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  1. Research on Medical Records without Informed Consent.Franklin G. Miller - 2008 - Journal of Law, Medicine and Ethics 36 (3):560-566.
    Research drawn from data contained in medical records is a common and immensely important means of scientific investigation in epidemiology and health services research. It provides valuable knowledge regarding risk factors for disease, the safety of pharmaceuticals and medical procedures, and the quality of medical care. Electronic information technology has greatly enhanced the capability of conducting research using medical records, but it has also generated increasing concern about invasions of privacy. Both practical and scientific considerations militate against soliciting consent for (...)
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  • Cultural Challenges to Biotechnology: Native American Genetic Resources and the Concept of Cultural Harm.Rebecca Tsosie - 2007 - Journal of Law, Medicine and Ethics 35 (3):396-411.
    Our society currently faces many complex and perplexing issues related to biotechnology, including the need to define the outer boundaries of genetic research on human beings and the need to protect individual and group rights to human tissue and the knowledge gained from the study of that tissue. Scientists have increasingly become interested in studying so-called “population isolates” to discover the nature and location of genes that are unique to particular groups. Indigenous peoples are often targeted by scientists because “the (...)
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  • The problem of race in medicine.Michael Root - 2001 - Philosophy of the Social Sciences 31 (1):20-39.
    The biomedical sciences employ race as a descriptive and analytic category. They use race to describe differences in rates of morbidity and mortality and to explain variations in drug sensitivity and metabolism. But there are problems with the use of race in medicine. This article identifies a number of the problems and assesses some solutions. The first three sections consider how race is defined and whether the racial data used in biomedical research are reliable and valid. The next three sections (...)
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  • Population Genomics and Research Ethics with Socially Identifiable Groups.Joan L. McGregor - 2007 - Journal of Law, Medicine and Ethics 35 (3):356-370.
    The genetic revolution is well underway, with genetic research and knowledge expanding at an exponential rate. Much of the new genetics research is focused on population groups, and proponents of “population genomics” argue that such studies are necessary since genetic “variation” among human populations holds the most promise for technological innovations that can improve human health and lead to increased understanding of the origin of human populations. Population genomic research thus targets specific groups to discover variation that could lead to (...)
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  • Racial and Ethnic Categories in Biomedical Research: There is no Baby in the Bathwater.Mildred K. Cho - 2006 - Journal of Law, Medicine and Ethics 34 (3):497-499.
    The use of racial categories in biomedicine has had a long history in the United States. However, social hierarchy and discrimination, justified by purported scientific differences, has also plagued the history of racial categories. Because “race” has some correlation with biological and genetic characteristics, there has been a call not to “throw the baby out with the bathwater” by eliminating race as a research or clinical category. I argue that race is too undefined and fluid to be useful as a (...)
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  • Is Deidentification Sufficient to Protect Health Privacy in Research?Mark A. Rothstein - 2010 - American Journal of Bioethics 10 (9):3-11.
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