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  1. Empirical ethics, context-sensitivity, and contextualism.Albert Musschenga - 2005 - Journal of Medicine and Philosophy 30 (5):467 – 490.
    In medical ethics, business ethics, and some branches of political philosophy (multi-culturalism, issues of just allocation, and equitable distribution) the literature increasingly combines insights from ethics and the social sciences. Some authors in medical ethics even speak of a new phase in the history of ethics, hailing "empirical ethics" as a logical next step in the development of practical ethics after the turn to "applied ethics." The name empirical ethics is ill-chosen because of its associations with "descriptive ethics." Unlike descriptive (...)
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  • Principles of Biomedical Ethics.Ezekiel J. Emanuel, Tom L. Beauchamp & James F. Childress - 1995 - Hastings Center Report 25 (4):37.
    Book reviewed in this article: Principles of Biomedical Ethics. By Tom L. Beauchamp and James F. Childress.
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  • The Care Dialog: the “ethics of care” approach and its importance for clinical ethics consultation.Patrick Schuchter & Andreas Heller - 2018 - Medicine, Health Care and Philosophy 21 (1):51-62.
    Ethics consultation in institutions of the healthcare system has been given a standard form based on three pillars: education, the development of guidelines and concrete ethics consultation in case conferences. The spread of ethics committees, which perform these tasks on an organizational level, is a remarkable historic achievement. At the same time it cannot be denied that modern ethics consultation neglects relevant aspects of care ethics approaches. In our essay we present an “ethics of care” approach as well as an (...)
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  • The Ethics of Care. Personal, Political, and Global.Virginia Held - 2007 - Tijdschrift Voor Filosofie 69 (2):399-399.
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  • Healthcare professionals’ perceptions of the ethical climate in paediatric cancer care.Cecilia Bartholdson, Margareta af Sandeberg, Kim Lützén, Klas Blomgren & Pernilla Pergert - 2016 - Nursing Ethics 23 (8):877-888.
    Background: How well ethical concerns are handled in healthcare is influenced by the ethical climate of the workplace, which in this study is described as workplace factors that contribute to healthcare professionals’ ability to identify and deal with ethical issues in order to provide the patient with ethically good care. Objectives: The overall aim of the study was to describe perceptions of the paediatric hospital ethical climate among healthcare professionals who treat/care for children with cancer. Research design: Data were collected (...)
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  • The role of guidelines in ethical competence-building: perceptions among research nurses and physicians.Anna T. HÖGlund, Stefan Eriksson & Gert Helgesson - 2010 - Clinical Ethics 5 (2):95-102.
    The aim of the present study was to describe and explore the perception of ethical guidelines and their role in ethical competence-building among Swedish physicians and research nurses. Twelve informants were interviewed in depth. The results demonstrated that the informants had a critical attitude towards ethical guidelines and claimed to make little use of them in practical moral judgements. Ethical competence was seen primarily as character-building, related to virtues such as being empathic, honest and loyal to patients. Ethical competence was (...)
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  • Ethics education to support ethical competence learning in healthcare: an integrative systematic review.Anders Bremer, Mats Holmberg, Andreas Rantala, Catharina Frank, Anders Svensson & Henrik Andersson - 2022 - BMC Medical Ethics 23 (1):1-26.
    BackgroundEthical problems in everyday healthcare work emerge for many reasons and constitute threats to ethical values. If these threats are not managed appropriately, there is a risk that the patient may be inflicted with moral harm or injury, while healthcare professionals are at risk of feeling moral distress. Therefore, it is essential to support the learning and development of ethical competencies among healthcare professionals and students. The aim of this study was to explore the available literature regarding ethics education that (...)
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  • Children in health research: a matter of trust.R. L. Woodgate & M. Edwards - 2010 - Journal of Medical Ethics 36 (4):211-216.
    Background Central to the involvement of children in health research is the notion of risk. In this paper we present one of the factors, a matter of trust, that shaped Canadian parents' and children's perceptions and assessments of risk in child health research. Participants and methods Part of a larger qualitative research study, 82 parents took part an in-depth qualitative interview, with 51 parents having children who had participated in health research and 31 having children with no research history. 51 (...)
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  • Ethics, Poverty and Children’s Vulnerability.Gottfried Schweiger - 2019 - Ethics and Social Welfare 13 (3):288-301.
    This paper is concerned with child poverty from an ethical perspective and applies the normative concept of vulnerability for this purpose. The first part of the paper will briefly outline children’s particular vulnerability and distinguish important aspects of this. Then the concept will be applied to child poverty and it will be shown that child poverty is a corrosive situational vulnerability, with many severe consequences. In this part of the paper normative reasoning and empirical literature will be brought together. Then, (...)
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  • Is Consent Based on Trust Morally Inferior to Consent Based on Information?Nana Cecilie Halmsted Kongsholm & Klemens Kappel - 2017 - Bioethics 31 (6):432-442.
    Informed consent is considered by many to be a moral imperative in medical research. However, it is increasingly acknowledged that in many actual instances of consent to participation in medical research, participants do not employ the provided information in their decision to consent, but rather consent based on the trust they hold in the researcher or research enterprise. In this article we explore whether trust-based consent is morally inferior to information-based consent. We analyse the moral values essential to valid consent (...)
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  • Moral distress in paediatric oncology: Contributing factors and group differences.Pernilla Pergert, Cecilia Bartholdson, Klas Blomgren & Margareta af Sandeberg - 2019 - Nursing Ethics 26 (7-8):2351-2363.
    Background: Providing oncological care to children is demanding and ethical issues concerning what is best for the child can contribute to moral distress. Objectives: To explore healthcare professionals’ experiences of situations that generate moral distress in Swedish paediatric oncology. Research design: In this national study, data collection was conducted using the Swedish Moral Distress Scale-Revised. The data analysis included descriptive statistics and non-parametric analysis of differences between groups. Participants and research context: Healthcare professionals at all paediatric oncology centres in Sweden (...)
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  • Healthcare professionals’ perceptions of the ethical climate in paediatric cancer care.Cecilia Bartholdson, Margareta af Sandeberg, Kim Lützén, Klas Blomgren & Pernilla Pergert - 2016 - Nursing Ethics 23 (8):877-888.
    Background: How well ethical concerns are handled in healthcare is influenced by the ethical climate of the workplace, which in this study is described as workplace factors that contribute to healthcare professionals’ ability to identify and deal with ethical issues in order to provide the patient with ethically good care. Objectives: The overall aim of the study was to describe perceptions of the paediatric hospital ethical climate among healthcare professionals who treat/care for children with cancer. Research design: Data were collected (...)
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  • Vulnerability in Research Ethics: a Way Forward.Margaret Meek Lange, Wendy Rogers & Susan Dodds - 2013 - Bioethics 27 (6):333-340.
    Several foundational documents of bioethics mention the special obligation researchers have to vulnerable research participants. However, the treatment of vulnerability offered by these documents often relies on enumeration of vulnerable groups rather than an analysis of the features that make such groups vulnerable. Recent attempts in the scholarly literature to lend philosophical weight to the concept of vulnerability are offered by Luna and Hurst. Luna suggests that vulnerability is irreducibly contextual and that Institutional Review Boards (Research Ethics Committees) can only (...)
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  • Being, doing, and knowing: Developing ethical competence in health care. [REVIEW]S. Eriksson, G. Helgesson & A. T. Höglund - 2007 - Journal of Academic Ethics 5 (2-4):207-216.
    There is a growing interest in ethical competence-building within nursing and health care practising. This tendency is accompanied by a remarkable growth of ethical guidelines. Ethical demands have also been laid down in laws. Present-day practitioners and researchers in health care are thereby left in a virtual cross-fire of various legislations, codes, and recommendations, all intended to guide behaviour. The aim of this paper was to investigate the role of ethical guidelines in the process of ethical competence-building within health care (...)
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  • Why bioethics needs a concept of vulnerability.Wendy Rogers, Catriona Mackenzie & Susan Dodds - 2012 - International Journal of Feminist Approaches to Bioethics 5 (2):11-38.
    Concern for human vulnerability seems to be at the heart of bioethical inquiry, but the concept of vulnerability is under-theorized in the bioethical literature. The aim of this article is to show why bioethics needs an adequately theorized and nuanced conception of vulnerability. We first review approaches to vulnerability in research ethics and public health ethics, and show that the bioethical literature associates vulnerability with risk of harm and exploitation, and limited capacity for autonomy. We identify some of the challenges (...)
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  • Ethical issues at the interface of clinical care and research practice in pediatric oncology: a narrative review of parents' and physicians' experiences.Martine C. de Vries, Mirjam Houtlosser, Jan M. Wit, Dirk P. Engberts, Dorine Bresters, Gertjan Jl Kaspers & Evert van Leeuwen - 2011 - BMC Medical Ethics 12 (1):1-11.
    Pediatric oncology has a strong research culture. Most pediatric oncologists are investigators, involved in clinical care as well as research. As a result, a remarkable proportion of children with cancer enrolls in a trial during treatment. This paper discusses the ethical consequences of the unprecedented integration of research and care in pediatric oncology from the perspective of parents and physicians. An empirical ethical approach, combining (1) a narrative review of (primarily) qualitative studies on parents' and physicians' experiences of the pediatric (...)
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  • Ethical challenges experienced by clinical research nurses:: A qualitative study.Mary E. Larkin, Brian Beardslee, Enrico Cagliero, Catherine A. Griffith, Kerry Milaszewski, Marielle T. Mugford, Joanna M. Myerson, Wen Ni, Donna J. Perry, Sabune Winkler & Elizabeth R. Witte - 2019 - Nursing Ethics 26 (1):172-184.
    Background: Clinical investigation is a growing field employing increasing numbers of nurses. This has created a new specialty practice defined by aspects unique to nursing in a clinical research context: the objectives (to implement research protocols and advance science), setting (research facilities), and nature of the nurse–participant relationship. The clinical research nurse role may give rise to feelings of ethical conflict between aspects of protocol implementation and the duty of patient advocacy, a primary nursing responsibility. Little is known about whether (...)
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  • Ethical issues at the interface of clinical care and research practice in pediatric oncology: a narrative review of parents' and physicians' experiences.C. de Vries Martine, Houtlosser Mirjam, M. Wit Jan, P. Engberts Dirk, Bresters Dorine, J. L. Kaspers Gertjan & van Leeuwen Evert - 2011 - BMC Medical Ethics 12 (1):18.
    Background Pediatric oncology has a strong research culture. Most pediatric oncologists are investigators, involved in clinical care as well as research. As a result, a remarkable proportion of children with cancer enrolls in a trial during treatment. This paper discusses the ethical consequences of the unprecedented integration of research and care in pediatric oncology from the perspective of parents and physicians. Methodology An empirical ethical approach, combining a narrative review of qualitative studies on parents' and physicians' experiences of the pediatric (...)
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  • Against the principle that the individual shall have priority over science.G. Helgesson & S. Eriksson - 2008 - Journal of Medical Ethics 34 (1):54-56.
    This paper highlights a feature common to many ethical guidelines—namely, the idea that the interests of the individual shall always prevail over the interests of science and society. The paper presents how some major ethical guidelines treat the balancing of research interests against those of research subjects and spells out the difficulties in interpreting the principle of the primacy of the individual in a way that can be action-guiding. It suggests various alternative interpretations of the primacy of the individual and (...)
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  • Clarifying Vulnerability: The Case of Children.Samia Hurst - 2015 - Asian Bioethics Review 7 (2):126-138.
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