Bioethics 30 (3):181-187.details
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Why Not Grant Primacy to the Family?Barbara A. Koenig - 2001 - American Journal of Bioethics 1 (3):33-34.details
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Informed decision making about predictive DNA tests: arguments for more public visibility of personal deliberations about the good life. [REVIEW]Marianne Boenink & Simone van der Burg - 2010 - Medicine, Health Care and Philosophy 13 (2):127-138.details
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Patients' Choices for Return of Exome Sequencing Results to Relatives in the Event of Their Death.Laura M. Amendola, Martha Horike-Pyne, Susan B. Trinidad, Stephanie M. Fullerton, Barbara J. Evans, Wylie Burke & Gail P. Jarvik - 2015 - Journal of Law, Medicine and Ethics 43 (3):476-485.details
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