- Using digital technologies to engage with medical research: views of myotonic dystrophy patients in Japan.Victoria Coathup, Harriet J. A. Teare, Jusaku Minari, Go Yoshizawa, Jane Kaye, Masanori P. Takahashi & Kazuto Kato - 2016 - BMC Medical Ethics 17 (1):51.details
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Research participants’ perceptions and views on consent for biobank research: a review of empirical data and ethical analysis.Flavio D’Abramo, Jan Schildmann & Jochen Vollmann - 2015 - BMC Medical Ethics 16 (1):60.details
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Challenges of web-based personal genomic data sharing.Pascal Borry & Mahsa Shabani - 2015 - Life Sciences, Society and Policy 11 (1):1-13.details
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The evolution of withdrawal: negotiating research relationships in biobanking.Karen Melham, Linda Briceno Moraia, Colin Mitchell, Michael Morrison, Harriet Teare & Jane Kaye - 2014 - Life Sciences, Society and Policy 10 (1).details
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DNA databanks and consent: A suggested policy option involving an authorization model. [REVIEW]Timothy Caulfield, Ross Upshur & Abdallah Daar - 2003 - BMC Medical Ethics 4 (1):1-4.details
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Autonomy is a Right, Not a Feat: How Theoretical Misconceptions have Muddled the Debate on Dynamic Consent to Biobank Research.Linus Johnsson & Stefan Eriksson - 2016 - Bioethics 30 (7):471-478.details
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Broad Consent for Research With Biological Samples: Workshop Conclusions.Christine Grady, Lisa Eckstein, Ben Berkman, Dan Brock, Robert Cook-Deegan, Stephanie M. Fullerton, Hank Greely, Mats G. Hansson, Sara Hull, Scott Kim, Bernie Lo, Rebecca Pentz, Laura Rodriguez, Carol Weil, Benjamin S. Wilfond & David Wendler - 2015 - American Journal of Bioethics 15 (9):34-42.details
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Human Tissue Samples and Ethics: – Attitudes of the General Public in Sweden to Biobank Research.Tore Nilstun & Göran Hermerén - 2005 - Medicine, Health Care and Philosophy 9 (1):81-86.details
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Informed consent, participation in, and withdrawal from a population based cohort study involving genetic analysis.K. Matsui - 2005 - Journal of Medical Ethics 31 (7):385-392.details
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Improving understanding in the research informed consent process: a systematic review of 54 interventions tested in randomized control trials. [REVIEW]Adam Nishimura, Jantey Carey, Patricia J. Erwin, Jon C. Tilburt, M. Hassan Murad & Jennifer B. McCormick - 2013 - BMC Medical Ethics 14 (1):28.details
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Broadening consent--and diluting ethics?B. Hofmann - 2009 - Journal of Medical Ethics 35 (2):125-129.details
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Going Beyond the False Dichotomy of Broad or Specific Consent: A Meta-Perspective on Participant Choice in Research Using Human Tissue.Thomas Ploug & Søren Holm - 2015 - American Journal of Bioethics 15 (9):44-46.details
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