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  1. Ethical Advocacy Across the Autism Spectrum: Beyond Partial Representation.Matthew S. McCoy, Emily Y. Liu, Amy S. F. Lutz & Dominic Sisti - 2020 - American Journal of Bioethics 20 (4):13-24.
    Recent debates within the autism advocacy community have raised difficult questions about who can credibly act as a representative of a particular population and what responsibilities that...
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  • Epistemic injustice: power and the ethics of knowing.Miranda Fricker - 2007 - New York: Oxford University Press.
    Fricker shows that virtue epistemology provides a general epistemological idiom in which these issues can be forcefully discussed.
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  • One For All, All For One? Collective Representation in Healthcare Policy.Karin Jongsma, Nitzan Rimon-Zarfaty, Aviad Raz & Silke Schicktanz - 2018 - Journal of Bioethical Inquiry 15 (3):337-340.
    Healthcare collectives, such as patient organizations, advocacy groups, disability organizations, professional associations, industry advocates, social movements, and health consumer organizations have been increasingly involved in healthcare policymaking. Such collectives are based on the idea that individual interests can be aggregated into collective interests by participation, deliberation, and representation. The topic of collectivity in healthcare, more specifically collective representation, has only rarely been addressed in bioethics. This symposium, entitled: “Collective Representation in Healthcare Policy” of the Journal of Bioethical Inquiry draws attention (...)
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  • Epistemic injustice in dementia and autism patient organizations: An empirical analysis.Karin Jongsma, Elisabeth Spaeth & Silke Schicktanz - 2017 - AJOB Empirical Bioethics 8 (4):221-233.
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