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  1. First-in-Human Whole-Eye Transplantation: Ensuring an Ethical Approach to Surgical Innovation.Matteo Laspro, Erika Thys, Bachar Chaya, Eduardo D. Rodriguez & Laura L. Kimberly - 2024 - American Journal of Bioethics 24 (5):59-73.
    As innovations in the field of vascular composite allotransplantation (VCA) progress, whole-eye transplantation (WET) is poised to transition from non-human mammalian models to living human recipients. Present treatment options for vision loss are generally considered suboptimal, and attendant concerns ranging from aesthetics and prosthesis maintenance to social stigma may be mitigated by WET. Potential benefits to WET recipients may also include partial vision restoration, psychosocial benefits related to identity and social integration, improvements in physical comfort and function, and reduced surgical (...)
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  • Bioethics Education and Nonideal Theory.Nabina Liebow & Kelso Cratsley - 2021 - In Elizabeth Victor & Laura K. Guidry-Grimes (eds.), Applying Nonideal Theory to Bioethics: Living and Dying in a Nonideal World. New York: Springer. pp. 119-142.
    Bioethics has increasingly become a standard part of medical school education and the training of healthcare professionals more generally. This is a promising development, as it has the potential to help future practitioners become more attentive to moral concerns and, perhaps, better moral reasoners. At the same time, there is growing recognition within bioethics that nonideal theory can play an important role in formulating normative recommendations. In this chapter we discuss what this shift toward nonideal theory means for ethical curricula (...)
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  • Conditioning Principles: On Bioethics and The Problem of Ableism.Joel Michael Reynolds - 2021 - In Elizabeth Victor & Laura K. Guidry-Grimes (eds.), Applying Nonideal Theory to Bioethics: Living and Dying in a Nonideal World. New York: Springer. pp. 99-118.
    This paper has two goals. The first is to argue that the field of bioethics in general and the literature on ideal vs. nonideal theory in particular has underemphasized a primary problem for normative theorizing: the role of conditioning principles. I define these as principles that implicitly or explicitly ground, limit, or otherwise determine the construction and function of other principles, and, as a result, profoundly impact concept formation, perception, judgment, and action, et al. The second is to demonstrate that (...)
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  • Cognitive Enhancement as Transformative Experience: The Challenge of Wrapping One’s Mind Around Enhanced Cognition via Neurostimulation.Paul A. Tubig & Eran Klein - forthcoming - Cambridge Quarterly of Healthcare Ethics:1-16.
    In this paper, the authors explore the question of whether cognitive enhancement via direct neurostimulation, such as through deep brain stimulation, could be reasonably characterized as a form of transformative experience. This question is inspired by a qualitative study being conducted with people at risk of developing dementia and in intimate relationships with people living with dementia (PLWD). They apply L.A. Paul’s work on transformative experience to the question of cognitive enhancement and explore potential limitations on the kind of claims (...)
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  • How Can Ethics Support Innovative Health Care for an Aging Population?Katherine Wayne - 2019 - Ethics and Behavior 29 (3):227-253.
    The rapidly expanding aging population presents an urgent global challenge cutting through just about every dimension of worldly life, including the social, political, cultural, and economic. Developing innovations in health and assistive technology (AT) are poised to support effective and sustainable health care in the face of this challenge, yet there is scant (but growing) discussion of the ethical issues surrounding AT for older persons with dementia. Demands for ethical frameworks that can respond to frontline dilemmas regarding AT development and (...)
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  • Large Language Models and Inclusivity in Bioethics Scholarship.Sumeeta Varma - 2023 - American Journal of Bioethics 23 (10):105-107.
    In the target article, Porsdam Mann and colleagues (2023) broadly survey the ethical opportunities and risks of using general and personalized large language models (LLMs) to generate academic pros...
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  • Living a Meaningful Life and Taking Good Care of Oneself in Times of Illness: Highlighting a Dilemma.Truus Teunissen, Paul Lindhout, Karen Schipper & Tineke Abma - 2019 - International Journal of Feminist Approaches to Bioethics 12 (1):44-60.
    An authoethnography explores the lived experiences of patients being in control and self-managing their chronic illness among their families and friends. Findings show that the current health discourse narrows down people to mere patients and gives rise to tensions. This article indicates that people with one or several chronic illnesses or disabilities are first of all full citizens with needs, values, and drives seeking a meaningful life. Fair possibilities ought to exist to satisfy their needs to belong, to care for (...)
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  • How Disability Activism Advances Disability Bioethics.Joseph A. Stramondo - 2022 - Ethical Theory and Moral Practice 25 (2):335-349.
    In this paper, I argue that, even when disability rights activists are most clearly acting as activists, they can advance the scholarly activity of disability bioethics. In particular, I will argue that even engaging in non-violent direct action, including civil disobedience, is an important way in which disability rights activists directly support the efforts of disability bioethics scholars. I will begin by drawing upon Hilde Lindemann’s work on relational narrative identity to describe how certain damaging master narratives about disability hinder (...)
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  • Disability and the Damaging Master Narrative of an Open Future.Joseph A. Stramondo - 2020 - Hastings Center Report 50 (S1):30-36.
    It is sometimes argued that medical professionals should protect a future child's rights by prohibiting disabled parents from using technology to deliberately have a disabled child because disability is taken as an inevitable, severe threat to a child's otherwise “open” future. I will first argue that the open future that allegedly protects a child's future autonomy is precluded by the very conditions needed to develop that future autonomy. Any child's future will be narrowed as they are socialized in a way (...)
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  • Bioethics and the Power Asymmetry Contextualizing Experience.Joseph A. Stramondo - 2023 - American Journal of Bioethics 23 (1):1-3.
    In “Bioethics and the Moral Authority of Experience,” Nelson et al. explore what they refer to as “The Paradox of Experience.” The authors characterize this paradox formally as follows:(A) Personal...
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  • Understanding the Voices of Disability Advocates in Physician-Assisted Suicide Debates.Devan Stahl - 2021 - Christian Bioethics 27 (3):279-297.
    Christians have an obligation to attend to the voices of persons who are crying out that their dignity and very lives are in jeopardy when physician-assisted suicide becomes legalized. The following essay begins with an account of the concept of “disability moral psychology,” which elucidates the unique ways persons with disabilities perceive the world, based on their phenomenological experience. The author then explores the disability critique of PAS and the shared social conditions of persons who are chronically disabled and terminally (...)
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  • Just What Is the Disability Perspective on Disability?Tom Shakespeare - 2016 - Hastings Center Report 46 (3):31-32.
    In the helpful article “Why Bioethics Needs a Disability Moral Psychology,” Joseph Stramondo adds to the critique of actually existing bioethics and explains why disability activists and scholars so often find fault with the arguments of bioethicists. He is careful not to stereotype either community—rightly, given that bioethicists endorse positions as disparate as utilitarianism, deontology, virtue ethics, and feminist ethics, among others. Although Stramondo never explicitly mentions utilitarians or liberals, it seems probable that these are the main targets of his (...)
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  • Renewing Medicine’s basic concepts: on ambiguity.Joel Michael Reynolds - 2018 - Philosophy, Ethics, and Humanities in Medicine 13 (1):8.
    In this paper, I argue that the concept of normality in medical research and clinical practice is inextricable from the concept of ambiguity. I make this argument in the context of Edmund Pellegrino's call for a renewed reflection on medicine’s basic concepts and by drawing on work in critical disability studies concerning Deafness and body integrity identity disorder. If medical practitioners and philosophers of medicine wish to improve their understanding of the meaning of medicine as well as its concrete practice, (...)
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  • Disability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health Care.Laura Guidry-Grimes, Katie Savin, Joseph A. Stramondo, Joel Michael Reynolds, Marina Tsaplina, Teresa Blankmeyer Burke, Angela Ballantyne, Eva Feder Kittay, Devan Stahl, Jackie Leach Scully, Rosemarie Garland-Thomson, Anita Tarzian, Doron Dorfman & Joseph J. Fins - 2020 - Hastings Center Report 50 (3):28-32.
    In this essay, we suggest practical ways to shift the framing of crisis standards of care toward disability justice. We elaborate on the vision statement provided in the 2010 Institute of Medicine (National Academy of Medicine) “Summary of Guidance for Establishing Crisis Standards of Care for Use in Disaster Situations,” which emphasizes fairness; equitable processes; community and provider engagement, education, and communication; and the rule of law. We argue that interpreting these elements through disability justice entails a commitment to both (...)
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  • Disability bioethics and the commitment to equality.Laura Guidry-Grimes - 2022 - Theoretical Medicine and Bioethics 43 (4):209-220.
    Robert Veatch’s The Foundations of Justice: Why the Retarded and the Rest of Us Have Claims to Equality delves into deep questions of justice through the case of a child with disabilities. I describe what is basically right about this vision, as well as what is problematic from the standpoint of contemporary disability bioethics. From there, I dive into the notion of vulnerability that is at play in his work. He describes disability as necessarily a condition of weakness, lesser-than existence, (...)
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  • Respect for Persons in Bioethics: Towards a Human Rights-Based Account.Johan Brännmark - 2017 - Human Rights Review 18 (2):171-187.
    Human rights have increasingly been put forward as an important framework for bioethics. In this paper, it is argued that human rights offer a potentially fruitful approach to understanding the notion of Respect for Persons in bioethics. The idea that we are owed a certain kind of respect as persons is relatively common, but also quite often understood in terms of respecting people’s autonomous choices. Such accounts do however risk being too narrow, reducing some human beings to a second-class moral (...)
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  • Patients as Rights Holders.Johan Brännmark - 2017 - Hastings Center Report 47 (4):32-39.
    Autonomy and consent have been central values in Western moral and political thought for centuries. One way of understanding the bioethical models that started to develop, especially in the 1970s, is that they were about the fusion of a long-standing professional ethics with the core values underpinning modern political institutions. That there was a need for this kind of fusion is difficult to dispute, especially since the provision of health care has in most developed countries become an ever more important (...)
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  • Toward a Critical Theory of Harm: Ableism, Normativity, and Transability (On Body Integrity Identity Disorder).Joel Michael Reynolds - 2016 - APA Newsletter on Philosophy and Medicine 16 (1):37-45.
    Body Integrity Identity Disorder (BIID) is a very rare condition describing those with an intense desire or need to move from a state of ability to relative impairment, typically through the amputation of one or more limbs. In this paper, I draw upon research in critical disability studies and philosophy of disability to critique arguments based upon the principle of nonmaleficence against such surgery. I demonstrate how the action-relative concept of harm in such arguments relies upon suspect notions of biological (...)
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