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  1. Remote Monitoring of Medication Adherence and Patient and Industry Responsibilities in a Learning Health System.Junhewk Kim, Austin Connor Kassels, Nathaniel Isaac Costin & Harald Schmidt - 2020 - Journal of Medical Ethics 46 (6):386-391.
    A learning health system seeks to establish a closer connection between clinical care and research and establishes new responsibilities for healthcare providers as well as patients. A new set of technological approaches in medication adherence monitoring can potentially yield valuable data within an LHS, and raises the question of the scope and limitations of patients’ responsibilities to use them. We argue here that, in principle, it is plausible to suggest that patients have a prima facie obligation to use novel adherence (...)
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  • Meeting the Needs of Underserved Populations: Setting the Agenda for More Inclusive Citizen Science of Medicine.Amelia Fiske, Barbara Prainsack & Alena Buyx - 2019 - Journal of Medical Ethics 45 (9):617-622.
    In its expansion to genomic, epidemiological and biomedical research, citizen science has been promoted as contributing to the democratisation of medical research and healthcare. At the same time, it has been criticised for reinforcing patterns of exclusion in health and biomedicine, and sometimes even creating new ones. Although citizen science has the potential to make biomedical research more inclusive, the benefits of current citizen science initiatives are not equally accessible for all people—in particular those who are resource-poor, located outside of (...)
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  • Taxonomy of Justifications for Consent Waivers: When and Why Are Public Views Relevant?Angela Ballantyne & G. Owen Schaefer - 2019 - Journal of Medical Ethics 45 (5):353-354.
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  • Donor-Funded Research: Permissible, Not Perfect.Mike King & Angela Ballantyne - 2019 - Journal of Medical Ethics 45 (1):36-40.
    Donor-funded research is research funded by private donors in exchange for research-related benefits, such as trial participation or access to the trial intervention. This has been pejoratively referred to as ‘pay to play’ research, and criticised as unethical. We outline three models of donor-funded research, and argue for their permissibility on the grounds of personal liberty, their capacity to facilitate otherwise unfunded health research and their consistency with current ethical standards for research. We defend this argument against objections that donor-funded (...)
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  • In Response to Ballantyne and Schaefer’s ‘Consent and the Ethical Duty to Participate in Health Data Research’.Nilay Hepgul, Katherine E. Sleeman, Alice M. Firth, Anna Johnston, James T. H. Teo, William Bernal, Richard J. B. Dobson & Irene J. Higginson - 2019 - Journal of Medical Ethics 45 (5):351-352.
    We welcome Ballantyne & Schaefer’s discussion of the issues concerning consent and use of health data for research. In response to their acknowledgement of the need for public debate and discussion, we provide evidence from our own public consultation on this topic.
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