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Principles of biomedical ethics

New York: Oxford University Press. Edited by James F. Childress (1979)

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  1. Attitudes of physicians and patients towards disclosure of genetic information to spouse and first-degree relatives: a case study from Turkey.Aslihan Akpinar & Nermin Ersoy - 2014 - BMC Medical Ethics 15 (1):39.
    When considering the principle of medical confidentiality, disclosure of genetic information constitutes a special case because of the impact that this information can have on the health and the lives of relatives. The aim of this study is to explore the attitudes of Turkish physicians and patients about sharing information obtained from genetic tests.
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  • Refusal to Autopsy: A Societal Practice in Pakistan Context.Laila Akber - 2014 - Journal of Clinical Research and Bioethics 5 (5).
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  • Family consent, communication, and advance directives for cancer disclosure: a Japanese case and discussion.A. Akabayashi, M. D. Fetters & T. S. Elwyn - 1999 - Journal of Medical Ethics 25 (4):296-301.
    The dilemma of whether and how to disclose a diagnosis of cancer or of any other terminal illness continues to be a subject of worldwide interest. We present the case of a 62-year-old Japanese woman afflicted with advanced gall bladder cancer who had previously expressed a preference not to be told a diagnosis of cancer. The treating physician revealed the diagnosis to the family first, and then told the patient: "You don't have any cancer yet, but if we don't treat (...)
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  • Ethical and Methodological Challenges Involved in Research on Sexual Violence in Nigeria.Ademola J. Ajuwon & Olufunmilola Adegbite - 2008 - Research Ethics 4 (1):3-9.
    Research on sexual violence is fraught with ethical and methodological challenges due to its sensitive nature. This paper describes the ethical and methodological challenges encountered in planning and conducting two exploratory studies on sexual violence that included in-depth interviews of eight female adolescent rape survivors in Ibadan and four married women in Lagos Nigeria who were raped, forced to perform sexual acts and sexually deprived. The first challenge encountered was an Institutional Review Board requirement to obtain parental permission from adolescents, (...)
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  • Ethical issues in hymenoplasty: views from Tehran's physicians.Azal Ahmadi - 2014 - Journal of Medical Ethics 40 (6):429-430.
    Hymenoplasty, practiced in societies wherein a woman's virginity signifies honour, is a controversial surgery raising a multitude of ethical issues. There is a dearth of research uncovering the views of physicians who perform hymenoplasty, especially in sexually conservative cultures, such as Iran. Interviews were conducted with five Iranian physicians who perform hymenoplasty to determine their ethical views on the surgery. The interview findings suggest that Iranian physicians risk punitive consequences if they are discovered to be offering hymenoplasty. However, some continue (...)
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  • What Justifies Judgments of Inauthenticity?Jesper Ahlin - 2018 - HEC Forum 30 (4):361-377.
    The notion of authenticity, i.e., being “genuine,” “real,” or “true to oneself,” is sometimes held as critical to a person’s autonomy, so that inauthenticity prevents the person from making autonomous decisions or leading an autonomous life. It has been pointed out that authenticity is difficult to observe in others. Therefore, judgments of inauthenticity have been found inadequate to underpin paternalistic interventions, among other things. This article delineates what justifies judgments of inauthenticity. It is argued that for persons who wish to (...)
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  • Genetic Counseling and Genetic Tests Ethical Challenges.Bereshneh Ah & Nejad As - 2015 - Journal of Clinical Research and Bioethics 6 (5).
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  • Conflict between Paternalism and Autonomy.Sayani Ah - 2015 - Journal of Clinical Research and Bioethics 6 (6).
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  • Who calls the shots? The ethics of adolescentself-consent for HPV vaccination.Suchi Agrawal & Stephanie R. Morain - 2018 - Journal of Medical Ethics 44 (8):531-535.
    While the human papillomavirus vaccine is medically indicated to reduce the risk of genital warts and certain types of cancer, rates of HPV vaccination repeatedly fall short of public health goals. Individual-level factors contributing to low vaccination rates are well documented. However, system-level barriers, particularly the need for parental consent, have been less explored. To date, there is no legal or ethical consensus in the USA regarding whether adolescents might permissibly self-consent to the HPV vaccine. Consequently, there is considerable variability (...)
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  • Does written informed consent adequately inform surgical patients? A cross sectional study.Erminia Agozzino, Sharon Borrelli, Mariagrazia Cancellieri, Fabiola Michela Carfora, Teresa Di Lorenzo & Francesco Attena - 2019 - BMC Medical Ethics 20 (1):1.
    Informed consent is an essential step in helping patients be aware of consequences of their treatment decisions. With surgery, it is vitally important for patients to understand the risks and benefits of the procedure and decide accordingly. We explored whether a written IC form was provided to patients; whether they read and signed it; whether they communicated orally with the physician; whether these communications influenced patient decisions. Adult postsurgical patients in nine general hospitals of Italy’s Campania Region were interviewed via (...)
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  • Clinical essentialising: a qualitative study of doctors' medical and moral practice. [REVIEW]Kari Milch Agledahl, Reidun Førde & Åge Wifstad - 2010 - Medicine, Health Care and Philosophy 13 (2):107-113.
    While certain substantial moral dilemmas in health care have been given much attention, like abortion, euthanasia or gene testing, doctors rarely reflect on the moral implications of their daily clinical work. Yet, with its aim to help patients and relieve suffering, medicine is replete with moral decisions. In this qualitative study we analyse how doctors handle the moral aspects of everyday clinical practice. About one hundred consultations were observed, and interviews conducted with fifteen clinical doctors from different practices. It turned (...)
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  • Information disclosure and decision-making: the Middle East versus the Far East and the West.A. F. Mobeireek, F. Al-Kassimi, K. Al-Zahrani, A. Al-Shimemeri, S. al-Damegh, O. Al-Amoudi, S. Al-Eithan, B. Al-Ghamdi & M. Gamal-Eldin - 2008 - Journal of Medical Ethics 34 (4):225-229.
    Objectives: to assess physicians’ and patients’ views in Saudi Arabia towards involving the patient versus the family in the process of diagnosis disclosure and decision-making, and to compare them with views from the USA and Japan.Design: A self-completion questionnaire was translated to Arabic and validated.Participants: Physicians from different specialties and ranks and patients in a hospital or attending outpatient clinics from 6 different regions in KSA.Results: In the case of a patient with incurable cancer, 67% of doctors and 51% of (...)
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  • Is it ethical to deny genetic research participants individualised results?P. Affleck - 2009 - Journal of Medical Ethics 35 (4):209-213.
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  • Impact of legislation and public funding on oncofertility: a survey of Canadian, French and Moroccan pediatric hematologists/oncologists.Aliya Oulaya Affdal, Michael Grynberg, Laila Hessissen & Vardit Ravitsky - 2020 - BMC Medical Ethics 21 (1):1-11.
    Background Chemotherapy and/or radiotherapy treatments may cause premature ovarian failure and irreversible loss of fertility. In the context of childhood cancers, it is now acknowledged that possible negative effects of therapies on future reproductive autonomy are a major concern. While a few options are open to post-pubertal patients, the only immediate option currently open to pre-pubertal girls is cryopreservation of ovarian tissue and subsequent transplantation. The aim of the study was to address a current gap in knowledge regarding the offer (...)
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  • Ethical issues evolving from patients' perspectives on compulsory screening for syphilis and voluntary screening for cervical cancer in Kenya.Dickens S. Omondi Aduda & Nhlanhla Mkhize - 2014 - BMC Medical Ethics 15 (1):27.
    Public health aims to provide universal safety and progressive opportunities to populations to realise their highest level of health through prevention of disease, its progression or transmission. Screening asymptomatic individuals to detect early unapparent conditions is an important public health intervention strategy. It may be designed to be compulsory or voluntary depending on the epidemiological characteristics of the disease. Integrated screening, including for both syphilis and cancer of the cervix, is a core component of the national reproductive health program in (...)
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  • Knowledge, attitude and practice of healthcare ethics among resident doctors and ward nurses from a resource poor setting, Nepal.Samaj Adhikari, Kumar Paudel, Arja R. Aro, Tara Ballav Adhikari, Bipin Adhikari & Shiva Raj Mishra - 2016 - BMC Medical Ethics 17 (1):68.
    BackgroundHealthcare ethics is neglected in clinical practice in LMICs such as Nepal. The main objective of this study was to assess the current status of knowledge, attitude and practice of healthcare ethics among resident doctors and ward nurses in a tertiary teaching hospital in Nepal.MethodsThis was a cross sectional study conducted among resident doctors and ward nurses in the largest tertiary care teaching hospital of Nepal during January- February 2016 with a self-administered questionnaire. A Cramer’s V value was assessed to (...)
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  • Transcending gender and sex: ethical implications for identities, ambiguities and interrelations.Oluwaseun Adeola Adenugba - 2012 - Bangladesh Journal of Bioethics 3 (1):4-12.
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  • Developing an informational tool for ethical engagement in medical tourism.Krystyna Adams, Jeremy Snyder, Valorie A. Crooks & Rory Johnston - 2017 - Philosophy, Ethics, and Humanities in Medicine 2017 12:1 12 (1):4.
    Medical tourism, the practice of persons intentionally travelling across international boundaries to access medical care, has drawn increasing attention from researchers, particularly in relation to potential ethical concerns of this practice. Researchers have expressed concern for potential negative impacts to individual safety, public health within both countries of origin for medical tourists and destination countries, and global health equity. However, these ethical concerns are not discussed within the sources of information commonly provided to medical tourists, and as such, medical tourists (...)
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  • W. D. Ross’s moral philosophy.Benedicto Acosta - 2020 - Humanities Journal of Valparaiso 15:41-64.
    The present work tries to analyze the moral philosophy of William David Ross. First, Ross's ethics precedents are exposed, focusing on three authors against whom he acknowledges entering into discussion: Kant, the utilitarians and Moore. This is the aim of the second chapter. Next, Ross's proposal is explained through three axes: 1) the theory of moral knowledge, where his well-known intuitionist theory will appear; 2) the doctrine of correction, composed of deontological pluralism; 3) and the doctrine of good, in which (...)
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  • Ethics framework for citizen science and public and patient participation in research.Barbara Groot & Tineke Abma - 2022 - BMC Medical Ethics 23 (1):1-9.
    Background Citizen science and models for public participation in health research share normative ideals of participation, inclusion, and public and patient engagement. Academic researchers collaborate in research with members of the public involved in an issue, maximizing all involved assets, competencies, and knowledge. In citizen science new ethical issues arise, such as who decides, who participates, who is excluded, what it means to share power equally, or whose knowledge counts. This article aims to present an ethics framework that offers a (...)
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  • Good Care in Ongoing Dialogue. Improving the Quality of Care Through Moral Deliberation and Responsive Evaluation.Tineke A. Abma, Bert Molewijk & Guy A. M. Widdershoven - 2009 - Health Care Analysis 17 (3):217-235.
    Recently, moral deliberation within care institutions is gaining more attention in medical ethics. Ongoing dialogues about ethical issues are considered as a vehicle for quality improvement of health care practices. The rise of ethical conversation methods can be understood against the broader development within medical ethics in which interaction and dialogue are seen as alternatives for both theoretical or individual reflection on ethical questions. In other disciplines, intersubjectivity is also seen as a way to handle practical problems, and methodologies have (...)
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  • Lifting the veil: a typological survey of the methodological features of Islamic ethical reasoning on biomedical issues.Khalil Abdur-Rashid, Steven Woodward Furber & Taha Abdul-Basser - 2013 - Theoretical Medicine and Bioethics 34 (2):81-93.
    We survey the meta-ethical tools and institutional processes that traditional Islamic ethicists apply when deliberating on bioethical issues. We present a typology of these methodological elements, giving particular attention to the meta-ethical techniques and devices that traditional Islamic ethicists employ in the absence of decisive or univocal authoritative texts or in the absence of established transmitted cases. In describing how traditional Islamic ethicists work, we demonstrate that these experts possess a variety of discursive tools. We find that the ethical responsa—i.e., (...)
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  • Can dynamic consent facilitate the protection of biomedical big data in biobanking in Malaysia?Mohammad Firdaus Abdul Aziz & Aimi Nadia Mohd Yusof - 2019 - Asian Bioethics Review 11 (2):209-222.
    As with many other countries, Malaysia is also developing and promoting biomedical research to increase the understanding of human diseases and possible interventions. To facilitate this development, there is a significant growth of biobanks in the country to ensure continuous collection of biological samples for future research, which contain extremely important personal information and health data of the participants involved. Given the vast amount of samples and data accumulated by biobanks, they can be considered as reservoirs of precious biomedical big (...)
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  • Withdrawing and Withholding in the Clinical Arena.Jean Abbott & Kristin Furfari - 2019 - American Journal of Bioethics 19 (3):45-47.
    The debate between Ursin (2019) and Wilkinson and colleagues (2019) in this issue of The American Journal of Bioethics underscores the long-standing theoretical controversy about the equivalence of...
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  • Rare but routine: The physician's obligation to protect third parties.Elmer D. Abbo & Angelo E. Volandes - 2006 - American Journal of Bioethics 6 (2):34 – 36.
    Kenneth Kipnis (2006) presents a normative defense of strict confidentiality, but it follows from an empirical claim that allowing breach would result in all parties being worse off, including, par...
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  • Individual choice in the definition of death.A. Bagheri - 2007 - Journal of Medical Ethics 33 (3):146-149.
    While there are numerous doubts, controversies and lack of consensus on alternative definitions of human death, it is argued that it is more ethical to allow people to choose either cessation of cardio-respiratory function or loss of entire brain function as the definition of death based on their own views. This paper presents the law of organ transplantation in Japan, which allows people to decide whether brain death can be used to determine their death in agreement with their family. Arguably, (...)
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  • Empowerment or Engagement? Digital Health Technologies for Mental Healthcare.Christopher Burr & Jessica Morley - 2020 - In Christopher Burr & Silvia Milano (eds.), The 2019 Yearbook of the Digital Ethics Lab. Springer Nature. pp. 67-88.
    We argue that while digital health technologies (e.g. artificial intelligence, smartphones, and virtual reality) present significant opportunities for improving the delivery of healthcare, key concepts that are used to evaluate and understand their impact can obscure significant ethical issues related to patient engagement and experience. Specifically, we focus on the concept of empowerment and ask whether it is adequate for addressing some significant ethical concerns that relate to digital health technologies for mental healthcare. We frame these concerns using five key (...)
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  • Autonomy and Depression.Lubomira Radoilska - 2012 - In K. W. M. Fulford (ed.), Oxford Handbook of Philosophy and Psychiatry. Oxford University Press. pp. 1155-1170.
    In this paper, I address two related challenges the phenomenon of depression raises for conceptions according to which autonomy is an agency concept and an independent source of justification. The first challenge is directed at the claim that autonomous agency involves intending under the guise of the good: the robust though not always direct link between evaluation and motivation implied here seems to be severed in some instances of depression; yet, this does not seem to affect the possibility of autonomous (...)
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  • Filosofie van het luisteren: partituren van het Zijn.Hub Zwart - 2012 - Nijmegen, Nederland: Vantilt.
    De moderne filosofie lijdt aan muziekvergetelheid. Opvallend is echter dat filosofen, wanneer ze toch aandacht schenken aan muziek, hun aandacht bij voorkeur op één bepaald genre richten, namelijk de opera. Filosofen zoals Søren Kierkegaard en Friedrich Nietzsche lieten hun gedachten over Don Giovanni, Parsifal en Carmen gaan, terwijl omgekeerd de filosofie van Arthur Schopenhauer de opera heeft beïnvloed via Wagner. Diens werk lijkt zich op het snijpunt van het grensverkeer tussen moderne filosofie en moderne muziek te bevinden. Het was zijn (...)
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  • What should be taught in courses on social ethics?Alan Tapper - 2021 - Research in Ethical Issues in Organisations 24:77-97.
    The purpose of this article is to discuss the concept and the content of courses on “social ethics”. I will present a dilemma that arises in the design of such courses. On the one hand, they may present versions of “applied ethics”; that is, courses in which moral theories are applied to moral and social problems. On the other hand, they may present generalised forms of “occupational ethics”, usually professional ethics, with some business ethics added to expand the range of (...)
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  • Love by (Someone Else’s) Choice.Pilar Lopez-Cantero - 2020 - Philosophy and Public Issues - Filosofia E Questioni Pubbliche 10 (3):155-189.
    Love enhancement can give us as a say on whom we love and thus ‘free’ us from our brain chemistry, which is mostly out of our control. In that way, we become more autonomous in love and in our life in general, as long as love enhancement is a free, voluntary choice. So goes the argument in favour of this addition to medical interventions of relationships. In this paper, I show that proponents of love enhancement have overlooked, or at least (...)
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  • Die Pflicht, dem Menschen seine Würde zu erhalten.Ralf Stoecker - 2010 - Zeitschrift Für Menschenrechte 2010 (1):98-116.
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  • Ethik und Moral im Wiener Kreis. Zur Geschichte eines engagierten Humanismus.Anne Siegetsleitner - 2014 - Wien: Böhlau.
    Die vorliegende Schrift unternimmt eine Revision des vorherrschenden Bildes der Rolle und der Konzeptionen von Moral und Ethik im Wiener Kreis. Dieses Bild wird als zu einseitig und undifferenziert zurückgewiesen. Die Ansicht, die Mitglieder des Wiener Kreises hätten kein Interesse an Moral und Ethik gezeigt, wird widerlegt. Viele Mitglieder waren nicht nur moralisch und politisch interessiert, sondern auch engagiert. Des Weiteren vertraten nicht alle die Standardauffassung logisch-empiristischer Ethik, die neben der Anerkennung deskriptiv-empirischer Untersuchungen durch die Ablehnung jeglicher normativer und inhaltlicher (...)
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  • Language and Reality.Menno Lievers - 2021 - In Second Thoughts. Tilburg, Netherlands: pp. 261-277.
    An introduction to philosophy of language since Frege, focusing on the 20th century.
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  • La strana idea di applicare la teoria etica.Sergio Volodia Marcello Cremaschi - 2008 - In Christoph Lumer (ed.), Etica normativa: principi dell'agire morale. Roma: Carocci. pp. 167-188.
    In this paper I argue that applied ethics is a phenomenon spontaneously emerged between the Sixties and the Seventies and resulting from interbreeding of theoretical discussion in ethics and public discourse of liberal-democratic societies. I contend that the phenomenon’s novelty is in a peculiar relationship it has helped in establishing between ethical theories and real-world issues, and besides that the true nature of applied ethics is that of deliberation, whose tool is the faculty of judgment, or casuistry, understood the Kantian (...)
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  • Klinische Ethik und Ethikberatung.Andreas Frewer - 2012 - In Andreas Frewer, Florian Bruns & Arnd T. May (eds.), Ethikberatung in der Medizin. Berlin: Springer. pp. 7--18.
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  • Ethical Explorations: Moral Dilemmas in a Universe of Possibilities.Brendan Shea - 2023 - Rochester, MN: Thoughtful Noodle Books.
    "Ethical Explorations: Moral Dilemmas in a Universe of Possibilities" by Brendan Shea is an open access textbook that provides a comprehensive study of ethical philosophy. Shea makes it his task to chart the sprawling landscape of moral thought from ancient times to the present, employing a straightforward, easily accessible style. -/- In the book, each chapter addresses a distinct ethical theory. Shea discusses everything from Plato's allegorical Cave to contemporary issues in bioethics. The text features relatable narratives, clear explanations of (...)
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  • Risk and Responsibility in Context.Adriana Placani & Stearns Broadhead (eds.) - 2023 - New York: Routledge.
    This volume bridges contemporary philosophical conceptions of risk and responsibility and offers an extensive examination of the topic. It shows that risk and responsibility combine in ways that give rise to new philosophical questions and problems. Philosophical interest in the relationship between risk and responsibility continues to rise, due in no small part due to environmental crises, emerging technologies, legal developments, and new medical advances. Despite such interest, scholars are just now working out how to conceive of the links between (...)
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  • Human Rights and Global Mental Health: Reducing the Use of Coercive Measures.Kelso Cratsley, Marisha Wickremsinhe & Timothy K. Mackey - 2021 - In A. Dyer, B. Kohrt & P. J. Candilis (eds.), Global Mental Health: Ethical Principles and Best Practices. pp. 247-268.
    The application of human right frameworks is an increasingly important part of efforts to accelerate progress in global mental health. Much of this has been driven by several influential legal and policy instruments, most notably the United Nations’ Convention on the Rights of Persons with Disabilities, as well as the World Health Organization’s QualityRights Tool Kit and Mental Health Action Plan. Despite these significant developments, however, much more needs to be done to prevent human rights violations. This chapter focuses on (...)
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  • The Morality of Artificial Friends in Ishiguro’s Klara and the Sun.Jakob Stenseke - 2022 - Journal of Science Fiction and Philosophy 5.
    Can artificial entities be worthy of moral considerations? Can they be artificial moral agents (AMAs), capable of telling the difference between good and evil? In this essay, I explore both questions—i.e., whether and to what extent artificial entities can have a moral status (“the machine question”) and moral agency (“the AMA question”)—in light of Kazuo Ishiguro’s 2021 novel Klara and the Sun. I do so by juxtaposing two prominent approaches to machine morality that are central to the novel: the (1) (...)
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  • Doctrine of double effect.Alison McIntyre - 2008 - Stanford Encyclopedia of Philosophy.
    The doctrine (or principle) of double effect is often invoked to explain the permissibility of an action that causes a serious harm, such as the death of a human being, as a side effect of promoting some good end. According to the principle of double effect, sometimes it is permissible to cause a harm as a side effect (or “double effect”) of bringing about a good result even though it would not be permissible to cause such a harm as a (...)
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  • Sex Robots and Views from Nowhere: A Commentary on Jecker, Howard and Sparrow, and Wang.Kelly Kate Evans - 2021 - In Ruiping Fan & Mark J. Cherry (eds.), Sex Robots: Social Impact and the Future of Human Relations. Springer.
    This article explores the implications of what it means to moralize about future technological innovations. Specifically, I have been invited to comment on three papers that attempt to think about what seems to be an impending social reality: the availability of life-like sex robots. In response, I explore what it means to moralize about future technological innovations from a secular perspective, i.e., a perspective grounded in an immanent, socio-historically contingent view. I review the arguments of Nancy Jecker, Mark Howard and (...)
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  • New horizons on robotics: ethics challenges.António Moniz - 2019 - In Maria Céu do Patrão Neves (ed.), Ethics, Science and Society: Challenges for BioPolitics. pp. 57-67.
    In this chapter, the focus is on robotics development and its ethical implications, especially on some particular applications or interaction principles. In recent years, such developments have happened very quickly, based on the advances achieved in the last few decades in industrial robotics. The technological developments in manufacturing, with the implementation of Industry 4.0 strategies in most industrialized countries, and the dissemination of production strategies into services and health sectors, enabled robotics to develop in a variety of new directions. Policy (...)
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  • Etica aplicată şi de ce avem nevoie de ea.Daniela Cutas, Alexandru Volacu & Adrian Miroiu - 2021 - In Alexandru Volacu, Daniela Cutas & Adrian Miroiu (eds.), Alegeri morale. Teme actuale de etică aplicată. Polirom.
    În cele ce urmează vom prezenta pe scurt zona de cercetare a eticii aplicate și locul ei în cadrul disciplinei filosofiei. Vom discuta apoi despre ce fac filosofii când fac etică aplicată. Vom trece în revistă câteva concepte importante din etica aplicată, cum ar fi deontologie, virtute, grijă sau drepturi. Apoi vom încerca să oferim un răspuns la întrebarea din titlul introducerii: de ce avem nevoie de etica aplicată? Vom povesti pe scurt despre istoria eticii aplicate în România, iar la (...)
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  • The ethics of digital well-being: a multidisciplinary perspective.Christopher Burr & Luciano Floridi - 2020 - In Christopher Burr & Luciano Floridi (eds.), Ethics of digital well-being: a multidisciplinary approach. Springer.
    This chapter serves as an introduction to the edited collection of the same name, which includes chapters that explore digital well-being from a range of disciplinary perspectives, including philosophy, psychology, economics, health care, and education. The purpose of this introductory chapter is to provide a short primer on the different disciplinary approaches to the study of well-being. To supplement this primer, we also invited key experts from several disciplines—philosophy, psychology, public policy, and health care—to share their thoughts on what they (...)
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  • Three Crucial Turns on the Road to an Adequate Understanding of Human Dignity.Ralf Stoecker - 2010 - In Paulus Kaufmann, Hannes Kuch, Christian Neuhaeuser & Elaine Webster (eds.), Humiliation, Degradation, Dehumanization. Human Dignity Violated. Springer Verlag. pp. 7-17.
    Human dignity is one of the key concepts of our ethical evaluations, in politics, in biomedicine, as well as in everyday life. In moral philosophy, however, human dignity is a source of intractable trouble. It has a number of characteristic features which apparently do not fit into one coherent ethical concept. Hence, philosophers tend to ignore or circumvent the concept. There is hope for a philosophically attractive conception of human dignity, however, given that one takes three crucial turns. The negative (...)
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  • The Bite of Rights in Paternalism.Norbert Paulo - 2015 - In Thomas Schramme (ed.), New Perspectives on Paternalism and Health Care. Cham: Springer Verlag.
    This paper scrutinizes the tension between individuals’ rights and paternalism. I will argue that no normative account that includes rights of individuals can justify hard paternalism since the infringement of a right can only be justified with the right or interest of another person, which is never the case in hard paternalism. Justifications of hard paternalistic actions generally include a deviation from the very idea of having rights. The paper first introduces Tom Beauchamp as the most famous contemporary hard paternalist (...)
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  • Psychopathy: Morally Incapacitated Persons.Heidi Maibom - 2017 - In Thomas Schramme & Steven Edwards (eds.), Handbook of the Philosophy of Medicine. Springer. pp. 1109-1129.
    After describing the disorder of psychopathy, I examine the theories and the evidence concerning the psychopaths’ deficient moral capacities. I first examine whether or not psychopaths can pass tests of moral knowledge. Most of the evidence suggests that they can. If there is a lack of moral understanding, then it has to be due to an incapacity that affects not their declarative knowledge of moral norms, but their deeper understanding of them. I then examine two suggestions: it is their deficient (...)
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  • A Critical Examination of Informed Consent Approaches in Pragmatic Cluster-Randomized Trials.Cory E. Goldstein - 2022 - Dissertation, University of Western Ontario
    This thesis addresses the tension in pragmatic cluster-randomized trials between their social value and the requirement to respect the autonomy of research participants. Pragmatic trials are designed to evaluate the effectiveness of treatments in real-world settings to inform clinical decision-making and promote cost-efficient care. These trials are often embedded into clinical settings and ideally include all patients who would receive the treatments under investigation as a part of routine care. Trialists increasingly adopt cluster-randomized designs—in which intact groups, such as hospitals (...)
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  • For the Common Good: Philosophical Foundations of Research Ethics.Alex John London - 2021 - New York, NY, USA: Oxford University Press.
    The foundations of research ethics are riven with fault lines emanating from a fear that if research is too closely connected to weighty social purposes an imperative to advance the common good through research will justify abrogating the rights and welfare of study participants. The result is an impoverished conception of the nature of research, an incomplete focus on actors who bear important moral responsibilities, and a system of ethics and oversight highly attuned to the dangers of research but largely (...)
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