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  1. Racial Equity, Diversity and Inclusion in Bioethics: Recommendations from the Association of Bioethics Program Directors Presidential Task Force.Sandra Soo-Jin Lee, Alexis Walker, Shawneequa L. Callier, Faith E. Fletcher, Charlene Galarneau, Nanibaa’ Garrison, Jennifer E. James, Renee McLeod-Sordjan, Ubaka Ogbogu, Nneka Sederstrom, Patrick T. Smith, Clarence H. Braddock & Christine Mitchell - 2024 - American Journal of Bioethics 24 (10):1-12.
    Recent calls to address racism in bioethics reflect a sense of urgency to mitigate the lethal effects of a lack of action. While the field was catalyzed largely in response to pivotal events deeply rooted in racism and other structures of oppression embedded in research and health care, it has failed to center racial justice in its scholarship, pedagogy, advocacy, and practice, and neglected to integrate anti-racism as a central consideration. Academic bioethics programs play a key role in determining the (...)
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  • Interrogating Sites of Knowledge Production: The Role of Journals, Institutions, and Professional Societies in Advancing Epistemic Justice in Bioethics.John Noel Montaño Viaña - 2024 - American Journal of Bioethics 24 (4):63-66.
    Jecker et al. (2024) propose seven ethical principles to guide international bioethics conferencing, applying them to the selection of Qatar as the location for the 2024 World Congress of Bioethics...
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  • Oppressive Medical Objects and Spaces: Response to Commentaries.Shen-yi Liao & Vanessa Carbonell - 2024 - American Journal of Bioethics 24 (4):W13-W18.
    In “Materialized Oppression in Medical Tools and Technologies”, we show how oppression can be inscribed in medical devices. We consider oximeters and spirometers, drawing heavily on the work of anthropologist Amy Moran-Thomas and historian Lundy Braun. Both devices encode racial biases: oximeters because they do not correct for race, and spirometers because they do. We zoom out from these particular devices to examine a wide range of tools and technologies, and we build a theoretical framework that covers not only race (...)
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  • Clinical ethics consultations: a scoping review of reported outcomes.Ann M. Heesters, Ruby R. Shanker, Kevin Rodrigues, Daniel Z. Buchman, Andria Bianchi, Claudia Barned, Erica Nekolaichuk, Eryn Tong, Marina Salis & Jennifer A. H. Bell - 2022 - BMC Medical Ethics 23 (1):1-65.
    BackgroundClinical ethics consultations can be complex interventions, involving multiple methods, stakeholders, and competing ethical values. Despite longstanding calls for rigorous evaluation in the field, progress has been limited. The Medical Research Council proposed guidelines for evaluating the effectiveness of complex interventions. The evaluation of CEC may benefit from application of the MRC framework to advance the transparency and methodological rigor of this field. A first step is to understand the outcomes measured in evaluations of CEC in healthcare settings. ObjectiveThe primary (...)
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  • Materialized Oppression in Medical Tools and Technologies.Shen-yi Liao & Vanessa Carbonell - 2023 - American Journal of Bioethics 23 (4):9-23.
    It is well-known that racism is encoded into the social practices and institutions of medicine. Less well-known is that racism is encoded into the material artifacts of medicine. We argue that many medical devices are not merely biased, but materialize oppression. An oppressive device exhibits a harmful bias that reflects and perpetuates unjust power relations. Using pulse oximeters and spirometers as case studies, we show how medical devices can materialize oppression along various axes of social difference, including race, gender, class, (...)
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  • Lead Essay—Institutional Racism, Whiteness, and the Role of Critical Bioethics.Christopher Mayes, Yin Paradies & Amanuel Elias - 2021 - Journal of Bioethical Inquiry 18 (1):9-12.
    This paper discusses the ethical implications of racism and some of the various costs associated with racism occurring at the institutional level. We argue that, in many ways, the laws, social structures, and institutions in Western society have operated to perpetuate the continuation of historical legacies of racial inequities with or without the intention of individuals and groups in society. By merely maintaining existing structures, laws, and social norms, society can impose social, economic, and health costs on racial minorities that (...)
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  • Racial Justice Requires Ending the War on Drugs.Brian D. Earp, Jonathan Lewis, Carl L. Hart & Walter Veit - 2021 - American Journal of Bioethics 21 (4):4-19.
    Historically, laws and policies to criminalize drug use or possession were rooted in explicit racism, and they continue to wreak havoc on certain racialized communities. We are a group of bioethicists, drug experts, legal scholars, criminal justice researchers, sociologists, psychologists, and other allied professionals who have come together in support of a policy proposal that is evidence-based and ethically recommended. We call for the immediate decriminalization of all so-called recreational drugs and, ultimately, for their timely and appropriate legal regulation. We (...)
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  • There's No Such Thing as Postracial Medicine.Yolonda Y. Wilson - 2017 - American Journal of Bioethics 17 (9):48-49.
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  • Racism and Bioethics: Experiences and Reflections.John R. Stone - 2016 - American Journal of Bioethics 16 (4):13-15.
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  • The concept of intersectionality in bioethics: a systematic review.Lisa Brünig, Hannes Kahrass & Sabine Salloch - 2024 - BMC Medical Ethics 25 (1):1-20.
    Background Intersectionality is a concept that originated in Black feminist movements in the US-American context of the 1970s and 1980s, particularly in the work of feminist scholar and lawyer Kimberlé W. Crenshaw. Intersectional approaches aim to highlight the interconnectedness of gender and sexuality with other social categories, such as race, class, age, and ability to look at how individuals are discriminated against and privileged in institutions and societal power structures. Intersectionality is a “traveling concept”, which also made its way into (...)
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  • Racism, Not Race: A Physician Perspective on Anti‐Black Racism in America.Elizabeth P. Clayborne - 2022 - Hastings Center Report 52 (S1):29-31.
    Hastings Center Report, Volume 52, Issue S1, Page S29-S31, March‐April 2022.
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  • Now You Are Part of the Solution: Bioethicists' Contribution in Addressing Racialized Health Inequity.Jelani Kerr - 2022 - Hastings Center Report 52 (S1):35-38.
    Hastings Center Report, Volume 52, Issue S1, Page S35-S38, March‐April 2022.
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  • Erasing Blackness From Bioethics.Robert Baker - 2022 - American Journal of Bioethics 22 (3):33-35.
    February is Black History Month and so healthcare practitioners will soon rummage history books for information about famous African Americans, like Onesimus, the African slave who...
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  • Integrating Equity Work throughout Bioethics.Eran Klein, Erika Versalovic, Andreas Schönau, Natalia Montes, Darcy McCusker, Timothy Emmanuel Brown & Sara Goering - 2022 - American Journal of Bioethics 22 (1):26-27.
    As members of a neuroethics research group funded by the NIH, we echo the call from Fabi and Goldberg for greater funding parity between the ethics of specialized medical technologies and br...
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  • Meeting the Moment: Bioethics in the Time of Black Lives Matter.Camisha Russell - 2021 - American Journal of Bioethics 22 (3):9-21.
    In this article, I begin by describing what I call this Black Lives Matter moment in the US. I then offer three reasons for considering racism as a bioethical issue, the least discussed of which is the way in which racism acts as a barrier to the creation of better healthcare systems. Next, I argue that the concept of race itself constitutes a bioethical issue in a way that is not fully reducible to racism. Finally, I discuss how we, both (...)
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  • Racial Injustice and Meaning Well: A Challenge for Bioethics.Yolonda Y. Wilson - 2021 - American Journal of Bioethics 21 (2):1-3.
    “Ignorance,” Jim Hudson, the art dealer, declares shortly before the climactic scene in the 2017 film, Get Out. “They mean well, but they have no idea what real people will go through”...
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  • Black bodies and Bioethics: Debunking Mythologies of Benevolence and Beneficence in Contemporary Indigenous Health Research in Colonial Australia.Chelsea J. Bond, David Singh & Sissy Tyson - 2021 - Journal of Bioethical Inquiry 18 (1):83-92.
    We seek to bring Black bodies and lives into full view within the enterprise of Indigenous health research to interrogate the unquestioned good that is taken to characterize contemporary Indigenous health research. We articulate a Black bioethics that is not premised upon a false logic of beneficence, rather we think through a Black bioethics premised upon an unconditional love for the Black body. We achieve this by examining the accounts of two Black mothers, fictional and factual rendering visible the racial (...)
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  • We’re in This Together: A Reflection on How Bioethics and Public Health Can Collectively Advance Scientific Efforts Towards Addressing Racism.Mandy Truong & Mienah Z. Sharif - 2021 - Journal of Bioethical Inquiry 18 (1):113-116.
    Racism is a key driver of the social, political, and economic injustices that cause and maintain health inequities. Over centuries and across continents, racism has become deeply ingrained within societies. Therefore, we believe that it is our professional and ethical obligation as scientists, and public health scholars specifically, to address racism head on in order to ameliorate racialized health disparities. We argue that greater focus is needed on addressing racism rather than race and how race is described or defined. We (...)
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  • Love, peace and hope-How are medical ethics practices impacted by terror attacks on the healthcare system in Turkey?Sukran Sevimli - 2019 - In Darry Macer (ed.), LEGACIES OF LOVE, PEACE AND HOPE: How Education can overcome Hatred & Divide. Eubios Ethics Instute. pp. 264-278.
    The objective of this article is to shed light on some challenging questions regarding public health and medical ethics that the Turkish healthcare system has recently been forced to confront. In recent years, terrorists in eastern Turkey have launched increasingly destructive attacks, including numerous attempts to undermine the social order by targeting not only government agencies but also the healthcare system. In this study, 54 terrorist incidents specifically targeting the Turkish healthcare system and healthcare professionals were analyzed and divided into (...)
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  • There’s No Harm in Talking: Re-Establishing the Relationship Between Theological and Secular Bioethics.Michael McCarthy, Mary Homan & Michael Rozier - 2020 - American Journal of Bioethics 20 (12):5-13.
    Theological and secular voices in bioethics have drifted into separate silos. Such a separation results in part from (1) theologians focusing less on conveying ideas in ways that contribute to a pluralistic and public bioethical discourse and (2) the dwindling receptivity of religious arguments within secular bioethics. This essay works against these drifts by putting forward an argument that does not bounce around a religious echo-chamber, but instead demonstrates how insights of Christian anthropology can be meaningfully responsive to secular bioethics’ (...)
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  • Meeting the needs of underserved populations: setting the agenda for more inclusive citizen science of medicine.Amelia Fiske, Barbara Prainsack & Alena Buyx - 2019 - Journal of Medical Ethics 45 (9):617-622.
    In its expansion to genomic, epidemiological and biomedical research, citizen science has been promoted as contributing to the democratisation of medical research and healthcare. At the same time, it has been criticised for reinforcing patterns of exclusion in health and biomedicine, and sometimes even creating new ones. Although citizen science has the potential to make biomedical research more inclusive, the benefits of current citizen science initiatives are not equally accessible for all people—in particular those who are resource-poor, located outside of (...)
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  • Intersectionality in Clinical Medicine: The Need for a Conceptual Framework.Yolonda Wilson, Amina White, Akilah Jefferson & Marion Danis - 2019 - American Journal of Bioethics 19 (2):8-19.
    Intersectionality has become a significant intellectual approach for those thinking about the ways that race, gender, and other social identities converge in order to create unique forms of oppression. Although the initial work on intersectionality addressed the unique position of black women relative to both black men and white women, the concept has since been expanded to address a range of social identities. Here we consider how to apply some of the theoretical tools provided by intersectionality to the clinical context. (...)
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  • Now is the Time for a Postracial Medicine: Biomedical Research, the National Institutes of Health, and the Perpetuation of Scientific Racism.Alejandro de la Fuente & Javier Perez-Rodriguez - 2017 - American Journal of Bioethics 17 (9):36-47.
    The consideration of racial differences in the biology of disease and treatment options is a hallmark of modern medicine. However, this time-honored medical tradition has no scientific basis, and the premise itself, that is, the existence of biological differences between the commonly known races, is false inasmuch as races are only sociocultural constructions. It is time to rid medical research of the highly damaging exercise of searching for supposed racial differences in the biological manifestations of disease. The practice not only (...)
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  • The Unbearable Whiteness of Bioethics: Exhorting Bioethicists to Address Racism.Kayhan Parsi - 2016 - American Journal of Bioethics 16 (4):1-2.
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  • Bioethics Skill Sets Can Work, But It Would Take Moral Courage to Apply Them and Get Desired Results.Stephen Sodeke - 2016 - American Journal of Bioethics 16 (4):19-21.
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  • Policy, Advocacy, and Activism: On Bioethicists' Role in Combating Racism.Lisa L. Fuller - 2016 - American Journal of Bioethics 16 (4):29-31.
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  • (1 other version)Intersectionality as a tool for clinical ethics consultation in mental healthcare.Mirjam Faissner, Lisa Brünig, Anne-Sophie Gaillard, Anna-Theresa Jieman, Jakov Gather & Christin Hempeler - 2024 - Philosophy, Ethics and Humanities in Medicine 19 (1):1-11.
    Bioethics increasingly recognizes the impact of discriminatory practices based on social categories such as race, gender, sexual orientation or ability on clinical practice. Accordingly, major bioethics associations have stressed that identifying and countering structural discrimination in clinical ethics consultations is a professional obligation of clinical ethics consultants. Yet, it is still unclear how clinical ethics consultants can fulfill this obligation. More specifically, clinical ethics needs both theoretical tools to analyze and practical strategies to address structural discrimination within clinical ethics consultations. (...)
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  • Proposed Principles for International Bioethics Conferencing: Anti-Discriminatory, Global, and Inclusive.Nancy S. Jecker, Vardit Ravitsky, Mohammad Ghaly, Jean-Christophe Bélisle-Pipon & Caesar Atuire - 2023 - American Journal of Bioethics 24 (4):13-28.
    This paper opens a critical conversation about the ethics of international bioethics conferencing and proposes principles that commit to being anti-discriminatory, global, and inclusive. We launch this conversation in the Section, Case Study, with a case example involving the International Association of Bioethics’ (IAB’s) selection of Qatar to host the 2024 World Congress of Bioethics. IAB’s choice of Qatar sparked controversy. We believe it also may reveal deeper issues of Islamophobia in bioethics. The Section, Principles for International Bioethics Conferencing, sets (...)
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  • Race and Bioethics: Bioethical Engagement With a Four-Letter Subject.Robert Baker - 2016 - American Journal of Bioethics 16 (4):16-18.
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  • Keeping an Eye on Power in Maintaining Racial Oppression and Race-Based Violence.Katrina Karkazis, Laura Mamo & Ugo Edu - 2016 - American Journal of Bioethics 16 (4):25-27.
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  • The Role of Historically Black Medical Schools in Expanding the Purview of Bioethics.Abbas Rattani - 2016 - American Journal of Bioethics 16 (4):33-35.
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  • The ethics of coercion in mental healthcare: the role of structural racism.Mirjam Faissner & Esther Braun - 2024 - Journal of Medical Ethics 50 (7):476-481.
    In mental health ethics, it is generally assumed that coercive measures are sometimes justified when persons with mental illness endanger themselves or others. Coercive measures are regarded as ethically justified only when certain criteria are fulfilled: for example, the intervention must be proportional in relation to the potential harm. In this paper, we demonstrate shortcomings of this established ethical framework in cases where people with mental illness experience structural racism. By drawing on a case example from mental healthcare, we first (...)
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  • Narrative Ethics and Intersectionality.Elizabeth Lanphier & Uchenna Anani - 2019 - American Journal of Bioethics 19 (2):29-31.
    This paper responds to a proposal for an intersectional approach to the clinical encounter between patient and medical provider. We agree that an intersectional framework offers new insights and information in the clinical encounter. Intersectionality involves awareness of the physician-patient dynamic, and understanding the various privileges and disadvantages of all parties involved, at a micro and macroscopic level. Yet, this analysis alone is insufficient to aid in the clinical encounter and risks harm. We worry about a clinician making assumptions about (...)
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  • The Costs of Institutional Racism and its Ethical Implications for Healthcare.Amanuel Elias & Yin Paradies - 2021 - Journal of Bioethical Inquiry 18 (1):45-58.
    This paper discusses the ethical implications of racism and some of the various costs associated with racism occurring at the institutional level. We argue that, in many ways, the laws, social structures, and institutions in Western society have operated to perpetuate the continuation of historical legacies of racial inequities with or without the intention of individuals and groups in society. By merely maintaining existing structures, laws, and social norms, society can impose social, economic, and health costs on racial minorities that (...)
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  • Clinical Encounters: The Social Justice Question in Intersectional Medicine.Patrick Ryan Grzanka & Jenny Dyck Brian - 2019 - American Journal of Bioethics 19 (2):22-24.
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  • (1 other version)Black Health: The Social, Political, and Cultural Determinants of Black People’s Health by Keisha Ray.Chioma Dibia - 2024 - International Journal of Feminist Approaches to Bioethics 17 (1):105-109.
    In lieu of an abstract, here is a brief excerpt of the content:Reviewed by:Black Health: The Social, Political, and Cultural Determinants of Black People's Health by Keisha RayChioma Dibia (bio)Black Health: The Social, Political, and Cultural Determinants of Black People's Health by Keisha Ray New York: Oxford University Press, 2023Prior to the COVID-19 pandemic, bioethics had engaged only sparingly with the concept of racism. In 2016, Danis and colleagues published an article exhorting bioethicists to engage more meaningfully with the concept (...)
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  • The Diversity Compass: a clinical ethics support instrument for dialogues on diversity in healthcare organizations.Charlotte Kröger, Bert Molewijk, Maaike Muntinga & Suzanne Metselaar - 2024 - BMC Medical Ethics 25 (1):1-14.
    Background Increasing social pluralism adds to the already existing variety of heterogeneous moral perspectives on good care, health, and quality of life. Pluralism in social identities is also connected to health and care disparities for minoritized patient (i.e. care receiver) populations, and to specific diversity-related moral challenges of healthcare professionals and organizations that aim to deliver diversity-responsive care in an inclusive work environment. Clinical ethics support (CES) services and instruments may help with adequately responding to these diversity-related moral challenges. However, (...)
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  • Addressing Anti‐Black Racism in Bioethics: Responding to the Call.Faith E. Fletcher, Keisha S. Ray, Virginia A. Brown & Patrick T. Smith - 2022 - Hastings Center Report 52 (S1):3-11.
    Hastings Center Report, Volume 52, Issue S1, Page S3-S11, March‐April 2022.
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  • Beyond Good Intentions: Student Run Free Clinics as a Reflection of a Broken System.Yolonda Wilson & Lou Vinarcsik - 2022 - American Journal of Bioethics 22 (3):27-29.
    Camisha Russell argues that this contemporary moment of societal reckoning with the value of Black lives is also a moment for considering racism as a bioethical issue. She continues that bioethicis...
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  • Addressing the Practical Implications of Intersectionality in Clinical Medicine: Ethical, Embodied and Institutional Dimensions.Claudia Barned, Corinne Lajoie & Eric Racine - 2019 - American Journal of Bioethics 19 (2):27-29.
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  • Response to Open Peer Commentaries on “Bioethicists Can and Should Contribute to Addressing Racism”.Yolonda Wilson, Marion Danis & Amina White - 2016 - American Journal of Bioethics 16 (5):1-4.
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  • The Really New Jim Crow: Why Bioethicists Must Ally With Undocumented Immigrants.Mark Kuczewski - 2016 - American Journal of Bioethics 16 (4):21-23.
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  • Broadening the Conversation About Intersectionality in Clinical Medicine.Yolonda Wilson, Amina White, Akilah Jefferson & Marion Danis - 2019 - American Journal of Bioethics 19 (4):W1-W5.
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  • Bioethicist or Philosopher King?Melissa Weddle - 2016 - American Journal of Bioethics 16 (4):31-33.
    Danis and colleagues (Danis, Wilson, and White 2016) fault bioethicists for insufficient action toward addressing racism and racially motivated violence, then proceed to assign them an expansive ro...
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  • Fifty Years of U.S. Mass Incarceration and What It Means for Bioethics.Sean A. Valles - 2023 - Hastings Center Report 53 (6):25-35.
    A growing body of literature has engaged with mass incarceration as a public health problem. This article reviews some of that literature, illustrating why and how bioethicists can and should engage with the problem of mass incarceration as a remediable cause of health inequities. “Mass incarceration” refers to a phenomenon that emerged in the United States fifty years ago: imprisoning a vastly larger proportion of the population than peer countries do, with a greatly disproportionate number of incarcerated people being members (...)
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  • A New Dawn of Bioethics: Advocacy and Social Justice.Brian Tuohy & Providenza Rocco - 2022 - American Journal of Bioethics 22 (1):23-25.
    Fabi and Goldberg make the important observation that skewed funding priorities in bioethics contribute to the perpetuation of injustice. Through a lens of structural racism, the authors dem...
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  • Bioethics Must Exemplify a Clear Path toward Justice: A Call to Action.Keisha Ray, Folasade C. Lapite, Shameka Poetry Thomas & Faith Fletcher - 2022 - American Journal of Bioethics 22 (1):14-16.
    Fabi and Goldberg raised important considerations regarding both research and funding priorities in the field of bioethics and, in particular, the field’s misalignment with social justice. W...
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  • Bioethics and Populism: How Should Our Field Respond?Mildred Z. Solomon & Bruce Jennings - 2017 - Hastings Center Report 47 (2):11-16.
    Across the world, an authoritarian and exclusionary form of populism is gaining political traction. Historically, some populist movements have been democratic and based on a sense of inclusive justice and the common good. But the populism on the rise at present speaks and acts otherwise. It is challenging constitutional democracies. The polarization seen in authoritarian populism goes beyond the familiar left-right political spectrum and generates disturbing forms of extremism, including the so-called alternative right in the United States and similar ethnic (...)
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  • Anti‐Black Racism as a Chronic Condition.Nneka Sederstrom & Tamika Lasege - 2022 - Hastings Center Report 52 (S1):24-29.
    Hastings Center Report, Volume 52, Issue S1, Page S24-S29, March‐April 2022.
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  • To Know Me Is to Exonerate Me: Appeals to Character in Defense of the Willowbrook Hepatitis Study.John Lynch - 2024 - Journal of Medicine and Philosophy 49 (5):499-511.
    The Willowbrook Hepatitis Study is one of the best-known examples of unethical medical research, but the research has always had defenders. One of the more intriguing defenses continually used was that critics did not know the researchers on the study and, therefore, could not assess their ethics. This essay traces the appeal to the researchers’ characters across published research and archival sources from the 1960s through today. These appeals reflect the observation as old as Aristotle that one of the most (...)
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