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  1. Why public funding for non-invasive prenatal testing (NIPT) might still be wrong: a response to Bunnik and colleagues.Dagmar Schmitz - 2020 - Journal of Medical Ethics 46 (11):781-782.
    Bunnik and colleagues argued that financial barriers do not promote informed decision-making prior to prenatal screening and raise justice concerns. If public funding is provided, however, it would seem to be important to clarify its intentions and avoid any unwarranted appearance of a medical utility of the testing.
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  • A Framework for Unrestricted Prenatal Whole-Genome Sequencing: Respecting and Enhancing the Autonomy of Prospective Parents.Stephanie C. Chen & David T. Wasserman - 2017 - American Journal of Bioethics 17 (1):3-18.
    Noninvasive, prenatal whole genome sequencing may be a technological reality in the near future, making available a vast array of genetic information early in pregnancy at no risk to the fetus or mother. Many worry that the timing, safety, and ease of the test will lead to informational overload and reproductive consumerism. The prevailing response among commentators has been to restrict conditions eligible for testing based on medical severity, which imposes disputed value judgments and devalues those living with eligible conditions. (...)
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  • Implementing Expanded Prenatal Genetic Testing: Should Parents Have Access to Any and All Fetal Genetic Information?Michelle J. Bayefsky & Benjamin E. Berkman - 2022 - American Journal of Bioethics 22 (2):4-22.
    Prenatal genetic testing is becoming available for an increasingly broad set of diseases, and it is only a matter of time before parents can choose to test for hundreds, if not thousands, of genetic conditions in their fetuses. Should access to certain kinds of fetal genetic information be limited, and if so, on what basis? We evaluate a range of considerations including reproductive autonomy, parental rights, disability rights, and the rights and interests of the fetus as a potential future child. (...)
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  • Prenatal diagnosis: The irresistible rise of the ‘visible fetus’.Ilana Löwy - 2014 - Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 47 (PB):290-299.
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  • Down’s Syndrome Screening and Reproductive Politics: Care, Choice, and Disability in the Prenatal Clinic.Gareth M. Thomas - 2017 - Routledge.
    In the UK and beyond, Down's syndrome screening has become a universal programme in prenatal care. But why does screening persist, particularly in light of research that highlights pregnant women's ambivalent and problematic experiences with it? Drawing on an ethnography of Down's syndrome screening in two UK clinics, Thomas explores how and why we are so invested in this practice and what effects this has on those involved. Informed by theoretical approaches that privilege the mundane and micro practices, discourses, materials, (...)
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  • The Ethics of Genetic Research on Sexual Orientation.Udo Schüklenk, Edward Stein, Jacinta Kerin & William Byne - 1997 - Hastings Center Report 27 (4):6-13.
    Research into the genetic component of some complex behaviors often causes controversy, depending on the social meaning and significance of the behavior under study. Research into sexual orientation—simplistically referred to as “gay gene” research—is an example of research that provokes intense controversy. This research is worrisome for many reasons, including the fact that it has been used to harm lesbians and gay men. Many homosexual people have been forced to undergo “treatments” to change their sexual orientation. Others chose to undergo (...)
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  • A New Ethical Landscape of Prenatal Testing: Individualizing Choice to Serve Autonomy and Promote Public Health: A Radical Proposal.Christian Munthe - 2014 - Bioethics 29 (1):36-45.
    A new landscape of prenatal testing is presently developing, including new techniques for risk-reducing, non-invasive sampling of foetal DNA and drastically enhanced possibilities of what may be rapidly and precisely analysed, surrounded by a growing commercial genetic testing industry and a general trend of individualization in healthcare policies. This article applies a set of established ethical notions from past debates on PNT for analysing PNT screening-programmes in this new situation. While some basic challenges of PNT stay untouched, the new development (...)
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  • Sex Selection: The Feminist Response.Diemut Bubeck - 2002 - In Justine Burley & John Harris (eds.), A Companion to Genethics. Wiley-Blackwell. pp. 216–228.
    The prelims comprise: Introduction Developments in Sex‐selective Technology and Practice Empirical Predictions Consequentialist Arguments Radical Feminist Argument: Patriarchy and Gynicide The Liberal Position: The Importance of Choice Liberty, Equality, and Justice Notes.
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  • The Right to Know and the Right Not to Know Revisited: Part One.Roger Brownsword & Jeff Wale - 2017 - Asian Bioethics Review 9 (1-2):3-18.
    Prompted by developments in human genetics, a recurrent bioethical question concerns a person’s ‘right to know’ and ‘right not to know’ about genetic information held that is intrinsically related to or linked to them. In this paper, we will revisit the claimed rights in relation to two particular test cases. One concerns the rights of the 500,000 participants in UK Biobank whose biosamples, already having been genotyped, will now be exome sequenced, and the other concerns the rights of pregnant women (...)
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  • Genetic Screening: Ethical Issues.Nuffield Council On Bioethics - forthcoming - Nuffield Bioethics, Uk.
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