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  1. Team members perspectives on conflicts in clinical ethics committees.Anika Scherer, Bernd Alt-Epping, Friedemann Nauck & Gabriella Marx - 2019 - Nursing Ethics 26 (7-8):2098-2112.
    Background:Clinical ethics committees have been broadly implemented in university hospitals, general hospitals and nursing homes. To ensure the quality of ethics consultations, evaluation should be...
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  • Ethics Debriefs and Moral Distress: What are we Doing?A. Lee de Bie, Steve Abdool, Jeremy Butler, Alexandra Campbell, Maram Hassanein, Sean Hillman, Juhee Makkar, Rochelle Maurice, Jamie Robertson, Michael J. Szego & Dave Langlois - 2023 - American Journal of Bioethics 23 (4):74-77.
    Our team at the Centre for Clinical Ethics has long been engaged in internal discussion about the purpose and value of ethics debriefs and their purported role in reducing moral distress (Morley an...
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  • Outcomes of clinical ethics support near the end of life: A systematic review.Joschka Haltaufderheide, Stephan Nadolny, Marjolein Gysels, Claudia Bausewein, Jochen Vollmann & Jan Schildmann - 2020 - Nursing Ethics 27 (3):838-854.
    Background: Clinical ethics support services have been advocated in recent decades. In clinical practice, clinical ethics support services are often requested for difficult decisions near the end of life. However, their contribution to improving healthcare has been questioned and demands for evaluation have been put forward. Research indicates that there are considerable challenges associated with defining adequate outcomes for clinical ethics support services. In this systematic review, we report findings of qualitative studies and surveys, which have been conducted to evaluate (...)
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  • Hospital ethics reflection groups: a learning and development resource for clinical practice.H. Bruun, L. Huniche, E. Stenager, C. B. Mogensen & R. Pedersen - 2019 - BMC Medical Ethics 20 (1):1-16.
    BackgroundAn ethics reflection group is one of a number of ethics support services developed to better handle ethical challenges in healthcare. The aim of this article is to evaluate the significance of ERGs in psychiatric and general hospital departments in Denmark.MethodsThis is a qualitative action research study, including systematic text condensation of 28 individual interviews and 4 focus groups with clinicians, ethics facilitators and ward managers. Short written descriptions of the ethical challenges presented in the ERGs also informed the analysis (...)
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  • Clinical ethics case consultation in a university department of cardiology and intensive care: a descriptive evaluation of consultation protocols.Michel Noutsias, Daniel Sedding, Jochen Dutzmann, Henning Rosenau, Kim P. Linoh, Nicolas Heirich, Stephan Nadolny, Jan Schildmann & Andre Nowak - 2021 - BMC Medical Ethics 22 (1):1-12.
    BackgroundClinical ethics case consultations (CECCs) provide a structured approach in situations of ethical uncertainty or conflicts. There have been increasing calls in recent years to assess the quality of CECCs by means of empirical research. This study provides detailed data of a descriptive quantitative and qualitative evaluation of a CECC service in a department of cardiology and intensive care at a German university hospital.MethodsSemi-structured document analysis of CECCs was conducted in the period of November 1, 2018, to May 31, 2020. (...)
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  • Framework for evaluation research on clinical ethical case interventions: the role of ethics consultants.Joschka Haltaufderheide, Stephan Nadolny, Jochen Vollmann & Jan Schildmann - 2022 - Journal of Medical Ethics 48 (6):401-406.
    Evaluation of clinical ethical case consultations has been discussed as an important research task in recent decades. A rigid framework of evaluation is essential to improve quality of consultations and, thus, quality of patient care. Different approaches to evaluate those services appropriately and to determine adequate empirical endpoints have been proposed. A key challenge is to provide an answer to the question as to which empirical endpoints—and for what reasons—should be considered when evaluating the quality of a service. In this (...)
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  • Lessons learned from implementing a responsive quality assessment of clinical ethics support.Eva M. Van Baarle, Marieke C. Potma, Maria E. C. van Hoek, Laura A. Hartman, Bert A. C. Molewijk & Jelle L. P. van Gurp - 2019 - BMC Medical Ethics 20 (1):1-11.
    BackgroundVarious forms of Clinical Ethics Support (CES) have been developed in health care organizations. Over the past years, increasing attention has been paid to the question of how to foster the quality of ethics support. In the Netherlands, a CES quality assessment project based on a responsive evaluation design has been implemented. CES practitioners themselves reflected upon the quality of ethics support within each other’s health care organizations. This study presents a qualitative evaluation of this Responsive Quality Assessment (RQA) project.MethodsCES (...)
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  • Implementing ethics reflection groups in hospitals: an action research study evaluating barriers and promotors.Henriette Bruun, Reidar Pedersen, Elsebeth Stenager, Christian Backer Mogensen & Lotte Huniche - 2019 - BMC Medical Ethics 20 (1):49.
    An ethics reflection group is one of a range of ethics support services developed to better handle ethical challenges in healthcare. The aim of this article is to evaluate the implementation process of interdisciplinary ERGs in psychiatric and general hospital departments in Denmark. To our knowledge, this is the first study of ERG implementation to include both psychiatric and general hospital departments. The implementation and evaluation strategies are inspired by action research, using a qualitative approach and systematic text condensation of (...)
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  • Defining and categorizing outcomes of Moral Case Deliberation (MCD): concept mapping with experienced MCD participants.Janine C. de Snoo-Trimp, Bert Molewijk & Henrica C. W. de Vet - 2018 - BMC Medical Ethics 19 (1):1-14.
    To support healthcare professionals in dealing with ethically difficult situations, Clinical Ethics Support (CES) services like Moral Case Deliberation (MCD) are increasingly implemented. To assess the impact of CES, it is important to evaluate outcomes. Despite general claims about outcomes from MCD experts and some qualitative research, there exists no conceptual analysis of outcomes yet. Therefore, the aim of this study was to systematically define and categorize MCD outcomes. An additional aim was to compare these outcomes with the outcomes in (...)
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  • Impact of moral case deliberation in healthcare settings: a literature review.Maaike M. Haan, Jelle L. P. van Gurp, Simone M. Naber & A. Stef Groenewoud - 2018 - BMC Medical Ethics 19 (1):85.
    An important and supposedly impactful form of clinical ethics support is moral case deliberation. Empirical evidence, however, is limited with regard to its actual impact. With this literature review, we aim to investigate the empirical evidence of MCD, thereby a) informing the practice, and b) providing a focus for further research on and development of MCD in healthcare settings. A systematic literature search was conducted in the electronic databases PubMed, CINAHL and Web of Science. Both the data collection and the (...)
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  • It’s not all about moral reasoning: Understanding the content of Moral Case Deliberation.Mia Svantesson, Marit Silén & Inger James - 2018 - Nursing Ethics 25 (2):212-229.
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  • Relational autonomy in the care of the vulnerable: health care professionals’ reasoning in Moral Case Deliberation.Kaja Heidenreich, Anders Bremer, Lars Johan Materstvedt, Ulf Tidefelt & Mia Svantesson - 2018 - Medicine, Health Care and Philosophy 21 (4):467-477.
    In Moral Case Deliberation, healthcare professionals discuss ethically difficult patient situations in their daily practice. There is a lack of knowledge regarding the content of MCD and there is a need to shed light on this ethical reflection in the midst of clinical practice. Thus, the aim of the study was to describe the content of healthcare professionals’ moral reasoning during MCD. The design was qualitative and descriptive, and data consisted of 22 audio-recorded inter-professional MCDs, analysed with content analysis. The (...)
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  • ‘It’s like sailing’ – Experiences of the role as facilitator during moral case deliberation.Dara Rasoal, Annica Kihlgren & Mia Svantesson - 2017 - Clinical Ethics 12 (3):135-142.
    BackgroundMoral case deliberation is one form of clinical ethics support, and there seems to be different ways of facilitating the dialogue.PurposeThis paper aimed to explore Swedish facilitators' experiences of their role in moral case deliberations.MethodThis study had a qualitative approach with explorative design. Semi-structured interviews with eleven MCD facilitators were conducted. Their experiences were analyzed using thematic analysis.ResultBeing a facilitator was understood through the metaphor of sailing: against the wind or with it. The role was likened to a sailor's set (...)
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  • Working towards implementing moral case deliberation in mental healthcare: Ongoing dialogue and shared ownership as strategy.Froukje Weidema, Hans van Dartel & Bert Molewijk - 2016 - Clinical Ethics 11 (2-3):54-62.
    The design and implementation of clinical ethics support is attracting increasing attention. Often, the characteristics and aims of clinical ethics support are translated into practice in a top-down, programmatic manner. These characteristics and aims then remain a constant feature of the clinical ethics support functions within the organisation. We argue that the characteristics of clinical ethics support should be reflected in the implementation strategy. Inspired by dialogical, pragmatic and hermeneutic perspectives on clinical ethics support in general and moral case deliberation (...)
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  • Clinical Ethics Support for Healthcare Personnel: An Integrative Literature Review.Dara Rasoal, Kirsti Skovdahl, Mervyn Gifford & Annica Kihlgren - 2017 - HEC Forum 29 (4):313-346.
    This study describes which clinical ethics approaches are available to support healthcare personnel in clinical practice in terms of their construction, functions and goals. Healthcare personnel frequently face ethically difficult situations in the course of their work and these issues cover a wide range of areas from prenatal care to end-of-life care. Although various forms of clinical ethics support have been developed, to our knowledge there is a lack of review studies describing which ethics support approaches are available, how they (...)
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  • Ethics case reflection sessions: Enablers and barriers.Cecilia Bartholdson, Bert Molewijk, Kim Lützén, Klas Blomgren & Pernilla Pergert - 2018 - Nursing Ethics 25 (2):199-211.
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  • Unmet Needs for Clinical Ethics Support Services in Nurse.S. Kim, M. Seo & D. R. Kim - forthcoming - Nursing Ethics:096973301665431.
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  • Managing Ethical Difficulties in Healthcare: Communicating in Inter-professional Clinical Ethics Support Sessions.Catarina Fischer Grönlund, Vera Dahlqvist, Karin Zingmark, Mikael Sandlund & Anna Söderberg - 2016 - HEC Forum 28 (4):321-338.
    Several studies show that healthcare professionals need to communicate inter-professionally in order to manage ethical difficulties. A model of clinical ethics support inspired by Habermas’ theory of discourse ethics has been developed by our research group. In this version of CES sessions healthcare professionals meet inter-professionally to communicate and reflect on ethical difficulties in a cooperative manner with the aim of reaching communicative agreement or reflective consensus. In order to understand the course of action during CES, the aim of this (...)
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  • CQ Sources/Bibliography.Bette Anton - 2010 - Cambridge Quarterly of Healthcare Ethics 19 (2):230-231.
    These CQ Sources were compiled by Bette Anton.
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  • Solving work-related ethical problems.Laura Laukkanen, Riitta Suhonen & Helena Leino-Kilpi - 2016 - Nursing Ethics 23 (8):838-850.
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  • Ethics rounds.Marit Silén, Mia Ramklint, Mats G. Hansson & Kristina Haglund - 2016 - Nursing Ethics 23 (2):203-213.
    Background:Ethics rounds are one way to support healthcare personnel in handling ethically difficult situations. A previous study in the present project showed that ethics rounds did not result in significant changes in perceptions of how ethical issues were handled, that is, in the ethical climate. However, there was anecdotal evidence that the ethics rounds were viewed as a positive experience and that they stimulated ethical reflection.Aim:The aim of this study was to gain a deeper understanding of how the ethics rounds (...)
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  • Outcomes of Moral Case Deliberation - the development of an evaluation instrument for clinical ethics support (the Euro-MCD).Mia Svantesson, Jan Karlsson, Pierre Boitte, Jan Schildman, Linda Dauwerse, Guy Widdershoven, Reidar Pedersen, Martijn Huisman & Bert Molewijk - 2014 - BMC Medical Ethics 15 (1):30.
    Clinical ethics support, in particular Moral Case Deliberation, aims to support health care providers to manage ethically difficult situations. However, there is a lack of evaluation instruments regarding outcomes of clinical ethics support in general and regarding Moral Case Deliberation (MCD) in particular. There also is a lack of clarity and consensuses regarding which MCD outcomes are beneficial. In addition, MCD outcomes might be context-sensitive. Against this background, there is a need for a standardised but flexible outcome evaluation instrument. The (...)
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  • Implicit and Explicit Clinical Ethics Support in The Netherlands: A Mixed Methods Overview Study. [REVIEW]Linda Dauwerse, Froukje Weidema, Tineke Abma, Bert Molewijk & Guy Widdershoven - 2014 - HEC Forum 26 (2):95-109.
    Internationally, the prevalence of clinical ethics support (CES) in health care has increased over the years. Previous research on CES focused primarily on ethics committees and ethics consultation, mostly within the context of hospital care. The purpose of this article is to investigate the prevalence of different kinds of CES in various Dutch health care domains, including hospital care, mental health care, elderly care and care for people with an intellectual disability. A mixed methods design was used including two survey (...)
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  • Morality in the mundane: Specific needs for ethics support in elderly care.Linda Dauwerse, Sandra van der Dam & Tineke Abma - 2012 - Nursing Ethics 19 (1):91-103.
    Ethics support is called for to improve the quality of care in elderly institutions. Various forms of ethics support are presented, but the needs for ethics support remain unknown. Using a mixed-methods design, this article systematically investigates the specific needs for ethics support in elderly care. The findings of two surveys, two focus groups and 17 interviews demonstrate that the availability of ethics support is limited. There is a need for ethics support, albeit not unconditionally. Advice-based forms of ethics support (...)
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  • Goals of Clinical Ethics Support: Perceptions of Dutch Healthcare Institutions. [REVIEW]L. Dauwerse, T. A. Abma, B. Molewijk & G. Widdershoven - 2013 - Health Care Analysis 21 (4):323-337.
    In previous literature, ethicists mention several goals of Clinical Ethics Support (CES). It is unknown what key persons in healthcare institutions see as main–—and sub-goals of CES. This article presents the goals of CES as perceived by board members and members of ethics support staff. This is part of a Dutch national research using a mixed methods design with questionnaires, focus groups and interviews. Quantitative and qualitative data were analyzed and combined in an iterative process. Four main clusters of goals (...)
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  • Need for ethics support in healthcare institutions: views of Dutch board members and ethics support staff.L. Dauwerse, T. Abma, B. Molewijk & G. Widdershoven - 2011 - Journal of Medical Ethics 37 (8):456-460.
    Next SectionObjective The purpose of this article is to investigate the need for ethics support in Dutch healthcare institutions in order to understand why ethics support is often not used in practice and which factors are relevant in this context. Methods This study had a mixed methods design integrating quantitative and qualitative research methods. Two survey questionnaires, two focus groups and 17 interviews were conducted among board members and ethics support staff in Dutch healthcare institutions. Findings Most respondents see a (...)
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  • Interprofessional ethics rounds concerning dialysis patients: staff's ethical reflections before and after rounds.M. Svantesson, A. Anderzen-Carlsson, H. Thorsen, K. Kallenberg & G. Ahlstrom - 2008 - Journal of Medical Ethics 34 (5):407-413.
    Objective: To evaluate whether ethics rounds stimulated ethical reflection. Methods: Philosopher-ethicist-led interprofessional team ethics rounds concerning dialysis patient care problems were applied at three Swedish hospitals. The philosophers were instructed to stimulate ethical reflection and promote mutual understanding between professions but not to offer solutions. Questionnaires directly before and after rounds were answered by 194 respondents. The analyses were primarily content analysis with Boyd’s framework but were also statistical in nature. Findings: Seventy-six per cent of the respondents reported a moderate (...)
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  • CQ Sources/Bibliography.Bette Anton - 1999 - Cambridge Quarterly of Healthcare Ethics 8 (4):348-350.
    These CQ Sources were compiled by Bette Anton.
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  • An empirical investigation into moral challenges of (breaching) confidentiality and needs for ethics support when facilitating moral case deliberation.W. M. R. Ligtenberg, A. C. Molewijk & M. M. Stolper - 2024 - International Journal of Ethics Education 9 (1):79-104.
    Ethics support staff help others to deal with moral challenges. However, they themselves can also experience moral challenges such as issues regarding (breaching) confidentiality when practicing ethics support. Currently there is no insight in these confidentiality issues and also no professional guidance for dealing with them. To gain insight into moral challenges related to Moral Case Deliberation (MCD), we studied a) beliefs and experiences of MCD facilitators regarding breaching confidentiality, b) considerations for (not) breaching confidentiality, and c) needs for an (...)
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  • Ethics rounds in the ambulance service: a qualitative evaluation.Catharina Frank, Andreas Rantala, Anders Svensson, Anders Sterner, Jessica Green, Anders Bremer & Bodil Holmberg - 2024 - BMC Medical Ethics 25 (1):1-10.
    Background It is a common ethical challenge for ambulance clinicians to care for patients with impaired decision-making capacities while assessing and determining the degree of decision-making ability and considering ethical values. Ambulance clinicians’ ethical competence seems to be increasingly important in coping with such varied ethical dilemmas. Ethics rounds is a model designed to promote the development of ethical competence among clinicians. While standard in other contexts, to the best of our knowledge, it has not been applied within the ambulance (...)
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  • CQ Sources/Bibliography.Bette Anton - 2010 - Cambridge Quarterly of Healthcare Ethics 19 (3):402-406.
    These CQ Sources were compiled by Bette Anton.
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  • Striving for good nursing care.Mona Pettersson, Mariann Hedström & Anna T. Höglund - 2014 - Nursing Ethics 21 (8):902-915.
    Background:Within oncology and hematology care, patients are sometimes considered to have such a poor prognosis that they can receive a do not resuscitate order from the physician responsible, stipulating that neither basic nor advanced coronary pulmonary rescue be performed in the event of a cardiac arrest. Studies on do not resuscitate decisions within oncology and hematology units, focusing on the specific role of the nurse in relation to these decisions, are scarce.Objective:The aim of this study was to investigate hematology and (...)
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  • Procedures for clinical ethics case reflections: an example from childhood cancer care.Cecilia Bartholdson, Pernilla Pergert & Gert Helgesson - 2014 - Clinical Ethics 9 (2-3):87-95.
    The procedures for structuring clinical ethics case reflections in a childhood cancer care setting are presented, including an eight-step model. Four notable characteristics of the procedures are: members of the inter-professional health care team, not external experts, taking a leading role in the reflections; patients or relatives not being directly involved; the model explicitly addressing values and moral principles instead of focussing exclusively on the interests of involved parties; using a case-based rather than principle-based method. By discusing the advantages and (...)
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  • Physicians' and nurses' expectations and objections toward a clinical ethics committee.Maximiliane Jansky, Gabriella Marx, Friedemann Nauck & Bernd Alt-Epping - 2013 - Nursing Ethics 20 (7):0969733013478308.
    The study aimed to explore the subjective need of healthcare professionals for ethics consultation, their experience with ethical conflicts, and expectations and objections toward a Clinical Ethics Committee. Staff at a university hospital took part in a survey (January to June 2010) using a questionnaire with open and closed questions. Descriptive data for physicians and nurses (response rate = 13.5%, n = 101) are presented. Physicians and nurses reported similar high frequencies of ethical conflicts but rated the relevance of ethical (...)
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  • What actions promote a positive ethical climate? A critical incident study of nurses' perceptions.M. Silen, S. Kjellstrom, L. Christensson, B. Sidenvall & M. Svantesson - 2012 - Nursing Ethics 19 (4):501-512.
    Few qualitative studies explore the phenomenon of positive ethical climate and what actions are perceived as promoting it. Therefore, the aim of this study was to explore and describe actions that acute care ward nurses perceive as promoting a positive ethical climate. The critical incident technique was used. Interviews were conducted with 20 nurses at wards where the ethical climate was considered positive, according to a previous study. Meeting the needs of patients and next of kin in a considerate way, (...)
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