- A Framework for Analyzing the Ethics of Disclosing Genetic Research Findings.Lisa Eckstein, Jeremy R. Garrett & Benjamin E. Berkman - 2014 - Journal of Law, Medicine and Ethics 42 (2):190-207.details
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Understanding Incidental Findings in the Context of Genetics and Genomics.Mildred K. Cho - 2008 - Journal of Law, Medicine and Ethics 36 (2):280-285.details
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The Law of Incidental Findings in Human Subjects Research: Establishing Researchers' Duties.Susan M. Wolf, Jordan Paradise & Charlisse Caga-Anan - 2008 - Journal of Law, Medicine and Ethics 36 (2):361-383.details
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Taking Our Obligations to Research Participants Seriously: Disclosing Individual Results of Genetic Research.Teri A. Manolio - 2006 - American Journal of Bioethics 6 (6):32-34.details
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Relationships Matter: Ethical Considerations for Returning Results to Family Members of Deceased Subjects.Lauren C. Milner, Emily Y. Liu & Nanibaa’ A. Garrison - 2013 - American Journal of Bioethics 13 (10):66 - 67.details
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Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya. [REVIEW]Vicki Marsh, Francis Kombe, Raymond Fitzpatrick, Thomas N. Williams, Michael Parker & Sassy Molyneux - 2013 - BMC Medical Ethics 14 (1):41.details
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Patients' Views on Identifiability of Samples and Informed Consent for Genetic Research.Sara Chandros Hull, Richard Sharp, Jeffrey Botkin, Mark Brown, Mark Hughes, Jeremy Sugarman, Debra Schwinn, Pamela Sankar, Dragana Bolcic-Jankovic, Brian Clarridge & Benjamin Wilfond - 2008 - American Journal of Bioethics 8 (10):62-70.details
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Ethical issues related to computerised family medical histories in sickle cell disease: Inforare.S. Franrenet, N. Duchange, F. Galacteros, C. Quantin, O. Cohen, R. Nzouakou, S. Sudraud, C. Herve & G. Moutel - 2010 - Journal of Medical Ethics 36 (10):604-607.details
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Understanding Incidental Findings in the Context of Genetics and Genomics.Mildred K. Cho - 2008 - Journal of Law, Medicine and Ethics 36 (2):280-285.details
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Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations.Susan M. Wolf, Frances P. Lawrenz, Charles A. Nelson, Jeffrey P. Kahn, Mildred K. Cho, Ellen Wright Clayton, Joel G. Fletcher, Michael K. Georgieff, Dale Hammerschmidt, Kathy Hudson, Judy Illes, Vivek Kapur, Moira A. Keane, Barbara A. Koenig, Bonnie S. LeRoy, Elizabeth G. McFarland, Jordan Paradise, Lisa S. Parker, Sharon F. Terry, Brian Van Ness & Benjamin S. Wilfond - 2008 - Journal of Law, Medicine and Ethics 36 (2):219-248.details
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Clinical utility and full disclosure of genetic results to research participants.Richard R. Sharp & Morris W. Foster - 2006 - American Journal of Bioethics 6 (6):42 – 44.details
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Tiered disclosure options promote the autonomy and well-being of research subjects.Mark A. Rothstein - 2006 - American Journal of Bioethics 6 (6):20 – 21.details
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Undesirable implications of disclosing individual genetic results to research participants.Leslie A. Meltzer - 2006 - American Journal of Bioethics 6 (6):28 – 30.details
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Taking our obligations to research participants seriously: Disclosing individual results of genetic research.Teri A. Manolio - 2006 - American Journal of Bioethics 6 (6):32 – 34.details
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One size does not fit all.Flavia M. Facio - 2006 - American Journal of Bioethics 6 (6):40 – 42.details
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Balancing the Double-Edged Implications of AI in Psychiatric Digital Phenotyping.Katherine Bassil - 2024 - American Journal of Bioethics 24 (2):113-115.details
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Returning Individual Research Results from Digital Phenotyping in Psychiatry.Francis X. Shen, Matthew L. Baum, Nicole Martinez-Martin, Adam S. Miner, Melissa Abraham, Catherine A. Brownstein, Nathan Cortez, Barbara J. Evans, Laura T. Germine, David C. Glahn, Christine Grady, Ingrid A. Holm, Elisa A. Hurley, Sara Kimble, Gabriel Lázaro-Muñoz, Kimberlyn Leary, Mason Marks, Patrick J. Monette, Jukka-Pekka Onnela, P. Pearl O’Rourke, Scott L. Rauch, Carmel Shachar, Srijan Sen, Ipsit Vahia, Jason L. Vassy, Justin T. Baker, Barbara E. Bierer & Benjamin C. Silverman - 2024 - American Journal of Bioethics 24 (2):69-90.details
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Going Back to Basics: What is the Target of Prenatal Screening?Anne-Marie Laberge, Marie-Christine Roy, Erika Kleiderman & Vardit Ravitsky - 2023 - American Journal of Bioethics 23 (3):50-52.details
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Perspectives on returning individual and aggregate genomic research results to study participants and communities in Kenya: a qualitative study.Gershim Asiki, Michele Ramsay, Anita Ghansah, Paulina Tindana, Catherine Kyobutungi, Shukri F. Mohamed & Isaac Kisiangani - 2022 - BMC Medical Ethics 23 (1):1-11.details
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Taking it to the bank: the ethical management of individual findings arising in secondary research.Mackenzie Graham, Nina Hallowell, Berge Solberg, Ari Haukkala, Joanne Holliday, Angeliki Kerasidou, Thomas Littlejohns, Elizabeth Ormondroyd, John-Arne Skolbekken & Marleena Vornanen - 2021 - Journal of Medical Ethics 47 (10):689-696.details
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Ethical and legal issues when dealing with genetic incidental findings—challenges and possible solutions.Sabine Rudnik-Schöneborn, Martin Langanke, Pia Erdmann & Jürgen Robienski - 2014 - Ethik in der Medizin 26 (2):105-119.details
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Biobanking for human microbiome research: promise, risks, and ethics.Yonghui Ma, Hua Chen, Ruipeng Lei & Jianlin Ren - 2017 - Asian Bioethics Review 9 (4):311-324.details
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Strategies to Guide the Return of Genomic Research Findings: An Australian Perspective.Lisa Eckstein & Margaret Otlowski - 2018 - Journal of Bioethical Inquiry 15 (3):403-415.details
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The Right to Know: A Revised Standard for Reporting Incidental Findings.G. Owen Schaefer & Julian Savulescu - 2018 - Hastings Center Report 48 (2):22-32.details
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Defining categories of actionability for secondary findings in next-generation sequencing.Celine Moret, Alex Mauron, Siv Fokstuen, Periklis Makrythanasis & Samia A. Hurst - 2017 - Journal of Medical Ethics 43 (5):346-349.details
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Return of Research Results: How Should Research Results Be Handled?Bartha Maria Knoppers & Emmanuelle Lévesque - 2011 - Journal of Law, Medicine and Ethics 39 (4):574-576.details
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Amnestic MCI Patients’ Perspectives on Volunteer Participation in a Research Context.Gwendolien Vanderschaeghe, Jolien Schaeverbeke, Rik Vandenberghe & Kris Dierickx - 2017 - Journal of Clinical Research and Bioethics 8 (3).details
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A Framework for Unrestricted Prenatal Whole-Genome Sequencing: Respecting and Enhancing the Autonomy of Prospective Parents.Stephanie C. Chen & David T. Wasserman - 2017 - American Journal of Bioethics 17 (1):3-18.details
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Models of Consent to Return of Incidental Findings in Genomic Research.Paul S. Appelbaum, Erik Parens, Cameron R. Waldman, Robert Klitzman, Abby Fyer, Josue Martinez, W. Nicholson Price & Wendy K. Chung - 2014 - Hastings Center Report 44 (4):22-32.details
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Biobanks and the Return of Research Results: Out with the Old and in with the New?Ma'N. H. Zawati & Amélie Rioux - 2011 - Journal of Law, Medicine and Ethics 39 (4):614-620.details
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Return of Research Results: General Principles and International Perspectives.Emmanuelle Lévesque, Yann Joly & Jacques Simard - 2011 - Journal of Law, Medicine and Ethics 39 (4):583-592.details
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The Needle in the Haystack: International Consortia and the Return of Individual Research Results.Susan E. Wallace - 2011 - Journal of Law, Medicine and Ethics 39 (4):631-639.details
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The Symbolic Relevance of Feedback: Return and Disclosure of Genomic Research Results of Breast Cancer Patients in Belgium, Germany and the UK.Imme Petersen Regine Kollek - 2015 - Journal of Clinical Research and Bioethics 6 (4).details
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Motivation in the age of genomics: why genetic findings of disease susceptibility might not motivate behavior change.Kyle B. Brothers, Sarah J. Beal & Tinsley H. G. Webster - 2013 - Life Sciences, Society and Policy 9 (1):1-15.details
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Ethische und rechtliche Aspekte im Umgang mit genetischen Zufallsbefunden – Herausforderungen und Lösungsansätze.Sabine Rudnik-Schöneborn, Martin Langanke, Pia Erdmann & Jürgen Robienski - 2014 - Ethik in der Medizin 26 (2):105-119.details
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Ethics in action: Approving and improving medical research with human.J. P. de Jong - 2013 - Dissertation, University of Amsterdamdetails
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Disclosure of individual research results in clinico-genomic trials: challenges, classification and criteria for decision-making.Regine Kollek & Imme Petersen - 2011 - Journal of Medical Ethics 37 (5):271-275.details
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A review of ethical frameworks for the disclosure of individual research results in population-based genetic and genomic research. [REVIEW]Isabelle Budin-Ljøsne - 2012 - Research Ethics 8 (1):25-42.details
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Qualitative thematic analysis of consent forms used in cancer genome sequencing.Clarissa Allen & William D. Foulkes - 2011 - BMC Medical Ethics 12 (1):14.details
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Do Researchers Have an Obligation to Actively Look for Genetic Incidental Findings?Catherine Gliwa & Benjamin E. Berkman - 2013 - American Journal of Bioethics 13 (2):32-42.details
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Benefits and payments for research participants: Experiences and views from a research centre on the Kenyan coast. [REVIEW]Sassy Molyneux, Stephen Mulupi, Lairumbi Mbaabu & Vicki Marsh - 2012 - BMC Medical Ethics 13 (1):13-.details
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Genomic Inheritances: Disclosing Individual Research Results From Whole-Exome Sequencing to Deceased Participants' Relatives.Ben Chan, Flavia M. Facio, Haley Eidem, Sara Chandros Hull, Leslie G. Biesecker & Benjamin E. Berkman - 2012 - American Journal of Bioethics 12 (10):1-8.details
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Return of Research Results: General Principles and International Perspectives.Emmanuelle Lévesque, Yann Joly & Jacques Simard - 2011 - Journal of Law, Medicine and Ethics 39 (4):583-592.details
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Biobanks and the Return of Research Results: Out with the Old and In with the New?Ma'N. H. Zawati & Amélie Rioux - 2011 - Journal of Law, Medicine and Ethics 39 (4):614-620.details
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When research seems like clinical care: a qualitative study of the communication of individual cancer genetic research results.Fiona A. Miller, Mita Giacomini, Catherine Ahern, Jason S. Robert & Sonya de Laat - 2008 - BMC Medical Ethics 9 (1):4.details
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The search for clarity in communicating research results to study participants.D. I. Shalowitz & F. G. Miller - 2008 - Journal of Medical Ethics 34 (9):e17-e17.details
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Duty to disclose what? Querying the putative obligation to return research results to participants.F. A. Miller, R. Christensen, M. Giacomini & J. S. Robert - 2008 - Journal of Medical Ethics 34 (3):210-213.details
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Public expectations for return of results from large-cohort genetic research.Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy & Kathy Hudson - 2008 - American Journal of Bioethics 8 (11):36 – 43.details
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When do genetic researchers have a duty to recontact study participants?Christopher H. Wade & Andrea L. Kalfoglou - 2006 - American Journal of Bioethics 6 (6):26 – 27.details
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Best laid plans for offering results go awry.Lisa S. Parker - 2006 - American Journal of Bioethics 6 (6):22 – 23.details
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