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  1. Unlocking data: Where is the key?María C. Sánchez & Antonio Sarría‐Santamera - 2019 - Bioethics 33 (3):367-376.
    Health‐related data uses and data sharing have been in the spotlight for a while. Since the beginning of the big data era, massive data mining and its inherent possibilities have only increased the debate about what the limits are. Data governance is a relevant aspect addressed in ethics guidelines. In this context, the European project BRIDGE Health (BRidging Information and Data Generation for Evidence‐based Health policy and research) strove to achieve a comprehensive, integrated and sustainable EU health‐information system. One of (...)
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  • Imagined Communities: Reflections on the Origin and Spread of Nationalism.Laurie J. Sears & Benedict Anderson - 1994 - Journal of the American Oriental Society 114 (1):129.
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  • When data is capital: Datafication, accumulation, and extraction.Jathan Sadowski - 2019 - Big Data and Society 6 (1).
    The collection and circulation of data is now a central element of increasingly more sectors of contemporary capitalism. This article analyses data as a form of capital that is distinct from, but has its roots in, economic capital. Data collection is driven by the perpetual cycle of capital accumulation, which in turn drives capital to construct and rely upon a universe in which everything is made of data. The imperative to capture all data, from all sources, by any means possible (...)
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  • Ethics Policies and Ethics Work in Cross-national Genetic Research and Data Sharing: Flows, Nonflows, and Overflows.Malene Bøgehus Rasmussen, Aaro Tupasela & Klaus Hoeyer - 2017 - Science, Technology, and Human Values 42 (3):381-404.
    In recent years, cross-national collaboration in medical research has gained increased policy attention. Policies are developed to enhance data sharing, ensure open-access, and harmonize international standards and ethics rules in order to promote access to existing resources and increase scientific output. In tandem with this promotion of data sharing, numerous ethics policies are developed to control data flows and protect privacy and confidentiality. Both sets of policy making, however, pay limited attention to the moral decisions and social ties enacted in (...)
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  • Introduction to the Special Theme: The expansion of the health data ecosystem – Rethinking data ethics and governance.Federica Lucivero & Tamar Sharon - 2019 - Big Data and Society 6 (2).
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  • Re-thinking organisms: The impact of databases on model organism biology.Sabina Leonelli & Rachel A. Ankeny - 2012 - Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 43 (1):29-36.
    Community databases have become crucial to the collection, ordering and retrieval of data gathered on model organisms, as well as to the ways in which these data are interpreted and used across a range of research contexts. This paper analyses the impact of community databases on research practices in model organism biology by focusing on the history and current use of four community databases: FlyBase, Mouse Genome Informatics, WormBase and The Arabidopsis Information Resource. We discuss the standards used by the (...)
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  • Being Alongside: Rethinking Relations amongst Different Kinds.Joanna Latimer - 2013 - Theory, Culture and Society 30 (7-8):77-104.
    This paper broadens out existing challenges to the divisions between the human and the animal that keep humans distinct, and apart, from other animals. Much attention to date has focused on how the Euro-American individuation of the human subject intensifies the asymmetries inculcated by these divisions. This paper rehearses some of this literature but goes on to attend to how these divisions undercut understandings of sociality and limit social organization to interaction between persons. Drawing together debates around the human/animal relation, (...)
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  • The total archive: Data, subjectivity, universality.Boris Jardine & Matthew Drage - 2018 - History of the Human Sciences 31 (5):3-22.
    The complete system of knowledge is a standard trope of science fiction, a techno-utopian dream and an aesthetic ideal. It is Solomon’s House, the Encyclopaedia and the Museum. It is also an ideology – of Enlightenment, High Modernism and absolute governance. Far from ending the dream of a total archive, 20th-century positivist rationality brought it ever closer. From Paul Otlet’s ‘Mundaneum’ to Mass-Observation, from the Unity of Science movement to Wikipedia, the dream of universal knowledge dies hard. As a political (...)
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  • Data-Centric Biology: A Philosophical Study.Sabina Leonelli - 2016 - London: University of Chicago Press.
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  • Data Journeys in the Sciences.Sabina Leonelli & Niccolò Tempini (eds.) - 2020 - Springer.
    This groundbreaking, open access volume analyses and compares data practices across several fields through the analysis of specific cases of data journeys. It brings together leading scholars in the philosophy, history and social studies of science to achieve two goals: tracking the travel of data across different spaces, times and domains of research practice; and documenting how such journeys affect the use of data as evidence and the knowledge being produced. The volume captures the opportunities, challenges and concerns involved in (...)
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  • Tissue Economies: Blood, Organs, and Cell Lines in Late Capitalism.Catherine Waldby & Robert Mitchell - 2007 - Science and Society 71 (4):504-506.
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