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  1. Relational autonomy: what does it mean and how is it used in end-of-life care? A systematic review of argument-based ethics literature.Carlos Gómez-Vírseda, Yves de Maeseneer & Chris Gastmans - 2019 - BMC Medical Ethics 20 (1):1-15.
    BackgroundRespect for autonomy is a key concept in contemporary bioethics and end-of-life ethics in particular. Despite this status, an individualistic interpretation of autonomy is being challenged from the perspective of different theoretical traditions. Many authors claim that the principle of respect for autonomy needs to be reconceptualised starting from a relational viewpoint. Along these lines, the notion of relational autonomy is attracting increasing attention in medical ethics. Yet, others argue that relational autonomy needs further clarification in order to be adequately (...)
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  • Principles of Biomedical Ethics: Marking Its Fortieth Anniversary.James Childress & Tom Beauchamp - 2019 - American Journal of Bioethics 19 (11):9-12.
    Volume 19, Issue 11, November 2019, Page 9-12.
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  • (1 other version)The concept of vulnerability in medical ethics and philosophy.Joachim Boldt - 2019 - Philosophy, Ethics, and Humanities in Medicine 14 (1):1-8.
    Healthcare is permeated by phenomena of vulnerability and their ethical significance. Nonetheless, application of this concept in healthcare ethics today is largely confined to clinical research. Approaches that further elaborate the concept in order to make it suitable for healthcare as a whole thus deserve renewed attention. Conceptual analysis. Taking up the task to make the concept of vulnerability suitable for healthcare ethics as a whole involves two challenges. Firstly, starting from the concept as it used in research ethics, a (...)
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  • Principles of Biomedical Ethics.Ezekiel J. Emanuel, Tom L. Beauchamp & James F. Childress - 1995 - Hastings Center Report 25 (4):37.
    Book reviewed in this article: Principles of Biomedical Ethics. By Tom L. Beauchamp and James F. Childress.
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  • Relational autonomy as an essential component of patient-centered care.Carolyn Ells, Matthew R. Hunt & Jane Chambers-Evans - 2011 - International Journal of Feminist Approaches to Bioethics 4 (2):79-101.
    Despite enthusiasm for patient-centered care, the practice of patient-centered care is proving challenging. Further, it is curious that the literature about this subject does not explicitly address patient autonomy, since patients guide care in patient-centered care, and respect for patient autonomy is a prominent health-care value. We argue that by explicitly adopting a relational conception of autonomy as an essential component, patient-centered care becomes more coherent, is strengthened, and could help practitioners to make better use of a principle of respect (...)
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  • Reconceptualizing Autonomy: A Relational Turn in Bioethics.Bruce Jennings - 2016 - Hastings Center Report 46 (3):11-16.
    History's judgment on the success of bioethics will not depend solely on the conceptual creativity and innovation in the field at the level of ethical and political theory, but this intellectual work is not insignificant. One important new development is what I shall refer to as the relational turn in bioethics. This development represents a renewed emphasis on the ideographic approach, which interprets the meaning of right and wrong in human actions as they are inscribed in social and cultural practices (...)
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  • Autonomy, Oppression, and Gender.Andrea Veltman & Mark Piper (eds.) - 2014 - New York, USA: Oxford University Press USA.
    This collection of new essays examines philosophical issues at the intersection of feminism and autonomy studies. Are autonomy and independence useful goals for women and subordinate persons? Is autonomy possible in contexts of social subordination? Is the pursuit of desires that issue from patriarchal norms consistent with autonomous agency? How do emotions and caring relate to autonomous deliberation? Contributors to this collection answer these questions and others, advancing central debates in autonomy theory by examining basic components, normative commitments, and applications (...)
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  • On bodily autonomy.Catriona Mackenzie - 2001 - In S. Kay Toombs (ed.), Handbook of Phenomenology and Medicine. Kluwer Academic Publishers. pp. 417--439.
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  • The Place of Autonomy in Bioethics.James F. Childress - 1990 - Hastings Center Report 20 (1):12-17.
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  • Informed Consent and Relational Conceptions of Autonomy.N. Stoljar - 2011 - Journal of Medicine and Philosophy 36 (4):375-384.
    The received view in medical contexts is that informed consent is both necessary and sufficient for patient autonomy. This paper argues that informed consent is not sufficient for patient autonomy, at least when autonomy is understood as a "relational" concept. Relational conceptions of autonomy, which have become prominent in the contemporary literature, draw on themes in the thought of Charles Taylor. I first identify four themes in Taylor's work that together constitute a picture of human agency corresponding to the notion (...)
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  • Euthanasia, ethics, and public policy: an argument against legalisation.John Keown - 2002 - New York, NY: Cambridge University Press.
    Whether the law should permit voluntary euthanasia or physician-assisted suicide is one of the most vital questions facing all modern societies. Internationally, the main obstacle to legalisation has proved to be the objection that, even if they were morally acceptable in certain 'hard cases', voluntary euthanasia and physician-assisted suicide could not be effectively controlled; society would slide down a 'slippery slope' to the killing of patients who did not make a free and informed request, or for whom palliative care would (...)
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  • Relational Autonomy: Feminist Perspectives on Autonomy, Agency, and the Social Self.Catriona Mackenzie & Natalie Stoljar (eds.) - 2000 - New York: Oxford University Press.
    This collection of original essays explores the social and relational dimensions of individual autonomy. Rejecting the feminist charge that autonomy is inherently masculinist, the contributors draw on feminist critiques of autonomy to challenge and enrich contemporary philosophical debates about agency, identity, and moral responsibility. The essays analyze the complex ways in which oppression can impair an agent's capacity for autonomy, and investigate connections, neglected by standard accounts, between autonomy and other aspects of the agent, including self-conception, self-worth, memory, and the (...)
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  • Understanding autonomy relationally: Toward a reconfiguration of bioethical principles.Anne Donchin - 2001 - Journal of Medicine and Philosophy 26 (4):365 – 386.
    Principle-based formulations of bioethical theory have recently come under increasing scrutiny, particularly insofar as they give prominence to personal autonomy. This essay critiques the dominant conceptualization of autonomy and urges an alternative formulation freed from the individualistic assumptions that pervade the prevailing framework. Drawing on feminist perspectives, I discuss the need for a vision of patient autonomy that joins relational experiences to individuality and acknowledges the influence of patterns of power and authority on the exercise of patient agency. Deficiencies in (...)
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  • Defending the four principles approach as a good basis for good medical practice and therefore for good medical ethics.Raanan Gillon - 2015 - Journal of Medical Ethics 41 (1):111-116.
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  • Reconsidering Relational Autonomy. Personal Autonomy for Socially Embedded and Temporally Extended Selves.Holger Baumann - 2008 - Analyse & Kritik 30 (2):445-468.
    Most recent accounts of personal autonomy acknowledge that the social environment a person lives in, and the personal relationships she entertains, have some impact on her autonomy. Two kinds of conceptualizing social conditions are traditionally distinguished in this regard: Causally relational accounts hold that certain relationships and social environments play a causal role for the development and on-going exercise of autonomy. Constitutively relational accounts, by contrast, claim that autonomy is at least partly constituted by a person’s social environment or standing. (...)
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  • Paternalism and partial autonomy.O. O'Neill - 1984 - Journal of Medical Ethics 10 (4):173-178.
    A contrast is often drawn between standard adult capacities for autonomy, which allow informed consent to be given or withheld, and patients' reduced capacities, which demand paternalistic treatment. But patients may not be radically different from the rest of us, in that all human capacities for autonomous action are limited. An adequate account of paternalism and the role that consent and respect for persons can play in medical and other practice has to be developed within an ethical theory that does (...)
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  • Sharing death and dying: Advance directives, autonomy and the family.Ho Mun Chan - 2004 - Bioethics 18 (2):87–103.
    ABSTRACT This paper critically examines the liberal model of decision making for the terminally ill and contrasts it with the familial model that can be found in some Asian cultures. The contrast between the two models shows that the liberal model is excessively patient‐centred, and misconceives and marginalises the role of the family in the decision making process. The paper argues that the familial model is correct in conceiving the last journey of one's life as a sharing process rather than (...)
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  • Situating moral distress within relational ethics.Sadie Deschenes & Diane Kunyk - 2020 - Nursing Ethics 27 (3):767-777.
    Nurses may, and often do, experience moral distress in their careers. This is related to the complicated work environment and the complex nature of ethical situations in everyday nursing practice. The outcomes of moral distress may include psychological and physical symptoms, reduced job satisfaction and even inadequate or inappropriate nursing care. Moral distress can also impact retention of nurses. Although research has grown considerably over the past few decades, there is still a great deal about this topic that we do (...)
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  • The Practice of Autonomy: Patients, Doctors, and Medical Decisions.Carl Schneider - 1998 - Oup Usa.
    This book approaches ethical and legal issues in medicine from the patient's viewpoint and argues that many patients do not want the full burden of decision making that contemporary bioethics has thrust upon them.
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  • Rethinking Relational Autonomy.Andrea C. Westlund - 2009 - Hypatia 24 (4):26-49.
    John Christman has argued that constitutively relational accounts of autonomy, as defended by some feminist theorists, are problematically perfectionist about the human good. I argue that autonomy is constitutively relational, but not in a way that implies perfectionism: autonomy depends on a dialogical disposition to hold oneself answerable to external, critical perspectives on one's action-guiding commitments. This type of relationality carries no substantive value commitments, yet it does answer to core feminist concerns about autonomy.
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  • Imagining oneself otherwise.Catriona Mackenzie - 2000 - In Catriona Mackenzie & Natalie Stoljar (eds.), Relational Autonomy: Feminist Perspectives on Autonomy, Agency, and the Social Self. New York: Oxford University Press.
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  • The care perspective and autonomy.Marian A. Verkerk - 2001 - Medicine, Health Care and Philosophy 4 (3):289-294.
    In this article I wish to show how care ethics puts forward a fundamental critique on the ideal of independency in human life without thereby discounting autonomy as a moral value altogether. In care ethics, a relational account of autonomy is developed instead. Because care ethics is sometimes criticized in the literature as hopelessly vague and ambiguous, I shall begin by elaborating on how care ethics and its place in ethical theory can be understood. I shall stipulate a definition of (...)
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  • (1 other version)The concept of vulnerability in medical ethics and philosophy.Joachim Boldt - 2019 - Philosophy, Ethics, and Humanities in Medicine 14 (1):1-8.
    BackgroundHealthcare is permeated by phenomena of vulnerability and their ethical significance. Nonetheless, application of this concept in healthcare ethics today is largely confined to clinical research. Approaches that further elaborate the concept in order to make it suitable for healthcare as a whole thus deserve renewed attention.MethodsConceptual analysis.ResultsTaking up the task to make the concept of vulnerability suitable for healthcare ethics as a whole involves two challenges. Firstly, starting from the concept as it used in research ethics, a more detailed (...)
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  • Paternalism and partial autonomy.Onora O' Neill - 1984 - Journal of Medical Ethics 10 (4):173-178.
    A contrast is often drawn between standard adult capacities for autonomy, which allow informed consent to be given or withheld, and patients' reduced capacities, which demand paternalistic treatment. But patients may not be radically different from the rest of us, in that all human capacities for autonomous action are limited. An adequate account of paternalism and the role that consent and respect for persons can play in medical and other practice has to be developed within an ethical theory that does (...)
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  • Citizenship: Feminist Perspectives.Ruth Lister - 2003 - Palgrave MacMillan.
    The second edition of this classic text substantially revises and extends the original, so as to take account of theoretical and policy developments and to enhance its international scope. Drawing on a range of disciplines and literatures, the book provides an unusually broad account of citizenship. It recasts traditional thinking about the concept so as to pinpoint important theoretical issues and their political and policy implications for women in their diversity. Themes of inclusion and exclusion (at national and international level), (...)
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  • Relational and embodied knowing: Nursing ethics within the interprofessional team.David Wright & Susan Brajtman - 2011 - Nursing Ethics 18 (1):20-30.
    In this article we attempt to situate nursing within the interprofessional care team with respect to processes of ethical practice and ethical decision making. After briefly reviewing the concept of interprofessionalism, the idea of a nursing ethic as ‘unique’ within the context of an interprofessional team will be explored. We suggest that nursing’s distinct perspective on the moral matters of health care stem not from any privileged vantage point but rather from knowledge developed through the daily activities of nursing practice. (...)
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  • Users’ Views of Palliative Care Services: ethical implications.Simon Woods, Kinta Beaver & Karen Luker - 2000 - Nursing Ethics 7 (4):314-326.
    This article is based on the findings of a study that elicited the views of terminally ill patients, their carers and bereaved carers on the palliative care services they received. It explores the range of ethical issues revealed by the data. Although the focus of the original study was on community services, the participants frequently commented on all aspects of their experience. They described some of its positive and negative aspects. Of concern was the reported lack of sensitivity to the (...)
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  • Autonomy-based arguments against physician-assisted suicide and euthanasia: a critique. [REVIEW]Manne Sjöstrand, Gert Helgesson, Stefan Eriksson & Niklas Juth - 2013 - Medicine, Health Care and Philosophy 16 (2):225-230.
    Respect for autonomy is typically considered a key reason for allowing physician assisted suicide and euthanasia. However, several recent papers have claimed this to be grounded in a misconception of the normative relevance of autonomy. It has been argued that autonomy is properly conceived of as a value, and that this makes assisted suicide as well as euthanasia wrong, since they destroy the autonomy of the patient. This paper evaluates this line of reasoning by investigating the conception of valuable autonomy. (...)
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  • Euthanasia requests in dementia cases; what are experiences and needs of Dutch physicians? A qualitative interview study.Jaap Schuurmans, Romy Bouwmeester, Lamar Crombach, Tessa van Rijssel, Lizzy Wingens, Kristina Georgieva, Nadine O’Shea, Stephanie Vos, Bram Tilburgs & Yvonne Engels - 2019 - BMC Medical Ethics 20 (1):1-9.
    In the Netherlands, in 2002, euthanasia became a legitimate medical act, only allowed when the due care criteria and procedural requirements are met. Legally, an Advanced Euthanasia Directive can replace direct communication if a patient can no longer express his own wishes. In the past decade, an exponential number of persons with dementia share a euthanasia request with their physician. The impact this on physicians, and the consequent support needs, remained unknown. Our objective was to gain more insight into the (...)
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  • Reconceptualizing Autonomy for Bioethics.Lisa Dive & Ainsley J. Newson - 2018 - Kennedy Institute of Ethics Journal 28 (2):171-203.
    The concept of autonomy plays a central role in bioethics,1 but there is no consensus as to how we should understand it beyond a general notion of self-determination. The conception of autonomy deployed in applied ethics2 can have crucial ramifications when it is applied in real-world scenarios, so it is important to be clear. However, this clarity is often lacking when autonomy is discussed in the bioethics literature. In this paper we outline three different conceptions of autonomy, and argue that (...)
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  • The involvement of family in the Dutch practice of euthanasia and physician assisted suicide: a systematic mixed studies review.Bernadette Roest, Margo Trappenburg & Carlo Leget - 2019 - BMC Medical Ethics 20 (1):23.
    Family members do not have an official position in the practice of euthanasia and physician assisted suicide in the Netherlands according to statutory regulations and related guidelines. However, recent empirical findings on the influence of family members on EAS decision-making raise practical and ethical questions. Therefore, the aim of this review is to explore how family members are involved in the Dutch practice of EAS according to empirical research, and to map out themes that could serve as a starting point (...)
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  • Being a burden to others and wishes to die: The importance of the sociopolitical context.Bernadette Roest, Margo Trappenburg & Carlo Leget - 2019 - Bioethics 34 (2):195-199.
    All articles in May 2019’s special issue of Bioethics offer profound insights into the issue of “being a burden to others” in relation to wishes to die, which are highly relevant for ethical debates about end‐of‐life care and physician‐assisted dying. In this reply, we wish to stress the importance of acknowledging and analyzing the sociopolitical context of the phenomenon “being a burden” in relation to wishes to die and we will show how this analysis could benefit from a care ethical (...)
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  • (1 other version)Onora O'Neill, autonomy and trust in bioethics (cambridge: Cambridge university press, 2002), pp. XI + 213.Yvette E. Pearson - 2008 - Utilitas 20 (2):248-250.
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  • 'Ambivalence' at the end of life: How to understand patients' wishes ethically.K. Ohnsorge, H. R. G. Keller, G. A. Widdershoven & C. Rehmann-Sutter - 2012 - Nursing Ethics 19 (5):629-641.
    Health-care professionals in end-of-life care are frequently confronted with patients who seem to be ‘ambivalent’ about treatment decisions, especially if they express a wish to die. This article investigates this phenomenon by analysing two case stories based on narrative interviews with two patients and their caregivers. First, we argue that a respectful approach to patients requires acknowledging that coexistence of opposing wishes can be part of authentic, multi-layered experiences and moral understandings at the end of life. Second, caregivers need to (...)
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  • The sanctity of autonomy?Tom Meulenbergs & Paul Schotsmans - 2001 - Bijdragen 62 (3):280-303.
    The current debate on euthanasia in the Lowlands is a perfect examplification of the predominance of the principle of respect for autonomy in present-day medical-ethical decisionmaking. The aim of this article is the exploration of the more fundamental philosophical issues concerning the current status of autonomy in medical ethics. The starting point for this exploration is an analysis of the principle of respect for autonomy. The authors argue that the view on autonomy in contemporary bioethical discussions is more related to (...)
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  • Relational autonomy, normative authority and perfectionism.Catriona Mackenzie - 2008 - Journal of Social Philosophy 39 (4):512-533.
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  • Advance care planning with chronically ill patients: A relational autonomy approach.Tieghan Killackey, Elizabeth Peter, Jane Maciver & Shan Mohammed - 2020 - Nursing Ethics 27 (2):360-371.
    Advance care planning is a process that encourages people to identify their values, to reflect upon the meanings and consequences of serious illness, to define goals and preferences for future medical treatment and care, and to discuss these goals with family and health-care providers. Advance care planning is especially important for those who are chronically ill, as patients and their families face a variety of complex healthcare decisions. Participating in advance care planning has been associated with improved outcomes; yet, despite (...)
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  • Self-Determination vs. Family-Determination: Two Incommensurable Principles of Autonomy.Ruiping Fan - 1997 - Bioethics 11 (3-4):309-322.
    Most contemporary bioethicists believe that Western bioethical principles, such as the principle of autonomy, are universally binding wherever bioethics is found. According to these bioethicists, these principles may be subject to culturally‐conditioned further interpretations for their application in different nations or regions, but an ‘abstract content’ of each principle remains unchanged, which provides ‘an objective basis for moral judgment and international law’. This essay intends to demonstrate that this is not the case. Taking the principle of autonomy as an example, (...)
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  • (1 other version)No Title available: Book Reviews. [REVIEW]Yvette E. Pearson - 2008 - Utilitas 20 (2):248-250.
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  • The Practice of Autonomy: Patients, Doctors, and Medical Decisions.Eric J. Cassell & Carl E. Schneider - 2000 - Hastings Center Report 30 (5):46.
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  • The Family in Medical Decisionmaking.Jeffrey Blustein - 1993 - Hastings Center Report 23 (3):6-13.
    Should the authority to make treatment decisions be extended to the competent patient's family? Neither arguments from fairness nor communitarian concerns justify such an infringement on patient autonomy.
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  • Reassessing Autonomy in Long‐Term Care.George J. Agich - 1990 - Hastings Center Report 20 (6):12-17.
    The realities of long‐term care call for a refurbished, concrete concept of autonomy that systematically attends to the history and development of persons and takes account of the experiences of daily living.
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  • Emotions, Reasons, and Autonomy.Christine Tappolet - 2014 - In Andrea Veltman & Mark Piper (eds.), Autonomy, Oppression, and Gender. New York, USA: Oxford University Press USA. pp. 163-180.
    Personal autonomy is often taken to consist in self-government or self-determination. Personal autonomy thus seems to require self-control. However, there is reason to think that autonomy is compatible with the absence of self-control. Akratic action, i.e., action performed against the agent’s better judgement, can be free. And it is also plausible to think that free actions require autonomy. It is only when you determine what you do yourself that you act freely. It follows that akratic actions can be autonomous. At (...)
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  • Conceptions of autonomy and conceptions of the body in bioethics.Catriona Mackenzie - 2010 - In Jackie Leach Scully, Laurel Baldwin-Ragaven & Petya Fitzpatrick (eds.), Feminist bioethics: at the center, on the margins. Baltimore: Johns Hopkins University Press.
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