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  1. Ownership of individual-level health data, data sharing, and data governance.Jan Piasecki & Phaik Yeong Cheah - 2022 - BMC Medical Ethics 23 (1):1-9.
    Background The ownership status of individual-level health data affects the manner in which it is used. In this paper we analyze two competing models of the ownership status of the data discussed in the literature recently: private ownership and public ownership. Main body In this paper we describe the limitations of these two models of data ownership with respect to individual-level health data, in particular in terms of ethical principles of justice and autonomy, risk mitigation, as well as technological, economic, (...)
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