- Methodological challenges in deliberative empirical ethics.Stacy M. Carter - 2020 - Journal of Medical Ethics 46 (6):382-383.details
|
|
Should free-text data in electronic medical records be shared for research? A citizens’ jury study in the UK.Elizabeth Ford, Malcolm Oswald, Lamiece Hassan, Kyle Bozentko, Goran Nenadic & Jackie Cassell - 2020 - Journal of Medical Ethics 46 (6):367-377.details
|
|
Partnering With Patients to Bridge Gaps in Consent for Acute Care Research.Neal W. Dickert, Amanda Michelle Bernard, JoAnne M. Brabson, Rodney J. Hunter, Regina McLemore, Andrea R. Mitchell, Stephen Palmer, Barbara Reed, Michele Riedford, Raymond T. Simpson, Candace D. Speight, Tracie Steadman & Rebecca D. Pentz - 2020 - American Journal of Bioethics 20 (5):7-17.details
|
|
The ethics of big data: current and foreseeable issues in biomedical contexts.Brent Daniel Mittelstadt & Luciano Floridi - 2016 - Science and Engineering Ethics 22 (2):303–341.details
|
|
A look into the future impact of ICT on our lives.Luciano Floridi - 2007 - The Information Society 23 (1):59-64.details
|
|
Recall of participation in research projects in cancer genetics: some implications for research ethics.Sarah Cooke, Gillian Crawford, Michael Parker, Anneke Lucassen & Nina Hallowell - 2008 - Clinical Ethics 3 (4):180-184.details
|
|
A systematic review of patient access to medical records in the acute setting: practicalities, perspectives and ethical consequences.Zoë Fritz, Isla L. Kuhn & Stephanie N. D’Costa - 2020 - BMC Medical Ethics 21 (1):1-19.details
|
|
Dynamic Consent: a potential solution to some of the challenges of modern biomedical research.Isabelle Budin-Ljøsne, Harriet J. A. Teare, Jane Kaye, Stephan Beck, Heidi Beate Bentzen, Luciana Caenazzo, Clive Collett, Flavio D’Abramo, Heike Felzmann, Teresa Finlay, Muhammad Kassim Javaid, Erica Jones, Višnja Katić, Amy Simpson & Deborah Mascalzoni - 2017 - BMC Medical Ethics 18 (1):4.details
|
|
Genomic Inheritances: Disclosing Individual Research Results From Whole-Exome Sequencing to Deceased Participants' Relatives.Ben Chan, Flavia M. Facio, Haley Eidem, Sara Chandros Hull, Leslie G. Biesecker & Benjamin E. Berkman - 2012 - American Journal of Bioethics 12 (10):1-8.details
|
|
Understanding the care.data conundrum: New information flows for economic growth.Stephen Timmons & Paraskevas Vezyridis - 2017 - Big Data and Society 4 (1).details
|
|
Trust, trustworthiness and sharing patient data for research.Mark Sheehan, Phoebe Friesen, Adrian Balmer, Corina Cheeks, Sara Davidson, James Devereux, Douglas Findlay, Katharine Keats-Rohan, Rob Lawrence & Kamran Shafiq - 2021 - Journal of Medical Ethics 47 (12):e26-e26.details
|
|
Broad consent under the GDPR: an optimistic perspective on a bright future.Dara Hallinan - 2020 - Life Sciences, Society and Policy 16 (1):1-18.details
|
|
“That is why I have trust”: unpacking what ‘trust’ means to participants in international genetic research in Pakistan and Denmark.Zainab Sheikh & Klaus Hoeyer - 2018 - Medicine, Health Care and Philosophy 21 (2):169-179.details
|
|
Towards an empirical ethics in care: relations with technologies in health care.Jeannette Pols - 2015 - Medicine, Health Care and Philosophy 18 (1):81-90.details
|
|
‘Is this knowledge mine and nobody else's? I don't feel that.’ Patient views about consent, confidentiality and information-sharing in genetic medicine: Table 1.Sandi Dheensa, Angela Fenwick & Anneke Lucassen - 2016 - Journal of Medical Ethics 42 (3):174-179.details
|
|
Challenges of genetic testing in adolescents with cardiac arrhythmia syndromes.Lilian Liou Cohen, Marina Stolerman, Christine Walsh, David Wasserman & Siobhan M. Dolan - 2012 - Journal of Medical Ethics 38 (3):163-167.details
|
|
Adjusting the focus: A public health ethics approach to data research.Angela Ballantyne - 2019 - Bioethics 33 (3):357-366.details
|
|
Building on relationships of trust in biobank research.M. G. Hansson - 2005 - Journal of Medical Ethics 31 (7):415-418.details
|
|
Click here to consent forever: Expiry dates for informed consent.Bart Custers - 2016 - Big Data and Society 3 (1).details
|
|
Ethical concerns on sharing genomic data including patients’ family members.Kyoko Takashima, Yuichi Maru, Seiichi Mori, Hiroyuki Mano, Tetsuo Noda & Kaori Muto - 2018 - BMC Medical Ethics 19 (1):61.details
|
|
Preferences Regarding Return of Genomic Results to Relatives of Research Participants, Including after Participant Death: Empirical Results from a Cancer Biobank.Carmen Radecki Breitkopf, Gloria M. Petersen, Susan M. Wolf, Kari G. Chaffee, Marguerite E. Robinson, Deborah R. Gordon, Noralane M. Lindor & Barbara A. Koenig - 2015 - Journal of Law, Medicine and Ethics 43 (3):464-475.details
|
|
Can Broad Consent be Informed Consent?M. Sheehan - 2011 - Public Health Ethics 4 (3):226-235.details
|
|
Public attitudes towards the use of primary care patient record data in medical research without consent: a qualitative study.M. R. Robling - 2004 - Journal of Medical Ethics 30 (1):104-109.details
|
|
Broadening consent--and diluting ethics?B. Hofmann - 2009 - Journal of Medical Ethics 35 (2):125-129.details
|
|