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  1. Between Technocracy and Democratic Legitimation: A Proposed Compromise Position for Common Morality Public Bioethics.John Evans - 2006 - Journal of Medicine and Philosophy 31 (3):213-234.
    In this article I explore the underlying political philosophy of public bioethics by comparing it to technocratic authority, particularly the technocratic authority claimed by economists in Mexico in the 1980s and 1990s. I find that public bioethics - at least in the dominant forms - is implicitly designed for and tries to use technocratic authority. I examine how this type of bioethics emerged and has continued. I finish by arguing that, as claims to technocratic authority go, bioethics is in an (...)
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  • The social licence for research: why care.data ran into trouble.Pam Carter, Graeme T. Laurie & Mary Dixon-Woods - 2015 - Journal of Medical Ethics 41 (5):404-409.
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  • Imagination and principles: an essay on the role of imagination in moral reasoning.Mark Coeckelbergh - 2007 - New York: Palgrave-Macmillan.
    What does it mean to say that imagination plays a role in moral reasoning, and what are the theoretical and practical implications? Engaging with three traditions in moral theory and confronting them with three contexts of moral practice, this book offers a more comprehensive framework to think about these questions. The author develops an argument about the relation between imagination and principles that moves beyond competition metaphors and center-periphery schemas. He shows that both cooperate and are equally necessary to cope (...)
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  • What can the social sciences contribute to the study of ethics? Theoretical, empirical and substantive considerations.Erica Haimes - 2002 - Bioethics 16 (2):89–113.
    This article seeks to establish that the social sciences have an important contribution to make to the study of ethics. The discussion is framed around three questions: (i) what theoretical work can the social sciences contribute to the understanding of ethics? (ii) what empirical work can the social sciences contribute to the understanding of ethics? And (iii) how does this theoretical and empirical work combine, to enhance the understanding of how ethics, as a field of analysis and debate, is socially (...)
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  • Ecologies of public trust: The nhs covid-19 contact tracing app.Gabrielle Samuel, Frederica Lucivero, Stephanie Johnson & Heilien Diedericks - 2021 - Journal of Bioethical Inquiry 18 (4):595-608.
    In April 2020, close to the start of the first U.K. COVID-19 lockdown, the U.K. government announced the development of a COVID-19 contact tracing app, which was later trialled on the U.K. island, the Isle of Wight, in May/June 2020. United Kingdom surveys found general support for the development of such an app, which seemed strongly influenced by public trust. Institutions developing the app were called upon to fulfil the commitment to public trust by acting with trustworthiness. Such calls presuppose (...)
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  • Ethical guidelines for COVID-19 tracing apps.Jessica Morley, Josh Cowls, Mariarosaria Taddeo & Luciano Floridi - 2020 - Nature 582:29–⁠31.
    Technologies to rapidly alert people when they have been in contact with someone carrying the coronavirus SARS-CoV-2 are part of a strategy to bring the pandemic under control. Currently, at least 47 contact-tracing apps are available globally. They are already in use in Australia, South Korea and Singapore, for instance. And many other governments are testing or considering them. Here we set out 16 questions to assess whether — and to what extent — a contact-tracing app is ethically justifiable.
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  • Expectations of artificial intelligence and the performativity of ethics: Implications for communication governance.John D. Kelleher, Marguerite Barry & Aphra Kerr - 2020 - Big Data and Society 7 (1).
    This article draws on the sociology of expectations to examine the construction of expectations of ‘ethical AI’ and considers the implications of these expectations for communication governance. We first analyse a range of public documents to identify the key actors, mechanisms and issues which structure societal expectations around artificial intelligence and an emerging discourse on ethics. We then explore expectations of AI and ethics through a survey of members of the public. Finally, we discuss the implications of our findings for (...)
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  • COVID-19 and Contact Tracing Apps: Ethical Challenges for a Social Experiment on a Global Scale.Federica Lucivero, Nina Hallowell, Stephanie Johnson, Barbara Prainsack, Gabrielle Samuel & Tamar Sharon - 2020 - Journal of Bioethical Inquiry 17 (4):835-839.
    Mobile applications are increasingly regarded as important tools for an integrated strategy of infection containment in post-lockdown societies around the globe. This paper discusses a number of questions that should be addressed when assessing the ethical challenges of mobile applications for digital contact-tracing of COVID-19: Which safeguards should be designed in the technology? Who should access data? What is a legitimate role for “Big Tech” companies in the development and implementation of these systems? How should cultural and behavioural issues be (...)
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  • Blind-sided by privacy? Digital contact tracing, the Apple/Google API and big tech’s newfound role as global health policy makers.Tamar Sharon - 2020 - Ethics and Information Technology 23 (S1):45-57.
    Since the outbreak of COVID-19, governments have turned their attention to digital contact tracing. In many countries, public debate has focused on the risks this technology poses to privacy, with advocates and experts sounding alarm bells about surveillance and mission creep reminiscent of the post 9/11 era. Yet, when Apple and Google launched their contact tracing API in April 2020, some of the world’s leading privacy experts applauded this initiative for its privacy-preserving technical specifications. In an interesting twist, the tech (...)
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  • Ethics of instantaneous contact tracing using mobile phone apps in the control of the COVID-19 pandemic.Michael J. Parker, Christophe Fraser, Lucie Abeler-Dörner & David Bonsall - 2020 - Journal of Medical Ethics 46 (7):427-431.
    In this paper we discuss ethical implications of the use of mobile phone apps in the control of the COVID-19 pandemic. Contact tracing is a well-established feature of public health practice during infectious disease outbreaks and epidemics. However, the high proportion of pre-symptomatic transmission in COVID-19 means that standard contact tracing methods are too slow to stop the progression of infection through the population. To address this problem, many countries around the world have deployed or are developing mobile phone apps (...)
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  • Why research ethics should add retrospective review.Angus Dawson, Sapfo Lignou, Chesmal Siriwardhana & Dónal P. O’Mathúna - 2019 - BMC Medical Ethics 20 (1):1-8.
    Research ethics is an integral part of research, especially that involving human subjects. However, concerns have been expressed that research ethics has come to be seen as a procedural concern focused on a few well-established ethical issues that researchers need to address to obtain ethical approval to begin their research. While such prospective review of research is important, we argue that it is not sufficient to address all aspects of research ethics. We propose retrospective review as an important complement to (...)
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  • Performative Rights and Situationist Ethics.Joe Hoover - 2019 - Contemporary Pragmatism 16 (2-3):242-267.
    Recent critiques of rights have enabled alternative understandings of their role in contemporary politics. In this article, I focus on the emergence of a performative understanding of rights, which conceptualises rights claims as reiterative acts that remake the protections and privileges marked out by rights. This promising reconstruction of rights requires a rethinking of the ethical justification of rights claims. If rights claims are creative political acts, rather than especially important duties, a justification focused on certainty and constraint will not (...)
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  • Imagination and Principles: An Essay on the Role of Imagination in Moral Reasoning. [REVIEW]Mark Coeckelbergh - 2008 - Algemeen Nederlands Tijdschrift voor Wijsbegeerte 100 (3):251-253.
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  • “You hoped we would sleep walk into accepting the collection of our data”: controversies surrounding the UK care.data scheme and their wider relevance for biomedical research.Sigrid Sterckx, Vojin Rakic, Julian Cockbain & Pascal Borry - 2016 - Medicine, Health Care and Philosophy 19 (2):177-190.
    An ‘Information Centre’ has recently been established by law which has the power to collect, collate and provide access to the medical information forall patients treated by the National Health Service in England, whether in hospitals or by General Practitioners. This so-called ‘care.data’ scheme has given rise to major and ongoing controversies. We will sketch the background of the scheme and look at the responses it has elicited from citizens and medical professionals. In Autumn 2013, NHS England set up a (...)
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  • The making of British bioethics.Duncan Wilson - 2014 - Manchester: Manchester University Press.
    The Making of British Bioethics provides the first in-depth study of how philosophers, lawyers and other 'outsiders' came to play a major role in discussing and helping to regulate issues that used to be left to doctors and scientists. It details how British bioethics emerged thanks to a dynamic interplay between sociopolitical concerns and the aims of specific professional groups and individuals who helped create the demand for outside involvement and transformed themselves into influential 'ethics experts'. Highlighting this interplay helps (...)
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  • The global landscape of AI ethics guidelines.A. Jobin, M. Ienca & E. Vayena - 2019 - Nature Machine Intelligence 1.
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