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  1. Bodily Differences and Collective Identities: the Politics of Gender and Race in Biomedical Research in the United States.Steven Epstein - 2004 - Body and Society 10 (2-3):183-203.
    As a consequence of recent changes, health research policies in the United States mandate the inclusion of women and members of racial and ethnic minority groups as experimental subjects in biomedical research. This article analyzes debates that underlie these policies and that concern the medical management of bodies, groups, identities and differences. Much of the uncertainty surrounding these new policies reflects the fact that researchers, physicians, policy makers and health advocates have adopted competing, and often murky, understandings of the nature (...)
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  • The new production of knowledge: the dynamics of science and research in contemporary societies.Michael Gibbons (ed.) - 1994 - Thousand Oaks, Calif.: SAGE Publications.
    As we approach the end of the twentieth century, the ways in which knowledge--scientific, social, and cultural--is produced are undergoing fundamental changes. In The New Production of Knowledge, a distinguished group of authors analyze these changes as marking the transition from established institutions, disciplines, practices, and policies to a new mode of knowledge production. Identifying such elements as reflexivity, transdisciplinarity, and heterogeneity within this new mode, the authors consider their impact and interplay with the role of knowledge in social relations. (...)
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  • Community-Based Research and Changes in the Research Landscape.Peter N. Levesque & Jill Chopyak - 2002 - Bulletin of Science, Technology and Society 22 (3):203-209.
    This article argues that community-based research (CBR)—research that includes the participation of “lay” citizens in the research process—is changing the process of research and knowledge production. The article is an initial attempt to examine the outcomes of CBR and the impact such research is having on knowledge development and funding trends in North America. The article concludes with a set of policy recommendations and areas for further research.
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  • Public Participation Methods: A Framework for Evaluation.Lynn J. Frewer & Gene Rowe - 2000 - Science, Technology, and Human Values 25 (1):3-29.
    There is a growing call for greater public involvement in establishing science and technology policy, in line with democratic ideals. A variety of public participation procedures exist that aim to consult and involve the public, ranging from the public hearing to the consensus conference. Unfortunately, a general lack of empirical consideration of the quality of these methods arises from confusion as to the appropriate benchmarks for evaluation. Given that the quality of the output of any participation exercise is difficult to (...)
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  • Citizen Participation and Environmental Risk: A Survey of Institutional Mechanisms.Daniel J. Fiorino - 1990 - Science, Technology and Human Values 15 (2):226-243.
    Standard approaches to defining and evaluating environmental risk tend to reflect technocratic rather than democratic values. One consequence is that institutional mechanisms for achieving citizen participation in risk decisions rarely are studied or evaluated. This article presents a survey of five institutional mechanisms for allowing the lay public to influence environmental risk decisions: public hearings, initiatives, public surveys, negotiated rule making, and citizens review panels. It also defines democratic process criteria for assessing these and other participatory mechanisms.
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  • Transdisciplinarity: The New Challenge for Biomedical Research.Joske F. G. Bunders, Jacqueline E. W. Broerse, Rebecca Teclemariam-Mesbah & J. Francisca Flinterman - 2001 - Bulletin of Science, Technology and Society 21 (4):253-266.
    During the past decade, patient participation became an important issue in the medical field, and patient participation in biomedical research processes is increasingly called for. One of the arguments for this refers to the specific kind of knowledge, called experiential knowledge, patients could contribute. Until now, participation of patients in biomedical research has been rare, and integration of patients’ experiential knowledge with scientific knowledge—in the few cases it takes place—occurs implicitly and on an ad hoc basis. This is illustrated by (...)
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  • Public Participation in Sustainability Science: A Handbook.Bernd Kasemir, Jill Jager, Carlo C. Jaeger & Matthew T. Gardner - 2004 - Environmental Values 13 (3):414-417.
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  • Expert and non-expert knowledge in medical practice.Ingemar Nordin - 2000 - Medicine, Health Care and Philosophy 3 (3):295-302.
    One problematic aspect of the rationality of medical practice concerns the relation between expert knowledge and non-expert knowledge. In medical practice it is important to match medical knowledge with the self-knowledge of the individual patient. This paper tries to study the problem of such matching by describing a model for technological paradigms and comparing it with an ideal of technological rationality. The professionalised experts tend to base their decisions and actions mostly on medical knowledge while the rationality of medicine also (...)
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  • Setting Biomedical Research Priorities: Justice, Science, and Public Participation.David B. Resnik - 2001 - Kennedy Institute of Ethics Journal 11 (2):181-204.
    This paper addresses the appropriate role for public input into priority setting for federal funding of biomedical research and development. The public should be involved in priority setting because researchers should be publicly accountable, because the public has a right to oversee government activities, and because public input is needed to assess normative questions related to the burden of disease and health care needs. On the other hand, political factors arising from public input can also hamper the governmentÕs ability to (...)
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  • (1 other version)The Importance of Interactions in Broadening the Base for Decision-Making On Technology.José van Eijndhoven & Joske Bunders - 1987 - Bulletin of Science, Technology and Society 7 (3-4):687-696.
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  • The biomedical disciplines and the structure of biomedical and clinical knowledge.H. Nederbragt - 2000 - Theoretical Medicine and Bioethics 21 (6):553-566.
    The relation between biomedical knowledge and clinicalknowledge is discussed by comparing their respectivestructures. The knowledge of a disease as a biologicalphenomenon is constructed by the interaction of factsand theories from the main biomedical disciplines:epidemiology, diagnostics, clinical trial, therapydevelopment and pathogenesis. Although these facts andtheories are based on probabilities andextrapolations, the interaction provides a reliableand coherent structure, comparable to a Kuhnianparadigma. In the structure of clinical knowledge,i.e. knowledge of the patient with the disease, notonly biomedical knowledge contributes to the structurebut also (...)
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  • Interactive technology assessment of paediatric cochlear implantation.Rob Reuzel - 2004 - Poiesis and Praxis 2 (s 2-3):119-137.
    Interactive technology assessment is a novel approach to evaluating (health) technology, which philosophically draws from the works of Rawls and Habermas. That is, it seeks to organise a practical setting for discursive ethics in order to find a legitimate basis for policy to be pursued when the technology under scrutiny features a moral controversy. Interactive technology assessment involves a cycle of interviews with all stakeholders, who are explicitly asked to respond (anonymously) to the concerns and issues raised by other participants. (...)
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  • Participatory Analysis, Democracy, and Technological Decision Making.Frank N. Laird - 1993 - Science, Technology and Human Values 18 (3):341-361.
    Scientific and technological policy issues are not and should not be exempt from the norms of democratic governance. This article examines two major theories of democracy, analyzes their commonalities and differences, and derives criteria for evaluating various forms of public participation in policymaking. The author argues for a new category of participation, participatory analysis, that includes forms of participation that satisfy democratic criteria and emphasizes the importance of learning among participants. Different types of participatory analysis may be best suited to (...)
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