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  1. Healthiness as a Virtue: The Healthism of mHealth and the Challenges to Public Health.Michał Wieczorek & Leon Walter Sebastian Rossmaier - 2023 - Public Health Ethics 16 (3):219-231.
    Mobile health (mHealth) technologies for self-monitoring health-relevant parameters such as heart frequency, sleeping patterns or exercise regimes aim at fostering healthy behavior change and increasing the individual users to promote and maintain their health. We argue that this aspect of mHealth supports healthism, the increasing shift from institutional responsibility for public health toward individual engagement in maintaining health as well as mitigating health risks. Moreover, this healthist paradigm leads to a shift from understanding health as the absence of illness to (...)
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  • Ownership of individual-level health data, data sharing, and data governance.Jan Piasecki & Phaik Yeong Cheah - 2022 - BMC Medical Ethics 23 (1):1-9.
    Background The ownership status of individual-level health data affects the manner in which it is used. In this paper we analyze two competing models of the ownership status of the data discussed in the literature recently: private ownership and public ownership. Main body In this paper we describe the limitations of these two models of data ownership with respect to individual-level health data, in particular in terms of ethical principles of justice and autonomy, risk mitigation, as well as technological, economic, (...)
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  • What can data trusts for health research learn from participatory governance in biobanks?Richard Milne, Annie Sorbie & Mary Dixon-Woods - forthcoming - Journal of Medical Ethics.
    New models of data governance for health data are a focus of growing interest in an era of challenge to the social licence. In this article, we reflect on what the data trust model, which is founded on principles of participatory governance, can learn from experiences of involving and engagement of members of the public and participants in the governance of large-scale biobanks. We distinguish between upstream and ongoing governance models, showing how they require careful design and operation if they (...)
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  • Towards Rawlsian ‘property-owning democracy’ through personal data platform cooperatives.Michele Loi, Paul-Olivier Dehaye & Ernst Hafen - 2023 - Critical Review of International Social and Political Philosophy 26 (6):769-787.
    This paper supports the personal data platform cooperative as a means of bringing about John Rawls’s favoured institutional realisation of a just society, the property-owning democracy. It describes personal data platform cooperatives and applies Rawls’s political philosophy to analyse the institutional forms of a just society in relation to the economic power deriving from aggregating personal data. It argues that a society involving a significant number of personal data platform cooperatives will be more suitable to realising Rawls’s principle of fair (...)
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  • Limits of data anonymity: lack of public awareness risks trust in health system activities. [REVIEW]Caroline Brall & Felix Gille - 2021 - Life Sciences, Society and Policy 17 (1):1-8.
    Public trust is paramount for the well functioning of data driven healthcare activities such as digital health interventions, contact tracing or the build-up of electronic health records. As the use of personal data is the common denominator for these healthcare activities, healthcare actors have an interest to ensure privacy and anonymity of the personal data they depend on. Maintaining privacy and anonymity of personal data contribute to the trustworthiness of these healthcare activities and are associated with the public willingness to (...)
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  • Big Tech and the Smartification of Agriculture.Anna-Verena Nosthoff & Felix Maschewski - 2022 - Https://Projects.Itforchange.Net/State-of-Big-Tech/Big-Tech-and-the-Smartification-of-Agriculture-a- Critical-Perspective/.
    The paper outlines critical aspects concerning the increasing use of big data in agriculture and farming. In particular, the aim is to shed light on the emerging dominance of the platform economy in the field of agriculture and food production. To analyze those power structures shaping this dynamic, we start with brief observations on the general relationship between digitization and agriculture and explain the platform economy, its general business model, and the proprietary forms of market power emerging from it. Subsequently, (...)
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  • Überwachungskapitalistische Biopolitik: Big Tech und die Regierung der Körper.Anna-Verena Nosthoff & Felix Maschewski - forthcoming - Zeitschrift Für Politikwissenschaft.
    The article introduces the concept of "surveillance-capitalist biopolitics" to problematize the recent expansion of "data extractivism" in health care and health research. As we show, this trend has accelerated during the ongoing Covid pandemic and points to a normalization and institutionalization of self-tracking practices, which, drawing on the "quantified self", points to the emergence of a "quantified collective". Referring to Foucault and Zuboff, and by analyzing key examples of the leading "Big Tech" companies (e.g., Alphabet and Apple), we argue that (...)
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