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  1. Wrestling with Public Input on an Ethical Analysis of Scientific Research.Erik Parens, Michelle N. Meyer, Patrick Turley, Sandra Soo-Jin Lee, Nanibaa’ A. Garrison, Shawneequa L. Callier & Daphne Oluwaseun Martschenko - 2023 - Hastings Center Report 53 (2):S50-S65.
    Bioethicists frequently call for empirical researchers to engage participants and community members in their research, but don't themselves typically engage community members in their normative research. In this article, we describe an effort to include members of the public in normative discussions about the risks, potential benefits, and ethical responsibilities of social and behavioral genomics (SBG) research. We reflect on what might—and might not— be gained from engaging the public in normative scholarship and on lessons learned about public perspectives on (...)
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  • Ethical Responsibilities for Companies That Process Personal Data.Matthew S. McCoy, Anita L. Allen, Katharina Kopp, Michelle M. Mello, D. J. Patil, Pilar Ossorio, Steven Joffe & Ezekiel J. Emanuel - 2023 - American Journal of Bioethics 23 (11):11-23.
    It has become increasingly difficult for individuals to exercise meaningful control over the personal data they disclose to companies or to understand and track the ways in which that data is exchanged and used. These developments have led to an emerging consensus that existing privacy and data protection laws offer individuals insufficient protections against harms stemming from current data practices. However, an effective and ethically justified way forward remains elusive. To inform policy in this area, we propose the Ethical Data (...)
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  • The global landscape of AI ethics guidelines.A. Jobin, M. Ienca & E. Vayena - 2019 - Nature Machine Intelligence 1.
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