- Balancing the local and the universal in maintaining ethical access to a genomics biobank.Catherine Heeney & Shona M. Kerr - 2017 - BMC Medical Ethics 18 (1):80.details
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Democratizing Health Research Through Data Cooperatives.Alessandro Blasimme, Effy Vayena & Ernst Hafen - 2018 - Philosophy and Technology 31 (3):473-479.details
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Have We Asked Too Much of Consent?Barbara A. Koenig - 2014 - Hastings Center Report 44 (4):33-34.details
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(1 other version)The Michigan BioTrust for Health: Using Dried Bloodspots for Research to Benefit the Community While Respecting the Individual.Denise Chrysler, Harry McGee, Janice Bach, Ed Goldman & Peter D. Jacobson - 2011 - Journal of Law, Medicine and Ethics 39 (s1):98-101.details
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(1 other version)Partnership in U.K. Biobank: A Third Way for Genomic Property?David E. Winickoff - 2007 - Journal of Law, Medicine and Ethics 35 (3):440-456.details
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Public involvement in the governance of population-level biomedical research: unresolved questions and future directions.Sonja Erikainen, Phoebe Friesen, Leah Rand, Karin Jongsma, Michael Dunn, Annie Sorbie, Matthew McCoy, Jessica Bell, Michael Burgess, Haidan Chen, Vicky Chico, Sarah Cunningham-Burley, Julie Darbyshire, Rebecca Dawson, Andrew Evans, Nick Fahy, Teresa Finlay, Lucy Frith, Aaron Goldenberg, Lisa Hinton, Nils Hoppe, Nigel Hughes, Barbara Koenig, Sapfo Lignou, Michelle McGowan, Michael Parker, Barbara Prainsack, Mahsa Shabani, Ciara Staunton, Rachel Thompson, Kinga Varnai, Effy Vayena, Oli Williams, Max Williamson, Sarah Chan & Mark Sheehan - 2021 - Journal of Medical Ethics 47 (7):522-525.details
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The social licence for research: why care.data ran into trouble.Pam Carter, Graeme T. Laurie & Mary Dixon-Woods - 2015 - Journal of Medical Ethics 41 (5):404-409.details
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Trust, trustworthiness and sharing patient data for research.Mark Sheehan, Phoebe Friesen, Adrian Balmer, Corina Cheeks, Sara Davidson, James Devereux, Douglas Findlay, Katharine Keats-Rohan, Rob Lawrence & Kamran Shafiq - 2021 - Journal of Medical Ethics 47 (12):e26-e26.details
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Biomedical Big Data: New Models of Control Over Access, Use and Governance.Alessandro Blasimme & Effy Vayena - 2017 - Journal of Bioethical Inquiry 14 (4):501-513.details
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Patients’ and public views and attitudes towards the sharing of health data for research: a narrative review of the empirical evidence.Shona Kalkman, Johannes van Delden, Amitava Banerjee, Benoît Tyl, Menno Mostert & Ghislaine van Thiel - 2022 - Journal of Medical Ethics 48 (1):3-13.details
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Linking Broad Consent to Biobank Governance: Support From a Deliberative Public Engagement in California.Sarah B. Garrett, Daniel Dohan & Barbara A. Koenig - 2015 - American Journal of Bioethics 15 (9):56-57.details
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(1 other version)Partnership in U.K. Biobank: A Third Way for Genomic Property?David E. Winickoff - 2007 - Journal of Law, Medicine and Ethics 35 (3):440-456.details
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Patient‐Engaged Research: Choosing the “Right” Patients to Avoid Pitfalls.Emily A. Largent, Holly Fernandez Lynch & Matthew S. McCoy - 2018 - Hastings Center Report 48 (5):26-34.details
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UK Biobank: a model for public engagement?Mairi Levitt - 2005 - Genomics, Society and Policy 1 (3):1-4.details
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Patient and public involvement: Two sides of the same coin or different coins altogether?Matthew S. McCoy, Jonathan Warsh, Leah Rand, Michael Parker & Mark Sheehan - 2019 - Bioethics 33 (6):708-715.details
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(1 other version)The Michigan BioTrust for Health: Using Dried Bloodspots for Research to Benefit the Community While Respecting the Individual.Denise Chrysler, Harry McGee, Janice Bach, Ed Goldman & Peter D. Jacobson - 2011 - Journal of Law, Medicine and Ethics 39 (s1):98-101.details
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Deliberative public opinion.Kieran C. O’Doherty - 2017 - History of the Human Sciences 30 (4):124-145.details
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