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  1. Respecting Context to Protect Privacy: Why Meaning Matters.Helen Nissenbaum - 2018 - Science and Engineering Ethics 24 (3):831-852.
    In February 2012, the Obama White House endorsed a Privacy Bill of Rights, comprising seven principles. The third, “Respect for Context,” is explained as the expectation that “companies will collect, use, and disclose personal data in ways that are consistent with the context in which consumers provide the data.” One can anticipate the contested interpretations of this principle as parties representing diverse interests vie to make theirs the authoritative one. In the paper I will discuss three possibilities and explain why (...)
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  • the human microbiome: ethical, legal and social concerns.Rosamond Rhodes, Nada Gligorov & Abraham Paul Schwab (eds.) - 2013 - Oxford university press.
    Human microbiome research has revealed that legions of bacteria, viruses, and fungi live on our skin and within the cavities of our bodies. New knowledge from these recent studies shows that humans are superorganisms and that the microbiome is indispensible to our lives and our health. This volume explores some of the science on the human microbiome and considers the ethical, legal, and social concerns that are raised by this research.
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  • 23andMe: a new two-sided data-banking market model.Henri-Corto Stoeklé, Marie-France Mamzer-Bruneel, Guillaume Vogt & Christian Hervé - 2016 - BMC Medical Ethics 17 (1):1-11.
    BackgroundSince 2006, the genetic testing company 23andMe has collected biological samples, self-reported information, and consent documents for biobanking and research from more than 1,000,000 individuals, through a direct-to-consumer online genetic-testing service providing a genetic ancestry report and a genetic health report. However, on November 22, 2013, the Food and Drug Administration halted the sale of genetic health testing, on the grounds that 23andMe was not acting in accordance with federal law, by selling tests of undemonstrated reliability as predictive tests for (...)
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  • Race in the Postgenomic Era: Social Epigenetics Calling for Interdisciplinary Ethical Safeguards.Katie M. Saulnier & Charles Dupras - 2017 - American Journal of Bioethics 17 (9):58-60.
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  • (1 other version)Genetic Exceptionalism and Legislative Pragmatism.Mark A. Rothstein - 2007 - Journal of Law, Medicine and Ethics 35 (S2):59-65.
    One of the most important and contentious policy issues surrounding genetics is whether genetic information should be treated separately from other medical information. The view that genetics raises distinct issues is what Thomas Murray labeled “genetic exceptionalism,” borrowing from the earlier term “HIV exceptional-ism.” The issue of whether the use of genetic information should be addressed separately from other health information is not merely an academic concern, however. Since the Human Genome Project began in 1990, nearly every state has enacted (...)
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  • What Was Wrong with Eugenics? Conflicting Narratives and Disputed Interpretations.Diane B. Paul - 2014 - Science & Education 23 (2):259-271.
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  • Is Genetic Exceptionalism Past Its Sell-By Date? On Genomic Diaries, Context, and Content.Thomas H. Murray - 2019 - American Journal of Bioethics 19 (1):13-15.
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  • Genomic Contextualism: Shifting the Rhetoric of Genetic Exceptionalism.John A. Lynch, Aaron J. Goldenberg, Kyle B. Brothers & Nanibaa' A. Garrison - 2019 - American Journal of Bioethics 19 (1):51-63.
    As genomic science has evolved, so have policy and practice debates about how to describe and evaluate the ways in which genomic information is treated for individuals, institutions, and society. The term genetic exceptionalism, describing the concept that genetic information is special or unique, and specifically different from other kinds of medical information, has been utilized widely, but often counterproductively in these debates. We offer genomic contextualism as a new term to frame the characteristics of genomic science in the debates. (...)
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  • The ambiguous nature of epigenetic responsibility.Charles Dupras & Vardit Ravitsky - 2016 - Journal of Medical Ethics 42 (8):534-541.
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  • Genetic Privacy: A Challenge to Medico-Legal Norms.Graeme Laurie - 2002 - New York: Cambridge University Press.
    The phenomenon of the New Genetics raises complex social problems, particularly those of privacy. This book offers ethical and legal perspectives on the questions of a right to know and not to know genetic information from the standpoint of individuals, their relatives, employers, insurers and the state. Graeme Laurie provides a unique definition of privacy, including a concept of property rights in the person, and argues for stronger legal protection of privacy in the shadow of developments in human genetics. He (...)
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  • The Human Microbiome: Ethical, Legal, and Social Concerns.Abraham Schwab, Rosamond Rhodes & Nada Nada - unknown
    The human microbiome is the bacteria, viruses, and fungi that cover our skin, line our intestines, and flourish in our body cavities. Work on the human microbiome is new, but it is quickly becoming a leading area of biomedical research. What scientists are learning about humans and our microbiomes could change medical practice by introducing new treatment modalities. This new knowledge redefines us as superorganisms comprised of the human body and the collection of microbes that inhabit it and reveals how (...)
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