Dissertation, University College London (
2014)
Copy
BIBTEX
Abstract
This thesis discusses how societies should allocate clinical care resources.
The first aim of the thesis is to defend the idea that clinical care resource
allocation is a matter for deliberative democratic procedures. I argue that
deliberative democracy is justified because of its ability to implement equal
respect and autonomy. Furthermore, I address several in-principle objections
to the project of applying deliberative democracy to clinical care resource
allocation. Most notably, I respond to the narrow view of the scope of
deliberative democracy and the critiques of explicit rationing.
The second aim of the thesis is to determine what is required by
deliberative democracy in clinical care resource allocation. I identify the
general requirements that resource allocation agencies should meet, namely
public reason, public involvement, transparency, accuracy and revisability. I
then examine what is required by deliberative democracy with regard to two
particularly salient specific topics, namely the substantive values that should
govern resource allocation and the involvement of scientific experts in
decision-making.
I demonstrate that public reason imposes severe constraints on the
substantive values that should be employed. Most of these constraints are
rooted in the idea that, under a regime of scarcity, public reason requires that
resources be allocated so as to minimise the strongest complaint anyone
may have. Out of the variety of values that are commonly proposed as
relevant, only priority to the worst-off, ability to benefit, specialness of clinical care and cost are consistent with public reason. Turning to expert involvement, I argue that deliberative democracy can overcome several
formidable threats, such as the opacity of expert opinions to laypersons and
the tendency to hide uncertainty and disagreement from the public. I also
discuss how my proposals on substantive values and expert involvement
could be implemented, in order to add to the plausibility of my theory.