In this article, we use the theory of Information Ethics to argue that deceased people have a prima facie moral right to privacy in the context of health data research, and that this should be reflected in regulation and guidelines. After death, people are no longer biological subjects but continue to exist as informational entities which can still be harmed/damaged. We find that while the instrumental value of recognising post-mortem privacy lies in the preservation of the social contract for health (...) research, its intrinsic value is grounded in respect for the dignity of the post-mortem informational entity. However, existing guidance on post-mortem data protection is available only in the context of genetic studies. In comparing the characteristics of genetic data and other health-related data, we identify two features of DNA often given as arguments for this genetic exceptionalism: relationality and embodiment. We use these concepts to show that at the appropriate Level of Abstraction, there is no morally relevant distinction between posthumous genetic and other health data. Thus, genetic data should not automatically receive special moral status after death. Instead we make a plea for ‘contextual exceptionalism’. Our analysis concludes by reflecting on a real-world case and providing suggestions for contextual factors that researchers and oversight bodies should take into account when designing and evaluating research projects with health data from deceased subjects. (shrink)

Online technologies enable vast amounts of data to outlive their producers online, thereby giving rise to a new, digital form of afterlife presence. Although researchers have begun investigating the nature of such presence, academic literature has until now failed to acknowledge the role of commercial interests in shaping it. The goal of this paper is to analyse what those interests are and what ethical consequences they may have. This goal is pursued in three steps. First, we introduce the concept of (...) the Digital Afterlife Industry, and define it as an object of study. Second, we identify the politico-economic interests of the DAI. For this purpose, we develop an analytical approach based on an informational interpretation of Marxian economics. Third, we explain the practical manifestations of the interests using four real life cases. The findings expose the incentives of the DAI to alter what is referred to as the “informational bodies” of the dead, which in turn is to be seen as a violation of the principle of human dignity. To prevent such consequences, we argue that the ethical conventions that guide trade with remains of organic bodies may serve as a good model for future regulation of DAI. (shrink)

Because obituaries are succinct and explicitly intended to summarize their subjects’ lives, they may be expected to include only the features that the author finds most salient but also to signal to others in the community the socially-recognized aspects of the deceased’s character. We begin by reviewing studies 1 and 2, in which obituaries were carefully read and labeled. We then report study 3, which further develops these results with a semi-automated, large-scale semantic analysis of several thousand obituaries. Geography, gender, (...) and elite status all turn out to be associated with the virtues and values associated with the deceased. (shrink)

Samuel Scheffler defends “The Afterlife Conjecture”: the view that the continued existence of humanity after our deaths—“the afterlife”—lies in the background of our valuing; were we to lose confidence in it, many of the projects we engage in would lose their meaning. The Afterlife Conjecture, in his view, also brings out the limits of our egoism, showing that we care more about yet unborn strangers than about personal survival. But why does the afterlife itself matter to us? Examination of Scheffler’s (...) second argument helps answer this question, thereby undermining his argument. Our concern for the afterlife involves bootstrapping: we care more about the afterlife than about personal survival precisely because the latter has such salient limits that our lives are structured by adaptation to mortality, and it is only because the afterlife does provide a measure of personal survival that it can give meaning to our projects. (shrink)

Despite the commonly accepted notion that the mind is inseparable from the body, the extended mind hypothesis claims human minds can become linked with the world around us. Through various avenues such as spoken and written language, humans may use non-biological means to allow the mind to store, access, and communicate information in extended capacities not otherwise possible. Though the extended minds hypothesis may be viewed as a result of advancing technology, it makes up only a small part of the (...) way in which externalization may occur. Everyday life is full of examples of extended minds, from computers and phones to billboards and books. There is much debate among philosophers over the acceptance of the hypothesis, but in this paper, I will explore some of the most relevant arguments and aim to show why I hold the extended minds hypothesis to be true. (shrink)

Schechtman’s ‘Person Life View’ offers an account of personal identity whereby persons are the unified loci of our practical and ethical judgment. PLV also recognises infants and permanent vegetative state patients as being persons. I argue that the way PLV handles these cases yields an unexpected result: the dead also remain persons, contrary to the widely-accepted ‘Termination Thesis.’ Even more surprisingly, this actually counts in PLV’s favor: in light of our social and ethical practices which treat the dead as moral (...) patients, PLV gives a more plausible account of the status of the dead than its rival theories. (shrink)

We project the future accumulation of profiles belonging to deceased Facebook users. Our analysis suggests that a minimum of 1.4 billion users will pass away before 2100 if Facebook ceases to attract new users as of 2018. If the network continues expanding at current rates, however, this number will exceed 4.9 billion. In both cases, a majority of the profiles will belong to non-Western users. In discussing our findings, we draw on the emerging scholarship on digital preservation and stress the (...) challenges arising from curating the profiles of the deceased. We argue that an exclusively commercial approach to data preservation poses important ethical and political risks that demand urgent consideration. We call for a scalable, sustainable, and dignified curation model that incorporates the interests of multiple stakeholders. (shrink)

We are living in a digital era where ubiquitous social media are becoming part of the everyday lives of many. These social media platforms were designed for the living; however an estimated 8000 Facebook members die daily. It is therefore no surprise that the phenomena of how social media platforms are adopted to discuss death dying and grieving have become a growing area of research across numerous disciplines. Using qualitative methods, this article adds to and moves beyond existing research by (...) focusing on the creation and inheritance of Facebook pages, thanablogs, posthumous chatbots, posthumous messages and posthumous avatars, to explore whether digital afterlives enabled by the Internet affect how people grieve. In order to examine how these messages and memories are experienced this study used in-depth qualitative interviews with participants from 3 distinct areas: Digital Creators, Digital Inheritors and Service Providers the findings presented here explore three emerging themes the link between comfort and control the changing landscape of the uncanny valley and the fear of ‘second loss’. (shrink)

Сьогоднішнє інформаційно-цифрове століття пропонує широке використання соціальних мереж. Їх застосування є повсюдним і зачіпає всі вікові групи, соціальні класи та культури. Однак, ширше використання цих засобів масової інформації супроводжується проблемами конфіденційності та етичними проблемами. Актуальність дослідження полягає у висвітленні проблеми моральної ролі людини в соціальних мережах. Мета полягає в аналізі сучасних етичних та моральних проблем, що виникли у соціальних мережах. Таким чином, об'єктом дослідження постають проблеми етики та моралі у соціальних мережах. Для досягнення мети були використані філософські та загальнонаукові методи. (...) Серед загальнонаукових слід виокремити методи теоретичного (аналіз, узагальнення, класифікація та синтез) та емпіричного (опис та порівняння) рівнів. Також, для узагальнення аналізу літературних та власних експериментальних даних, використано бібліосемантичний метод. Доводиться, що соціальні мережі стали невід'ємною частиною життя майже кожної людини. Матеріали статті являють собою практичну цінність у низці сфер, зокрема політичній, соціальній роботі, педагогічній, освітній, кримінальному правосудді та праві. (shrink)

Various debates on the desirability and rationality of life-extending enhancements have been pursued under the presupposition that a generic psychological theory of personal identity is correct. I here discuss how the narrative approach to personal identity can contribute to these debates. In particular, I argue that two versions of the narrative approach offer good reasons to reject an argument against the rationality of life-extending enhancements.