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  1. Mitochondrial/Nuclear Transfer: A Literature Review of the Ethical, Legal and Social Issues.Raphaëlle Dupras-Leduc, Stanislav Birko & Vardit Ravitsky - unknown
    Mitochondrial/nuclear transfer (M/NT) to avoid the transmission of serious mitochondrial disease raises complex and challenging ethical, legal and social issues (ELSI). In February 2015, the United Kingdom became the first country in the world to legalize M/NT, making the heated debate surrounding this technology even more relevant. This critical interpretive review identified 95 relevant papers discussing the ELSI of M/NT, including original research articles, government-commissioned reports, editorials, letters to editors and research news. The review presents and synthesizes the arguments present (...)
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  • Should Bionormativity Be a Concern in Gamete Donation?Olivia Schuman - 2023 - International Journal of Feminist Approaches to Bioethics 16 (2):138-161.
    An important argument against removing donor anonymity is that such state-mandated policies might validate bionormative attitudes about the importance of genetic relatedness in families. Bionormative attitudes can be unjustly disparaging and harmful to a wide range of families including donor-conceived, adopted, and single-parent families. However, studies show that the majority of donor-conceived individuals want donor anonymity removed. This paper explores the question of how to weigh these desires for knowing the donor—which may be grounded in biased and bionormative assumptions—against the (...)
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  • The Right to Know Your Genetic Parents: From Open-Identity Gamete Donation to Routine Paternity Testing.An Ravelingien & Guido Pennings - 2013 - American Journal of Bioethics 13 (5):33-41.
    Over the years a number of countries have abolished anonymous gamete donation and shifted toward open-identity policies. Donor-conceived children are said to have a fundamental “right to know” the identity of their donor. In this article, we trace the arguments that underlie this claim and question its implications. We argue that, given the status attributed to the right to know one's gamete donor, it would be discriminatory not to extend this right to naturally conceived children with misattributed paternity. One way (...)
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  • The Right to Know Your Genetic Parents: From Open-Identity Gamete Donation to Routine Paternity Testing.An Ravelingien & Guido Pennings - 2013 - American Journal of Bioethics 13 (5):33-41.
    Over the years a number of countries have abolished anonymous gamete donation and shifted toward open-identity policies. Donor-conceived children are said to have a fundamental “right to know” the identity of their donor. In this article, we trace the arguments that underlie this claim and question its implications. We argue that, given the status attributed to the right to know one's gamete donor, it would be discriminatory not to extend this right to naturally conceived children with misattributed paternity. One way (...)
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  • Donor Conception and Lack of Access to Genetic Heritage.Vardit Ravitsky - 2016 - American Journal of Bioethics 16 (12):45-46.
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  • Autonomous Choice and the Right to Know One's Genetic Origins.Vardit Ravitsky - 2014 - Hastings Center Report 44 (2):36-37.
    In “The Ethics of Anonymous Gamete Donation: Is There a Right to Know One's Genetic Origins?,” Inmaculada de Melo‐Martín deconstructs the interests the right is supposed to protect. She argues that these interests are not set back or thwarted when one has no access to one's genetic origins. The basis of her argument is that we lack robust empirical evidence that donor‐conceived individuals suffer certain alleged harms, and that even when such harms are present, they do not provide strong enough (...)
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  • Donor Conception Disclosure: Directive or Non-Directive Counselling?Inez Raes, An Ravelingien & Guido Pennings - 2016 - Journal of Bioethical Inquiry 13 (3):369-379.
    It is widely agreed among health professionals that couples using donor insemination should be offered counselling on the topic of donor conception disclosure. However, it is clear from the literature that there has long been a lack of agreement about which counselling approach should be used in this case: a directive or a non-directive approach. In this paper we investigate which approach is ethically justifiable by balancing the two underlying principles of autonomy and beneficence. To overrule one principle in favour (...)
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  • Resource Allocation, Treatment, Disclosure, and Mitochondrial Replacement Techniques: Some Comments on de Melo-Martin and Harris.César Palacios-gonzález - 2017 - Cambridge Quarterly of Healthcare Ethics 26 (2):278-287.
    Some Comments on de Melo-Martin and Harris.
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  • The Ethics of Anonymous Gamete Donation: Is There a Right to Know One's Genetic Origins?.Inmaculada De Melo-Martín - 2014 - Hastings Center Report 44 (2):28-35.
    The vast majority of gamete donations worldwide are made anonymously, and in some countries, including Spain, France, and Denmark, the anonymity of donors is explicitly protected by law. Nonetheless, a growing number of countries have called into question the morality of such practices and are enacting laws allowing children access to identifying information about their gamete donor. A significant reason for the growing legislative support for nonanonymous gamete donations is the belief that donor‐conceived children have a fundamental moral right to (...)
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  • Well-being, Gamete Donation, and Genetic Knowledge: The Significant Interest View.Daniel Groll - 2021 - Journal of Medicine and Philosophy 46 (6):758-781.
    The Significant Interest view entails that even if there were no medical reasons to have access to genetic knowledge, there would still be reason for prospective parents to use an identity-release donor as opposed to an anonymous donor. This view does not depend on either the idea that genetic knowledge is profoundly prudentially important or that donor-conceived people have a right to genetic knowledge. Rather, it turns on general claims about parents’ obligations to help promote their children’s well-being and the (...)
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  • The ethics of anonymous gamete donation: is there a right to know one's genetic origins?Inmaculada De Melo-Martín - 2014 - Hastings Center Report 44 (2):28-35.
    A growing number of jurisdictions hold that gamete donors must be identifiable to the children born with their eggs or sperm, on grounds that being able to know about one's genetic origins is a fundamental moral right. But the argument for that belief has not yet been adequately made.
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  • “I want us to be a normal family”: Toward an understanding of the functions of anonymity among U.S. oocyte donors and recipients.Inmaculada de Melo-Martín, Lisa R. Rubin & Ina N. Cholst - 2018 - AJOB Empirical Bioethics 9 (4):235-251.
    Abstract BACKGROUND: Anonymity remains the more common practice in gamete donations, but legislation prohibiting anonymity with a goal of protecting donor-conceived children's right to know their genetic origins is becoming more common. However, given the dearth of research investigating the function of anonymity for donors and recipients, it is unclear whether these policies will accomplish their goals. The aim of this study was to explore experiences with anonymity among oocyte donors and recipients who participated in an anonymous donor oocyte program (...)
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  • Medical ethics when moving towards non-anonymous gamete donation: the views of donors and recipients.Sandra Pinto da Silva, Cláudia de Freitas & Susana Silva - 2022 - Journal of Medical Ethics 48 (9):616-623.
    Drawing on the views of donors and recipients about anonymity in a country that is experiencing a transition towards non-anonymous gamete donation mandated by the Constitutional Court, we explore how the intersection between rights-based approaches and an empirical framework enhances recommendations for ethical policy and healthcare. Between July 2017 and April 2018, 69 donors and 147 recipients, recruited at the Portuguese Public Bank of Gametes, participated in this cross-sectional study. Position towards anonymity was assessed through an open-ended question in a (...)
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  • New York State Creates New Governance of Commercial Gestational Surrogacy.Marsha J. Tyson Darling - 2020 - The New Bioethics 26 (4):328-350.
    United States law recognizes adult reproductive liberty and many states view surrogacy services through that lens. During the COVID-19 pandemic in March, 2020, New York State enacted the Child–Pare...
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  • Mitochondrial donation and ‘the right to know’.Reuven Brandt - 2016 - Journal of Medical Ethics 42 (10):678-684.
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  • Parent-initiated posthumous-assisted reproduction revisited in light of the interest in genetic origins.Ya'arit Bokek-Cohen & Vardit Ravitsky - 2023 - Journal of Medical Ethics 49 (5):357-360.
    A rich literature in bioethics argues against the use of anonymous gamete donation in the name of the ‘interest in knowing one’s genetic origins’. This interest stems from medical as well as psychosocial and identity reasons. The term ‘genealogical bewilderment’ has been coined to express the predicament of those deprived of access to information about their origins. Another rich body of literature in bioethics discusses arguments for and against posthumous-assisted reproduction (PAR), with a recent focus on PAR that is initiated (...)
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