This article presents a critical phenomenology of embodiment in radical democratic struggles, focusing on racialized citizens inhabiting and navigating public spaces and on anti-racist protests. It contrasts the notion of the precarious body, central to critical theorists like Judith Butler, with an alternative phenomenological understanding, locating the political significance of the body in spontaneous movement (Arendt) and competence (Merleau-Ponty). Attending to either precariousness or mobile-capable bodies reveals distinct dimensions of radical democratic struggles. While precariousness addresses the unequal distribution of social-material (...) conditions, it tends to overshadow the shared lived experience of freedom among citizens countering inhibitions of free movement, often motivated by their disproportionate exposure to precarious conditions in the first place. From a phenomenological perspective, public action is permitted by capable and mobile bodies. It is argued that public space opens the power of “we-can” bodies by soliciting citizens' movement among others and their engagement in shared projects, according to their bodily capacities. Pluralistic interaction, aiming to maintain or create free spaces of movement, is presented as the political practice of freedom par excellence, exemplified by radical democratic walking practices in the Black civil rights movement. (shrink)

This short encyclopedia entry defines the concept of the normate.

In 2016, Colin Kaepernick, a quarterback for the San Francisco 49ers, remained seated during the national anthem in order to protest racial injustice and police brutality against African-Americans. After consulting with National Football League and military veteran Nate Boyer, Kaepernick switched to taking a knee during the anthem for the remainder of the season. Several NFL players and other professional athletes subsequently adopted this gesture. This article brings together complementary Confucian and phenomenological analyses to elucidate the significance of Kaepernick’s gesture, (...) and in the process provide a phenomenological characterization of the connection between the Confucian notions of sagehood and ritual. Kaepernick’s gesture subverts the anthem ritual from within while simultaneously remaining faithful to the ideals it is meant to express. Furthermore, it institutes a new bodily form of patriotic self-expression compatible with both American and Confucian ideals. (shrink)

This article experiments with multimedia storytelling to re-vision difference outside biomedical and humanistic frames by generating new understandings of living dis/artfully with illness. We present and analyze seven short videos created by women and trans people living with illness as part of an arts-based research project that aimed to speak back to hegemonic concepts of disability that create barriers to healthcare.1 We call for a welcoming in of disability studies’ disruptive and re-imaginative orientations to bodily difference to unsettle medicine’s humanistic (...) accounts. In turn, we advance medical post-humanistic approaches that call on disability studies to re-embody its theories and approaches. (shrink)

Phenomenology provides a method for disability theorists to describe embodied subjectivity lacking within the social model of disability. Within the literature on body integrity identity disorder (BIID), dominant narratives of disability are influential, individual bodies are considered in isolation, and experiences of disabled people are omitted. Research on BIID tends to incorporate an individualist ontology. In this article, I argue that Merleau-Ponty's conceptualization of “being in the world,” which recognizes subjectivity as embodied and intersubjective, provides a better starting point for (...) research describing the experiences of those with BIID and amputees. (shrink)

This paper will interpret Judith Butler’s theory of performativity and materialization as a theory of identity, and so put it into dialogue with a phenomenological account of habit formation. The goal is to argue that identity is developed already at a bodily level and that this takes place via the processes of habit formation. The constitution of subjectivity, in other words, requires at the most basic level some kind of bodily performativity. What follows intends to draw out the concept of (...) ‘the body’ in Butler’s work, the role of which is surprisingly meagre given her clear favour of language signification in the elaboration of her theory of performativity. Alternatively, this paper will provide a phenomenology of habit formation that re-introduces the body not as thematic materiality, but as lived materiality. The body will therefore be conceived as something which is already skilful and creative, sensitive and vulnerable, and ultimately, as Butler anticipates, responsive to the intertwinement of individual and social aspects of identity formation. In this regard, I will argue for a performative theory of (bodily) habitual identity. (shrink)

I argue that there is an affective injustice in gendered and racialized oppression. To account for this, we must deny the opposition of affect and intentionality often assumed in the philosophy of emotion and the affective turn: while affect and intentionality are not opposed in principle, affective intentionality may be refused uptake in oppressive practices. In section 1, I read Merleau‐Ponty’s theory of the body schema as a theory of affect that accommodates my account of affective injustice and aligns with (...) accounts of affect transmission and circulation in feminist philosophies of the affective turn. This is crucial for understanding Fanon’s contribution to the theory of the body schema, in which it is susceptible to historical‐racial “affective disorders.” In sections 2–4, I distinguish three types of affective injustice: affective marginalization, exploitation, and violence. In section 2 I develop an intersectional feminist account of this distinction drawing on Lorde and Lugones and raise questions about the limits of framing the issue of affective injustice in terms of intentionality as opposed to a more psychoanalytic conceptual vocabulary that accommodates the displacement of affective force. In sections 3 and 4, I explore these affective injustices through an analysis of Fanonian concepts, showing how the theory of the body schema can accommodate not only affective intentionality but also the oppressive disjunction of affect and intentionality, as well as forms of affective injustice that exceed the oppressive disabling of sense‐making and involve the exploitative and violent displacement of affective force. (shrink)

This is the introduction to the inaugural issue of The Journal of Philosophy of Disability.

Maurice Merleau-Ponty’s work draws our attention to how the body is always our way of having a world and never merely a thing in the world. Our conception of the body must take account of our cultures, our historically located sciences, and our interpersonal relations and cannot reduce the body to a biological given. Normality, Abnormality, and Pathology in Merleau-Ponty takes up Merleau-Ponty’s phenomenology of the body to explore the ideas of normality, abnormality, and pathology. Focusing on the lived experiences (...) of various styles of embodiment, the book challenges our usual conceptions of normality and abnormality and shows how seemingly objective scientific research, such as the study of pathological symptoms, is inadequate to the phenomena it purports to comprehend. The book offers new insights into our understandings of health and illness, ability and disability, and the scientific and cultural practices that both enable and limit our capacity for diverse experiences. (shrink)

This paper attempts to show that an expansive normative vision can be drawn from Hegel's texts, one whose scope significantly exceeds the anthropocentric model presented in the ‘objective spirit’ parts of his system. This expansion of normativity is linked to an expansive vision of relationality underpinning Hegel's model of ‘concrete freedom’. In order to put into sharper relief the links between expansive relationality and normativity, the late thinking of Maurice Merleau-Ponty is mobilized as a heuristic contrasting point. In the ‘subjective (...) spirit’ sections of theEncyclopaediaare found insights that anticipate key features of Merleau-Ponty's notion of ‘flesh’. Locating these insights allows us to detect the underlying thread this paper seeks to mine. Hegel's own ‘theory of flesh’ culminates in the notion of ‘constitutive attachments’, the idea that the content of subjectivity is made up of all the bonds linking the human subject to her surrounding worlds and objects. Since freedom for Hegel is ‘being with’, and since normative demands arise from the different ways in which freedom is concretely realized, it would seem that Hegel's relational conception of subjectivity should lead to an equally expansive conception of normativity. Against the objection that Hegel denied any normative status to non-human beings, the paper points to passages in his work, notably his account of aesthetic judgement and natural beauty, which appear to suggest the opposite. (shrink)

This dissertation contributes to the development of philosophy of disability by drawing on disability studies, feminist philosophy, phenomenology, and philosophy of biology in order to contest epistemic and ontological assumptions about disability within biomedical ethics as well as within philosophical work on the body, demonstrating how philosophical inquiry is radically transformed when experiences of disability are taken seriously. In the first two chapters, I focus on epistemological and ontological concerns surrounding disability within biomedical ethics. Although disabled people and their advocates (...) have been quite vocal regarding their views on disability and in critiquing bioethicists’ approaches to issues that affect them, the interests, knowledge, and experiences of disabled people have had minimal impact on discussions within biomedical ethics textbooks. The risks of making problematic assumptions about disability are high within this subfield insofar as bioethicists impact practices within medical facilities, public policy, and, through student engagement with their texts in biomedical ethics courses, the views of potential health care professionals. All of these, in turn, affect the care provided to disabled people and potential/actual parents of disabled children. Chapter three raises ontological issues related to disability theory, examining the role of the impairment/disability distinction in framing discussions of the body as well as the status of experience. I discuss two approaches to incorporating subjective experiences of the body in disability, arguing that neither is sufficient. I examine debates within feminist theory on questions related to experience. I argue that a feminist phenomenological approach that builds on Merleau-Ponty’s work offers the best way to address bodily experiences in disability theory. The assumptions that disability theorists and Merleau-Ponty make about disability are often at odds. Chapter four points out the ableism in Merleau-Ponty’s use of a case study and considers some of the oversights within Phenomenology of Perception. In spite of my critique, I argue that his approach to phenomenology—with appropriate modifications—is useful not only for theorizing the experiences of disabled people but also for addressing other types of marginalized embodiment. Chapter five applies this method to body integrity identity disorder (BIID), arguing that combining Merleau-Ponty’s insights with those of disability theory allows us to address lived experiences of BIID and to identify assumptions about disability within research on this condition. (shrink)

Demonstrates the unique, pervasive, and overwhelmingly important role of other people within our lived experience. Drawing on the original phenomenological work of Maurice Merleau-Ponty, Edmund Husserl, Simone de Beauvoir, and John Russon, as well as recent research in child psychology, The Other in Perception argues for perception’s inherently existential significance: we always perceive a world and not just objective facts. The world is the rich domain of our personal and interpersonal lives, and central to this world is the role of (...) other people. We are “paired” with others such that our perception is really the enactment of a coinhabiting of a shared world. These relations with others shape the very way in which we perceive our world. Susan Bredlau explores two uniquely formative domains in which our pairing relations with others are particularly critical: childhood development and sexuality. It is through formative childhood experience that the essential, background structures of our world are instituted, which has important consequences for our developed perceptual life. Sexuality is an analogous domain of formative intersubjective experience. Taken as a whole, Bredlau demonstrates the unique, pervasive, and overwhelmingly important role of other people within our lived experience. (shrink)

Distinguishing between normal and non-normal cases of perception and motricity is a key part of Merleau-Ponty’s methodology in Phenomenology of Perception. Many feminist philosophers and disability scholars have criticized this use of the normal/nonnormal binary and the presumptions behind it. Others have embraced his methodology and noted its consonance with contemporary feminist, disability, and philosophy of race scholarship. In this paper, I present my own interpretation of what Merleau-Ponty means by “normal”. I draw on Rosemarie Garland-Thomson’s concept of “fit” and (...) also draw attention to the broader existential-phenomenological framework within which Merleau-Ponty is working. This re-framing of the term does two things. First, it provides a clear picture of the hidden methodology at work in Phenomenology of Perception. Second, it offers the possibility of grounding the concept of “fit” in an existential-phenomenological conception of the self. (shrink)

The diagnosis of idiopathic short stature refers to children who are considerably shorter than average without any identified medical reason. The US Food and Drug Administration authorised marketing of recombinant human growth hormone for ISS in 2003, while the European Medicines Agency refused it in 2007. This paper examines the arguments for these decisions as detailed in selected FDA and EMA documents. It combines argumentative analysis with an approach to policy analysis called ‘What’s the problem represented to be’. It argues (...) that the FDA presents its approval as an argument for equity of access to the treatment, describing short stature as a potential disadvantage, and assuming that height normalisation is a clinically meaningful result. The EMA, instead, refuses marketing authorisation with an argument that there is an imbalance of risks and benefits, describing ISS as a healthy condition, and arguing that hGH should provide some psychosocial and/or quality of life benefits to children with ISS other than height gain. This paper then discusses how these arguments could be read through different models of disability, particularly through the medical model of disability and the relational, experiential, and cultural understandings of disability. (shrink)

The general aim of this paper is to provide insight into the relevance of critical phenomenology for the study of the patient-provider relationship in health care systems in U.S. jails, prisons, and detention facilities. In particular, I utilize tools from the work of scholars studying phenomenological approaches to health care and structural forms of oppression to analyze several harms that arise from the provision of medical care under the punitive constraints of carceral facilities.

The paper discusses two recent approaches to schizophrenia, a phenomenological and a neuroscientific approach, illustrating how new directions in philosophy and cognitive science can elaborate accounts of psychopathologies of the self. It is argued that the notion of the minimal and bodily self underlying these approaches is still limited since it downplays the relevance of social interactions and relations for the formation of a coherent sense of self. These approaches also illustrate that we still lack an account of how 1st (...) and 3rd person observations can fruitfully go together in an embodied account of disorders of the self. Two concepts from enactive cognitive science are introduced, the notions of autonomy and sense-making. Based on these, a new proposal for an enactive approach to psychopathologies of the self is outlined that integrates 1st and 3rd person perspectives, while strongly emphasising the role of social interactions in the formation of self. It is shown how the enactive framework might serve as a basis for an alternative understanding of disorders of the self such as schizophrenia, as a particular form of socially constituted self-organisation. (shrink)

This paper expresses wonder about how bodies in motion can lead towards an understanding of lived meaning in silent lifeworlds. In such lifeworlds, expressions are without words, pre-symbolic, and thus embodied. To address the wonder, phenomenological philosophy and phenomenological methodology were employed to frame an approach that acknowledges lives with disabilities as qualitatively different from, and yet not inferior to, nor less imbued with meaning than, lives without.The paper focuses on spatiality as decisive in determining possibilities for persons to express (...) their perspectives through a wide range of movements. Movements take place in the continuum between the spatiality of positions as objective bodily sensations and the spatiality of situations as embodied interactions with others and the world. Thus, in order to access the perspectives of students with severe and multiple disabilities, transitions between and movements within different spaces are examined.Approaching an educational everyday life where students are restricted in the possibilities available to them for moving in and out of spaces, the study reported points to the importance of recognizing the relationship between subjective movements and the spaces enveloping them as what creates a spatiality that is meaningful to the subject. It is accordingly suggested that choosing which spaces to include in educational contexts are formative choices that express a view of humanity. The paper also emphasizes the importance of recognizing temporality as a pedagogical resource when detecting and acting upon students’ changing expressions. (shrink)

The enactive approach to cognition and consciousness offers a valuable alternative to the standard approaches dominant in the sciences of mind. As an embodied account, enactivism incorporates theoretical perspectives on the body from phenomenology, cognitive science, and biology, which provides a unique interpretation of embodiment with critical insight into the embodied nature of cognition and consciousness. Nonetheless, I argue that several revisions are required to make enactivism viable within the context of the sciences of mind. The enactive account of subjectivity (...) is problematic, in light of arguments developed in Maurice Merleau-Ponty’s later texts, because it is implicitly dualistic. I demonstrate that this implicit dualism can be resolved by incorporating the conceptual framework of flesh that Merleau-Ponty introduces in his later works. However, this new framework presents a challenge of understanding how body can break with world in experience. I provide a solution to this problem by way of developing revisions to the enactive account of cognition, which I argue is problematic in its generality. I offer a new interpretation of enactive cognition modelled on structural flexibility that overcomes the difficulties of the previous account. These revisions to enactive cognition provide a way of understanding how body can break with world, resulting in an account of the enactive body as expressing a massive integration of its different ways of being in the world, as cognitive, conscious, affective, and agentive. These revisions provide a more consistent and plausible articulation of the enactive approach that is more amenable to guiding the sciences of mind. (shrink)

In recent years, facial difference is increasingly on the public and academic agenda. This is evidenced by the growing public presence of individuals with an atypical face, and the simultaneous emergence of research investigating the issues associated with facial variance. The scholarship on facial difference approaches this topic either through a medical and rehabilitation perspective, or a psycho-social one. However, having a different face also encompasses an embodied dimension. In this paper, we explore this embodied dimension by interpreting the stories (...) of individuals with facial limb absence against the background of phenomenological theories of the body, illness and disability. Our findings suggest that the atypical face disrupts these individuals’ engagement with everyday projects when it gives rise to disruptive perceptions, sensations, and observations. The face then ceases to be the absent background to perception, and becomes foregrounded in awareness. The disruptions evoked by facial difference call for adjustments: as they come to terms with their altered face, the participants in our study gradually develop various new bodily habits that re-establish their face’s absence, or relate to its disruptive presence. It is through these emergent habits that facial difference comes to be embodied. By analyzing the everyday experiences of individuals with facial limb absence, this article provides a much-needed exploration of the embodied aspects of facial difference. It also exemplifies how a phenomenological account of illness and disability can do justice both to the impairments and appearance issues associated with atypical embodiment. (shrink)