“Ethics” is used as a label for a new kind of expertise in the field of science and technology. At the same time, it is not clear what ethical expertise consists in and what its political status in modern democracies can be. Starting from the “participatory turn” in recent social research and policy, we will argue that bioethical reasoning has to include public views of and attitudes towards biomedicine. We will sketch the outlines of a bioethical conception of “public understanding (...) of ethics,” addressing three different issues: (a) the methodological relevance of moral questions and problems raised by lay persons in everyday life regarding biomedicine and technology, (b) the normative relevance of such lay moralities for the justification of ethical decisions, and (c) the necessity of public deliberation in this context. Finally, we draw conclusions in view of the concepts and methods such a conception of “public understanding of ethics” should employ. (shrink)

“Ethics” is used as a label for a new kind of expertise in the field of science and technology. At the same time, it is not clear what ethical expertise consists in and what its political status in modern democracies can be. Starting from the “participatory turn” in recent social research and policy, we will argue that bioethical reasoning has to include public views of and attitudes towards biomedicine. We will sketch the outlines of a bioethical conception of “public understanding (...) of ethics,” addressing three different issues: the methodological relevance of moral questions and problems raised by lay persons in everyday life regarding biomedicine and technology, the normative relevance of such lay moralities for the justification of ethical decisions, and the necessity of public deliberation in this context. Finally, we draw conclusions in view of the concepts and methods such a conception of “public understanding of ethics” should employ. (shrink)

There has been extensive discussion in research ethics literature surrounding the appropriate form of informed consent for biobanking, whether with adapted content, or adapted forms such as broad or tiered consent. These discussions presuppose that it is possible to disclose adequate information at the outset to facilitate an informed choice to donate to a biobank. I will argue that informed consent cannot be achieved because in the biobanking context, we are either consenting to an enterprise that is not research or (...) to future research. Nor is the solution to abandon the idea that informed consent ethically requires the disclosure of a certain minimal amount of information to make an informed choice by misleadingly identifying broad, blanket or even tiered consent as forms of ‘informed’ consent. Rather, we should abandon the idea that informed consent for research can be adapted to the type of endeavor that biobanking is, and understand the goal as to develop alternatives not as alternative forms of informed consent, but rather alternatives to informed consent. (shrink)

Expectations play a distinctive role in shaping emerging technologies and producing hype cycles when a technology is adopted or fails on the market. To harness expectations, facilitate and provoke forward-looking discussions, and identify policy alternatives, futures studies are required. Here, expert anticipation of possible or probable future developments becomes extremely arbitrary beyond short-term prediction, and the results of futures studies are often controversial, divergent, or even contradictory; thus they are contested. Nevertheless, such socio-technical imaginaries may prescribe a future that seems (...) attainable to those involved in the visioneering process, and other futures may thus become less likely and shaping them could become more difficult. This implies a need to broaden the debate on socio-technological development, creating spaces where policy, science, and society can become mutually responsive to each other. Laypeople’s experiential and value-based knowledge is highly relevant for complementing expertise to inform socially robust decision-making in science and technology. This paper presents the evolution of a transdisciplinary, forward-looking co-creation process—a demand-side approach developed to strengthen needs-driven research and innovation governance by cross-linking knowledge of laypeople, experts, and stakeholders. Three case studies serve as examples. We argue that this approach can be considered a method for adding social robustness to visioneering and to responsible socio-technical change. (shrink)