- Do Clinicians Have a Duty to Participate in Pragmatic Clinical Trials?Andrew Garland, Stephanie Morain & Jeremy Sugarman - 2022 - American Journal of Bioethics 23 (8):22-32.details
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Toward Meeting the Obligation of Respect for Persons in Pragmatic Clinical Trials.Stephanie R. Morain, Stephanie A. Kraft, Benjamin S. Wilfond, Amy Mcguire, Neal W. Dickert, Andrew Garland & Jeremy Sugarman - 2022 - Hastings Center Report 52 (3):9-17.details
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Think Pragmatically: Investigators’ Obligations to Patient-Subjects When Research is Embedded in Care.Stephanie R. Morain & Emily A. Largent - 2022 - American Journal of Bioethics 23 (8):10-21.details
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Participant Reactions to a Literacy-Focused, Web-Based Informed Consent Approach for a Genomic Implementation Study.Stephanie A. Kraft, Kathryn M. Porter, Devan M. Duenas, Claudia Guerra, Galen Joseph, Sandra Soo-Jin Lee, Kelly J. Shipman, Jake Allen, Donna Eubanks, Tia L. Kauffman, Nangel M. Lindberg, Katherine Anderson, Jamilyn M. Zepp, Marian J. Gilmore, Kathleen F. Mittendorf, Elizabeth Shuster, Kristin R. Muessig, Briana Arnold, Katrina A. B. Goddard & Benjamin S. Wilfond - 2021 - AJOB Empirical Bioethics 12 (1):1-11.details
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(1 other version)Bystander Ethics and Good Samaritanism: A Paradox for Learning Health Organizations.James E. Sabin, Noelle M. Cocoros, Crystal J. Garcia, Jennifer C. Goldsack, Kevin Haynes, Nancy D. Lin, Debbe McCall, Vinit Nair, Sean D. Pokorney, Cheryl N. McMahill-Walraven, Christopher B. Granger & Richard Platt - 2019 - Hastings Center Report 49 (4):18-26.details
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Patient’s lived experience with DBS between medical research and care: some legal implications.Sonia Desmoulin-Canselier - 2019 - Medicine, Health Care and Philosophy 22 (3):375-386.details
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The Ethics of Clinical Care and the Ethics of Clinical Research: Yin and Yang.Charles J. Kowalski, Raymond J. Hutchinson & Adam J. Mrdjenovich - 2017 - Journal of Medicine and Philosophy 42 (1):7-32.details
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New Directions in Philosophy of Medicine.Jacob Stegenga, Ashley Kennedy, Serife Tekin, Saana Jukola & Robyn Bluhm - 2016 - In James A. Marcum (ed.), Bloomsbury Companion to Contemporary Philosophy of Medicine. New York: Bloomsbury. pp. 343-367.details
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Patient Perspectives on the Learning Health System: The Importance of Trust and Shared Decision Making.Maureen Kelley, Cyan James, Stephanie Alessi Kraft, Diane Korngiebel, Isabelle Wijangco, Emily Rosenthal, Steven Joffe, Mildred K. Cho, Benjamin Wilfond & Sandra Soo-Jin Lee - 2015 - American Journal of Bioethics 15 (9):4-17.details
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(2 other versions)A Prescription for Ethical Learning.Emily A. Largent, Franklin G. Miller & Steven Joffe - 2013 - Hastings Center Report 43 (s1):28-29.details
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An Ethics Framework for a Learning Health Care System: A Departure from Traditional Research Ethics and Clinical Ethics.Ruth R. Faden, Nancy E. Kass, Steven N. Goodman, Peter Pronovost, Sean Tunis & Tom L. Beauchamp - 2013 - Hastings Center Report 43 (s1):16-27.details
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The Research‐Clinical Practice Distinction, Learning Health Systems, and Relationships.Howard Brody & Franklin G. Miller - 2013 - Hastings Center Report 43 (5):41-47.details
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What Should Be Disclosed to Research Participants?David Wendler - 2013 - American Journal of Bioethics 13 (12):3-8.details
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The historical foundations of the research-practice distinction in bioethics.Tom L. Beauchamp & Yashar Saghai - 2012 - Heoretical Medicine and Bioethics 33 (1):45-56.details
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Of Drowning Children and Doubtful Analogies.Emily A. Largent - 2019 - Hastings Center Report 49 (4):26-28.details
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An Epistemic Argument for Research-Practice Integration in Medicine.Robyn Bluhm & Kirstin Borgerson - 2018 - Journal of Medicine and Philosophy 43 (4):469-484.details
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Adrift in the gray zone: IRB perspectives on research in the learning health system.Sandra Soo-Jin Lee, Maureen Kelley, Mildred K. Cho, Stephanie Alessi Kraft, Cyan James, Melissa Constantine, Adrienne N. Meyer, Douglas Diekema, Alexander M. Capron, Benjamin S. Wilfond & David Magnus - 2016 - AJOB Empirical Bioethics 7 (2):125-134.details
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Clinical Trials Infrastructure as a Quality Improvement Intervention in Low- and Middle-Income Countries.Avram Denburg, Carlos Rodriguez-Galindo & Steven Joffe - 2016 - American Journal of Bioethics 16 (6):3-11.details
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Patient and physician views about protocolized dialysis treatment in randomized trials and clinical care.Ashley Kraybill, Laura M. Dember, Steven Joffe, Jason Karlawish, Susan S. Ellenberg, Vanessa Madden & Scott D. Halpern - 2016 - AJOB Empirical Bioethics 7 (2):106-115.details
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Public Attitudes toward Consent When Research Is Integrated into Care—Any “Ought” from All the “Is”?Stephanie R. Morain & Emily A. Largent - 2021 - Hastings Center Report 51 (2):22-32.details
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Should Epidemiological Studies Be Subject to Ethics Review?Jan Piasecki, Vilius Dranseika & Marcin Waligora - 2018 - Public Health Ethics 11 (2):213-220.details
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What's Trust Got to Do With It? Trust and the Importance of the Research–Care Distinction.Emily A. Largent - 2015 - American Journal of Bioethics 15 (9):22-24.details
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Ethical Justifications for Access to Unapproved Medical Interventions: An Argument for (Limited) Patient Obligations.Mary Jean Walker, Wendy A. Rogers & Vikki Entwistle - 2014 - American Journal of Bioethics 14 (11):3-15.details
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Remote monitoring of medication adherence and patient and industry responsibilities in a learning health system.Junhewk Kim, Austin Connor Kassels, Nathaniel Isaac Costin & Harald Schmidt - 2020 - Journal of Medical Ethics 46 (6):386-391.details
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Ostriches and Obligations: Ethical Challenges Facing Research on Usual Care.Stephanie R. Morain - 2019 - Hastings Center Report 49 (4):28-30.details
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The Research‐Treatment Distinction: A Problematic Approach for Determining Which Activities Should Have Ethical Oversight.Nancy E. Kass, Ruth R. Faden, Steven N. Goodman, Peter Pronovost, Sean Tunis & Tom L. Beauchamp - 2013 - Hastings Center Report 43 (s1):4-15.details
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(2 other versions)A Prescription for Ethical Learning.Emily A. Largent, Franklin G. Miller & Steven Joffe - 2013 - Hastings Center Report 43 (s1):28-29.details
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Mode 2 Knowledge Production in the Context of Medical Research: A Call for Further Clarifications.Hojjat Soofi - 2018 - Journal of Bioethical Inquiry 15 (1):23-27.details
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(1 other version)Ethical Oversight of Research on Patient Care.Mildred Z. Solomon & Ann C. Bonham - 2013 - Hastings Center Report 43 (s1):2-3.details
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When clinical care is like research: the need for review and consent.David Wendler & Rebecca Johnson - 2016 - Theoretical Medicine and Bioethics 37 (3):193-209.details
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Compulsory Research in Learning Health Care: Against a Minimal Risk Limit.Robert Steel - 2022 - Hastings Center Report 52 (3):18-29.details
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(1 other version)Bystander Ethics and Good Samaritanism: A Paradox for Learning Health Organizations.James E. Sabin, Noelle M. Cocoros, Crystal J. Garcia, Jennifer C. Goldsack, Kevin Haynes, Nancy D. Lin, Debbe McCall, Vinit Nair, Sean D. Pokorney, Cheryl N. McMahill-Walraven, Christopher B. Granger & Richard Platt - 2019 - Hastings Center Report 49 (4):18-26.details
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When Is It Ethical for Physician-Investigators to Seek Consent From Their Own Patients?Stephanie R. Morain, Steven Joffe & Emily A. Largent - 2019 - American Journal of Bioethics 19 (4):11-18.details
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Learning Health System — Moving from Ethical Frameworks to Practical Implementation.Stephanie R. Morain, Mary A. Majumder & Amy L. McGuire - 2019 - Journal of Law, Medicine and Ethics 47 (3):454-458.details
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From preferences to policies? Considerations when incorporating empirical ethics findings into research policymaking.Emily A. Largent & Stephanie R. Morain - 2020 - Journal of Medical Ethics 46 (6):378-379.details
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The Importance of Listening to Patients and to Evidence Regarding Consent for Research.Neal W. Dickert - 2019 - American Journal of Bioethics 19 (4):23-25.details
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Ethical Issues in Implementation Science: A Qualitative Interview Study of Participating Clinicians.Justin T. Clapp, Naomi Zucker, Olivia K. Hernandez, Ellen J. Bass & Meghan B. Lane-Fall - forthcoming - AJOB Empirical Bioethics.details
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