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  1. How factual do we want the facts? Criteria for a critical appraisal of empirical research for use in ethics.D. Strech - 2010 - Journal of Medical Ethics 36 (4):222-225.
    Most contributions to the current debate about the consideration and application of empirical information in ethics scholarship deal with epistemological issues such as the role and the meaning of empirical research in ethical reasoning. Despite the increased publication of empirical data in ethics literature we still lack systematic analyses and conceptual frameworks that would help us to understand the rarely discussed methodological and practical problems in appraising empirical research. This paper demonstrates the need for critical appraisal and its crucial methodological (...)
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  • Parents' experiences of newborn screening for genetic susceptibility to type 1 diabetes.Nikki J. Kerruish - 2011 - Journal of Medical Ethics 37 (6):348-353.
    Advances in genomic medicine have lead to debate about the potential inclusion of genetic tests for susceptibility to common complex disorders in newborn screening programmes. Empirical evidence concerning psychosocial reactions to genetic testing is a crucial component of both ethical debate and policy development, but while there has been much speculation concerning the possible psychosocial impact of screening newborns for genetic susceptibilities, there remains a paucity of data. The aim of the study reported here is to provide some of this (...)
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  • Predictive genetic testing in minors for late-onset conditions: a chronological and analytical review of the ethical arguments: Figure 1.Cara Mand, Lynn Gillam, Martin B. Delatycki & Rony E. Duncan - 2012 - Journal of Medical Ethics 38 (9):519-524.
    Predictive genetic testing is now routinely offered to asymptomatic adults at risk for genetic disease. However, testing of minors at risk for adult-onset conditions, where no treatment or preventive intervention exists, has evoked greater controversy and inspired a debate spanning two decades. This review aims to provide a detailed longitudinal analysis and concludes by examining the debate's current status and prospects for the future. Fifty-three relevant theoretical papers published between 1990 and December 2010 were identified, and interpretative content analysis was (...)
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