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  1. Understanding the care.data conundrum: New information flows for economic growth.Stephen Timmons & Paraskevas Vezyridis - 2017 - Big Data and Society 4 (1).
    The analysis of data from electronic health records aspires to facilitate healthcare efficiencies and biomedical innovation. There are also ethical, legal and social implications from the handling of sensitive patient information. The paper explores the concerns, expectations and implications of the National Health Service England care.data programme: a national data sharing initiative of linked electronic health records for healthcare and other research purposes. Using Nissenbaum’s contextual integrity of privacy framework through a critical Science and Technology Studies lens, it examines the (...)
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  • The ‘sentient’ city and what it may portend.Nigel Thrift - 2014 - Big Data and Society 1 (1).
    The claim is frequently made that, as cities become loaded up with information and communications technology and a resultant profusion of data, so they are becoming sentient. But what might this mean? This paper offers some insights into this claim by, first of all, reworking the notion of the social as a spatial complex of ‘outstincts’. That makes it possible, secondly, to reconsider what a city which is aware of itself might look like, both by examining what kinds of technological (...)
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  • Inflated granularity: Spatial “Big Data” and geodemographics.Jim Thatcher & Craig M. Dalton - 2015 - Big Data and Society 2 (2).
    Data analytics, particularly the current rhetoric around “Big Data”, tend to be presented as new and innovative, emerging ahistorically to revolutionize modern life. In this article, we situate one branch of Big Data analytics, spatial Big Data, through a historical predecessor, geodemographic analysis, to help develop a critical approach to current data analytics. Spatial Big Data promises an epistemic break in marketing, a leap from targeting geodemographic areas to targeting individuals. Yet it inherits characteristics and problems from geodemographics, including a (...)
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  • Constructing global data: Automated techniques in ecological monitoring, precaution and reification of risk.Naveen Thayyil - 2018 - Big Data and Society 5 (1).
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  • Developing an Online Data Ethics Module Informed by an Ecology of Data Perspective.Xiaofeng Tang, Eduardo Mendieta & Thomas A. Litzinger - 2022 - Science and Engineering Ethics 28 (2):1-22.
    A self-perceived lack of training in ethical theories and related pedagogy has kept many engineering faculty members from teaching data ethics, an important aspect of engineering research that has become more salient in recent years. This paper describes the development of a module, which includes concepts, cases, policies, and best practices, to support the teaching of ethical data practice. Based on a user-oriented design approach and a moral literacy framework, the module was designed to be used in different courses and (...)
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  • Data Philanthropy and Individual Rights.Mariarosaria Taddeo - 2017 - Minds and Machines 27 (1):1-5.
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  • Soft Paternalism and Freedom in the Age of Artificial Intelligence – Through the “tactfulness (融通無碍 Yuzu-Muge)” of 華厳学 Hua-Yan philosophy.Shoko Suzuki - 2023 - Paragrana: Internationale Zeitschrift für Historische Anthropologie 32 (1):247-256.
    Living in an era of technological innovations, we must understand and trust them to benefit from these new technologies. In this context, paternalism is renewed as the so-called “soft-” or “Libertarian paternalism”. How can we face it and ensure freedom in the vortex of wellmeaning advice and persuasion? This paper will discuss 1. the characteristics of freedom since the 18th century from the perspective of the Enlightenment discourse in Germany by Mendelssohn and Kant, 2. the conditions for freedom in the (...)
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  • Redefining Humanity in the Era of AI – Technical Civilization.Shoko Suzuki - 2020 - Paragrana: Internationale Zeitschrift für Historische Anthropologie 29 (1):83-93.
    The human environment is currently undergoing massive change amid the rapid adoption of information and communications technology (ICT). ICT can be characterized as offering an opportunity to consider the nature of humanity, create new values, and foster new cultures. As humans, the question that technical innovation relating to Artificial Intelligence (AI) and Robots thrusts before us is, “What is a human?” What exactly are the things that AI will never be able to do, no matter how close it gets to (...)
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  • The European Union's Adequacy Approach to Privacy and International Data Sharing in Health Research.Jennifer Stoddart, Benny Chan & Yann Joly - 2016 - Journal of Law, Medicine and Ethics 44 (1):143-155.
    The European Union approach to data protection consists of assessing the adequacy of the data protection offered by the laws of a particular jurisdiction against a set of principles that includes purpose limitation, transparency, quality, proportionality, security, access, and rectification. The EU's Data Protection Directive sets conditions on the transfer of data to third countries by prohibiting Member States from transferring to such countries as have been deemed inadequate in terms of the data protection regimes. In theory, each jurisdiction is (...)
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  • Taxonomy for Humans or Computers? Cognitive Pragmatics for Big Data.Beckett Sterner & Nico M. Franz - 2017 - Biological Theory 12 (2):99-111.
    Criticism of big data has focused on showing that more is not necessarily better, in the sense that data may lose their value when taken out of context and aggregated together. The next step is to incorporate an awareness of pitfalls for aggregation into the design of data infrastructure and institutions. A common strategy minimizes aggregation errors by increasing the precision of our conventions for identifying and classifying data. As a counterpoint, we argue that there are pragmatic trade-offs between precision (...)
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  • Review of Sabina Leonelli’s Data-Centric Biology: A Philosophical Study. [REVIEW]Beckett Sterner - 2018 - Philosophy of Science 85 (3):540-550.
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  • In data we (don't) trust: The public adrift in data-driven public opinion models.Slavko Splichal - 2022 - Big Data and Society 9 (1).
    This article seeks to address current debates comparing polls and opinion mining as empirically based figuration models of public opinion in the light of in-depth intellectual debates on the role and nature of public opinion that began after the French Revolution and the controversy over public opinion spurred by the invention of polls. Issues of historical quantification and re-conceptualisation of public opinion are addressed in four parts. The first summarises the history of the rise and fall of the concept of (...)
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  • Should we embrace “Big Sister”? Smart speakers as a means to combat intimate partner violence.Robert Sparrow, Mark Andrejevic & Bridget Harris - 2023 - Ethics and Information Technology 25 (4):1-13.
    It is estimated that one in three women experience intimate partner violence (IPV) across the course of their life. The popular uptake of “smart speakers” powered by sophisticated AI means that surveillance of the domestic environment is increasingly possible. Correspondingly, there are various proposals to use smart speakers to detect or report IPV. In this paper, we clarify what might be possible when it comes to combatting IPV using existing or near-term technology and also begin the project of evaluating this (...)
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  • Democracy in the Time of “Hyperlead”: Knowledge Acquisition via Algorithmic Recommendation and Its Political Implication in Comparison with Orality, Literacy, and Hyperlink.Wha-Chul Son - 2022 - Philosophy and Technology 35 (3):1-21.
    Why hasn’t democracy been promoted by nor ICT been controlled by democratic governance? To answer this question, this research begins its investigation by comparing knowledge acquisition systems throughout history: orality, literacy, hyperlink, and hyperlead. “Hyperlead” is a newly coined concept to emphasize the passivity of people when achieving knowledge and information via algorithmic recommendation technologies. Subsequently, the four systems are compared in terms of their epistemological characteristics and political implications. It is argued that, while literacy and hyperlink contributed to the (...)
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  • Understanding Therapeutic Change Process Research Through Multilevel Modeling and Text Mining.Wouter A. C. Smink, Jean-Paul Fox, Erik Tjong Kim Sang, Anneke M. Sools, Gerben J. Westerhof & Bernard P. Veldkamp - 2019 - Frontiers in Psychology 10:424969.
    \noindent\textbf{Introduction} Online interventions hold great potential for Therapeutic Change Process Research (TCPR), a field that aims to relate in-therapeutic change processes to the outcomes of interventions. Online a client is treated essentially through the language their counsellor uses, therefore the verbal interaction contains many important ingredients that bring about change. TCPR faces two challenges: how to derive meaningful change processes from texts, and secondly, how to assess these complex, varied and multi-layered processes? We advocate the use text mining and multi-level (...)
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  • A new traditional theory: Fetishizing big data analytics.Murray Skees - 2020 - Constellations 29 (2):146-160.
    Constellations, Volume 29, Issue 2, Page 146-160, June 2022.
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  • Datafeudalism: The Domination of Modern Societies by Big Tech Companies.Carlos Saura García - 2024 - Philosophy and Technology 37 (3):1-18.
    This article critically examines the domination exerted by big digital companies on the current social, economic, and political context of modern societies, with a particular focus on the implications for the proper functioning of democracy. The objective of this article is to introduce and develop the concept of datafeudalism, expose its emergence for the proper functioning of modern societies and democracy, and to propose courses of action to reverse this situation. To achieve this purpose, firstly, the evolution from surveillance capitalism (...)
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  • Algorithmic governance: Developing a research agenda through the power of collective intelligence.Kalpana Shankar, Burkhard Schafer, Niall O'Brolchain, Maria Helen Murphy, John Morison, Su-Ming Khoo, Muki Haklay, Heike Felzmann, Aisling De Paor, Anthony Behan, Rónán Kennedy, Chris Noone, Michael J. Hogan & John Danaher - 2017 - Big Data and Society 4 (2).
    We are living in an algorithmic age where mathematics and computer science are coming together in powerful new ways to influence, shape and guide our behaviour and the governance of our societies. As these algorithmic governance structures proliferate, it is vital that we ensure their effectiveness and legitimacy. That is, we need to ensure that they are an effective means for achieving a legitimate policy goal that are also procedurally fair, open and unbiased. But how can we ensure that algorithmic (...)
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  • What is the ‘personal’ in ‘personal information’?Sille Obelitz Søe, Rikke Frank Jørgensen & Jens-Erik Mai - 2021 - Ethics and Information Technology 23 (4):625-633.
    Contemporary privacy theories and European discussions about data protection employ the notion of ‘personal information’ to designate their areas of concern. The notion of personal information is demarcated from non-personal information—or just information—indicating that we are dealing with a specific kind of information. However, within privacy scholarship the notion of personal information appears undertheorized, rendering the concept somewhat unclear. We argue that in an age of datafication, protection of personal information and privacy is crucial, making the understanding of what is (...)
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  • Social media and microtargeting: Political data processing and the consequences for Germany.Orestis Papakyriakopoulos, Simon Hegelich, Morteza Shahrezaye & Juan Carlos Medina Serrano - 2018 - Big Data and Society 5 (2).
    Amongst other methods, political campaigns employ microtargeting, a specific technique used to address the individual voter. In the US, microtargeting relies on a broad set of collected data about the individual. However, due to the unavailability of comparable data in Germany, the practice of microtargeting is far more challenging. Citizens in Germany widely treat social media platforms as a means for political debate. The digital traces they leave through their interactions provide a rich information pool, which can create the necessary (...)
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  • Dark Sides of Data Transparency: Organized Immaturity After GDPR?Frederik Schade - 2023 - Business Ethics Quarterly 33 (3):473-501.
    Organized immaturity refers to the capacity of widely institutionalized sociotechnical systems to challenge qualities of human enlightenment, autonomy, and self-determination. In the context of surveillance capitalism, where these qualities are continuously put at risk, data transparency is increasingly proposed as a means of restoring human maturity by allowing individuals insight and choice vis-à-vis corporate data processing. In this article, however, I draw on research on General Data Protection Regulation–mandated data transparency practices to argue that transparency—while potentially fostering maturity—itself risks producing (...)
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  • (1 other version)Dark Data as the New Challenge for Big Data Science and the Introduction of the Scientific Data Officer.Björn Schembera & Juan M. Durán - 2020 - Philosophy and Technology 33 (1):93-115.
    Many studies in big data focus on the uses of data available to researchers, leaving without treatment data that is on the servers but of which researchers are unaware. We call this dark data, and in this article, we present and discuss it in the context of high-performance computing facilities. To this end, we provide statistics of a major HPC facility in Europe, the High-Performance Computing Center Stuttgart. We also propose a new position tailor-made for coping with dark data and (...)
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  • (1 other version)Dark Data as the New Challenge for Big Data Science and the Introduction of the Scientific Data Officer.Björn Schembera & Juan M. Durán - 2019 - Philosophy and Technology:1-23.
    Many studies in big data focus on the uses of data available to researchers, leaving without treatment data that is on the servers but of which researchers are unaware. We call this dark data, and in this article, we present and discuss it in the context of high-performance computing facilities. To this end, we provide statistics of a major HPC facility in Europe, the High-Performance Computing Center Stuttgart. We also propose a new position tailor-made for coping with dark data and (...)
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  • Big data: Finders keepers, losers weepers?Marijn Sax - 2016 - Ethics and Information Technology 18 (1):25-31.
    This article argues that big data’s entrepreneurial potential is based not only on new technological developments that allow for the extraction of non-trivial, new insights out of existing data, but also on an ethical judgment that often remains implicit: namely the ethical judgment that those companies that generate these new insights can legitimately appropriate these insights. As a result, the business model of big data companies is essentially founded on a libertarian-inspired ‘finders, keepers’ ethic. The article argues, next, that this (...)
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  • After the crisis? Big Data and the methodological challenges of empirical sociology.Mike Savage & Roger Burrows - 2014 - Big Data and Society 1 (1).
    Google Trends reveals that at the time we were writing our article on ‘The Coming Crisis of Empirical Sociology’ in 2007 almost nobody was searching the internet for ‘Big Data’. It was only towards the very end of 2010 that the term began to register, just ahead of an explosion of interest from 2011 onwards. In this commentary we take the opportunity to reflect back on the claims we made in that original paper in light of more recent discussions about (...)
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  • Overcoming the Limits of Quantification by Visualization.Isabella Sarto-Jackson & Richard R. Nelson - 2015 - Biological Theory 10 (3):253-262.
    Biological sciences have strived to adopt the conceptual framework of physics and have become increasingly quantitatively oriented, aiming to refute the assertion that biology appears unquantifiable, unpredictable, and messy. But despite all effort, biology is characterized by a paucity of quantitative statements with universal applications. Nonetheless, many biological disciplines—most notably molecular biology—have experienced an ascendancy over the last 50 years. The underlying core concepts and ideas permeate and inform many neighboring disciplines. This surprising success is probably not so much attributable (...)
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  • Zemblanity and Big Data: the ugly truths the algorithms remind us of.Ricardo Cavassane - 2022 - Acta Scientiarum. Human and Social Sciences 44 (1):1-7.
    In this paper, we will argue that, while Big Data enthusiasts imply that the analysis of massive data sets can produce serendipitous (that is, unexpected and fortunate) discoveries, the way those models are currently designed not only does not create serendipity so easily but also frequently generates zemblanitous (that is, expected and unfortunate) findings.
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  • Big Data: truth, quasi-truth or post-truth?Ricardo Peraça Cavassane & M. Loffredo D'ottaviano Itala - 2020 - Acta Scientiarum. Human and Social Sciences 42 (3):1-7.
    In this paper we investigate if sentences presented as the result of the application of statistical models and artificial intelligence to large volumes of data – the so-called ‘Big Data’ – can be characterized as semantically true, or as quasi-true, or even if such sentences can only be characterized as probably quasi-false and, in a certain way, post-true; that is, if, in the context of Big Data, the representation of a data domain can be configured as a total structure, or (...)
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  • Bioinformatics and the Politics of Innovation in the Life Sciences: Science and the State in the United Kingdom, China, and India.Charlotte Salter, Saheli Datta, Yinhua Zhou & Brian Salter - 2016 - Science, Technology, and Human Values 41 (5):793-826.
    The governments of China, India, and the United Kingdom are unanimous in their belief that bioinformatics should supply the link between basic life sciences research and its translation into health benefits for the population and the economy. Yet at the same time, as ambitious states vying for position in the future global bioeconomy they differ considerably in the strategies adopted in pursuit of this goal. At the heart of these differences lies the interaction between epistemic change within the scientific community (...)
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  • A novel Holistic Risk Assessment Concept: The Epistemological Positioning and the Methodology.Carrodano Tarantino Cinzia - unknown
    Risk is an intrinsic part of our lives. In the future, the development and growth of the Internet of things allows getting a huge amount of data. Considering this evolution, our research focuses on developing a novel concept, namely Holistic Risk Assessment (HRA), that takes into consideration elements outside the direct influence of the individual to provide a highly personalized risk assessment. The HRA implies developing a methodology and a model. This paper is related to the epistemological positioning of this (...)
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  • Critical data studies: An introduction.Federica Russo & Andrew Iliadis - 2016 - Big Data and Society 3 (2).
    Critical Data Studies explore the unique cultural, ethical, and critical challenges posed by Big Data. Rather than treat Big Data as only scientifically empirical and therefore largely neutral phenomena, CDS advocates the view that Big Data should be seen as always-already constituted within wider data assemblages. Assemblages is a concept that helps capture the multitude of ways that already-composed data structures inflect and interact with society, its organization and functioning, and the resulting impact on individuals’ daily lives. CDS questions the (...)
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  • Societal and ethical issues of digitization.Lambèr Royakkers, Jelte Timmer, Linda Kool & Rinie van Est - 2018 - Ethics and Information Technology 20 (2):127-142.
    In this paper we discuss the social and ethical issues that arise as a result of digitization based on six dominant technologies: Internet of Things, robotics, biometrics, persuasive technology, virtual & augmented reality, and digital platforms. We highlight the many developments in the digitizing society that appear to be at odds with six recurring themes revealing from our analysis of the scientific literature on the dominant technologies: privacy, autonomy, security, human dignity, justice, and balance of power. This study shows that (...)
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  • Data-owning democracy: Citizen empowerment through data ownership.Roberta Fischli - 2024 - European Journal of Political Theory 23 (2):204-223.
    This article extends property-owning democracy to the digital realm and introduces “data-owning democracy,” a new political economic regime characterized by the wide distribution of data as capital among citizens. Drawing on republican theory and acknowledging data's unique role in the digital economy, it proposes a two-tier model that combines different modes of data ownership and corresponding rights. The first layer of “data-owning democracy” is characterized by a digital public infrastructure that enables citizens to collectively generate data and have a say (...)
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  • Digital epidemiology and global health security; an interdisciplinary conversation.Stephen L. Roberts, Henning Füller & Tim Eckmanns - 2019 - Life Sciences, Society and Policy 15 (1):1-13.
    Contemporary infectious disease surveillance systems aim to employ the speed and scope of big data in an attempt to provide global health security. Both shifts - the perception of health problems through the framework of global health security and the corresponding technological approaches – imply epistemological changes, methodological ambivalences as well as manifold societal effects. Bringing current findings from social sciences and public health praxis into a dialogue, this conversation style contribution points out several broader implications of changing disease surveillance. (...)
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  • Ethical sharing of health data in online platforms- which values should be considered?Brígida Riso, Aaro Tupasela, Danya F. Vears, Heike Felzmann, Julian Cockbain, Michele Loi, Nana C. H. Kongsholm, Silvia Zullo & Vojin Rakic - 2017 - Life Sciences, Society and Policy 13 (1):1-27.
    Intensified and extensive data production and data storage are characteristics of contemporary western societies. Health data sharing is increasing with the growth of Information and Communication Technology platforms devoted to the collection of personal health and genomic data. However, the sensitive and personal nature of health data poses ethical challenges when data is disclosed and shared even if for scientific research purposes. With this in mind, the Science and Values Working Group of the COST Action CHIP ME ‘Citizen's Health through (...)
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  • A sociedade contemporânea à luz da ética informacional.João Moraes & Rafael Testa - 2020 - Acta Scientiarum. Human and Social Sciences 42 (3).
    Qual o lugar da filosofia nos dias atuais? Diante das inúmeras respostas possíveis a esta questão, nos debruçaremos em alguns tópicos que podemos inserir na chamada Ética Informacional, um ramo de investigação filosófico-interdisciplinar relativamente recente que discute problemas oriundos da relação ser humano/tecnologias digitais. Temas como privacidade informacional, arrogância epistêmica e divisão digital serão discutidos e relacionados, com o intuito de ilustrar o papel da filosofia na compreensão da complexidade inerente às dinâmicas sociais no contexto da sociedade da informação. Argumentaremos (...)
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  • Datatrust: Or, the political quest for numerical evidence and the epistemologies of Big Data.Gernot Rieder & Judith Simon - 2016 - Big Data and Society 3 (1).
    Recently, there has been renewed interest in so-called evidence-based policy making. Enticed by the grand promises of Big Data, public officials seem increasingly inclined to experiment with more data-driven forms of governance. But while the rise of Big Data and related consequences has been a major issue of concern across different disciplines, attempts to develop a better understanding of the phenomenon's historical foundations have been rare. This short commentary addresses this gap by situating the current push for numerical evidence within (...)
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  • The Fate of Explanatory Reasoning in the Age of Big Data.Frank Cabrera - 2021 - Philosophy and Technology 34 (4):645-665.
    In this paper, I critically evaluate several related, provocative claims made by proponents of data-intensive science and “Big Data” which bear on scientific methodology, especially the claim that scientists will soon no longer have any use for familiar concepts like causation and explanation. After introducing the issue, in Section 2, I elaborate on the alleged changes to scientific method that feature prominently in discussions of Big Data. In Section 3, I argue that these methodological claims are in tension with a (...)
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  • Ethischer Diskurs zu Epigenetik und Genomeditierung: die Gefahr eines (epi-)genetischen Determinismus und naturwissenschaftlich strittiger Grundannahmen.Karla Karoline Sonne Kalinka Alex & Eva C. Winkler - 2021 - In Boris Fehse, Ferdinand Hucho, Sina Bartfeld, Stephan Clemens, Tobias Erb, Heiner Fangerau, Jürgen Hampel, Martin Korte, Lilian Marx-Stölting, Stefan Mundlos, Angela Osterheider, Anja Pichl, Jens Reich, Hannah Schickl, Silke Schicktanz, Jochen Taupitz, Jörn Walter, Eva Winkler & Martin Zenke (eds.), Fünfter Gentechnologiebericht: Sachstand und Perspektiven für Forschung und Anwendung. pp. 299-323.
    Slightly modified excerpt from the section 13.4 Zusammenfassung und Ausblick (translated into englisch): This chapter is based on an analysis of ethical debates on epigenetics and genome editing, debates, in which ethical arguments relating to future generations and justice play a central role. The analysis aims to contextualize new developments in genetic engineering, such as genome and epigenome editing, ethically. At the beginning, the assumptions of "genetic determinism," on which "genetic essentialism" is based, of "epigenetic determinism" as well as "genetic" (...)
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  • Online Misinformation and “Phantom Patterns”: Epistemic Exploitation in the Era of Big Data.Megan Fritts & Frank Cabrera - 2021 - Southern Journal of Philosophy 60 (1):57-87.
    In this paper, we examine how the availability of massive quantities of data i.e., the “Big Data” phenomenon, contributes to the creation, spread, and harms of online misinformation. Specifically, we argue that a factor in the problem of online misinformation is the evolved human instinct to recognize patterns. While the pattern-recognition instinct is a crucial evolutionary adaptation, we argue that in the age of Big Data, these capacities have, unfortunately, rendered us vulnerable. Given the ways in which online media outlets (...)
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  • Radiocarbon Dating in Archaeology: Triangulation and Traceability.Alison Wylie - 2020 - In Sabina Leonelli & Niccolò Tempini (eds.), Data Journeys in the Sciences. Springer. pp. 285-301.
    When radiocarbon dating techniques were applied to archaeological material in the 1950s they were hailed as a revolution. At last archaeologists could construct absolute chronologies anchored in temporal data backed by immutable laws of physics. This would make it possible to mobilize archaeological data across regions and time-periods on a global scale, rendering obsolete the local and relative chronologies on which archaeologists had long relied. As profound as the impact of 14C dating has been, it has had a long and (...)
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  • In search of the citizen in the datafication of public administration.Lisa Reutter & Heather Broomfield - 2022 - Big Data and Society 9 (1).
    The administrative reform of the datafied public administration places great emphasis on the classification, control, and prediction of citizen behavior and therefore has the potential to significantly impact citizen–state relations. There is a growing body of literature on data-oriented activism which aims to resist and counteract existing harmful data practices. However, little is known about the processes, policies, and political-economic structures that make datafication possible. There is a distinct research gap on situated and context-specific empirical research, which critically interrogates the (...)
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  • Autonomous Systems and the Place of Biology Among Sciences. Perspectives for an Epistemology of Complex Systems.Leonardo Bich - 2021 - In Gianfranco Minati (ed.), Multiplicity and Interdisciplinarity. Essays in Honor of Eliano Pessa. Springer. pp. 41-57.
    This paper discusses the epistemic status of biology from the standpoint of the systemic approach to living systems based on the notion of biological autonomy. This approach aims to provide an understanding of the distinctive character of biological systems and this paper analyses its theoretical and epistemological dimensions. The paper argues that, considered from this perspective, biological systems are examples of emergent phenomena, that the biological domain exhibits special features with respect to other domains, and that biology as a discipline (...)
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  • Conceptual frameworks for social and cultural Big Data analytics: Answering the epistemological challenge.Lucy Resnyansky - 2019 - Big Data and Society 6 (1).
    This paper aims to contribute to the development of tools to support an analysis of Big Data as manifestations of social processes and human behaviour. Such a task demands both an understanding of the epistemological challenge posed by the Big Data phenomenon and a critical assessment of the offers and promises coming from the area of Big Data analytics. This paper draws upon the critical social and data scientists’ view on Big Data as an epistemological challenge that stems not only (...)
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  • Privacy self-management and the issue of privacy externalities: of thwarted expectations, and harmful exploitation.Simeon de Brouwer - 2020 - Internet Policy Review 9 (4).
    This article argues that the self-management of one’s privacy is impossible due to privacy externalities. Privacy externalities are the negative by-product of the services offered by some data controllers, whereby the price to ‘pay’ for a service includes not just the provision of the user’s own personal data, but also that of others. This term, related to similar concepts from the literature on privacy such as ‘networked privacy’ or ‘data pollution’, is used here to bring to light the incentives and (...)
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  • N = Many Me’s: Self-Surveillance for Precision Public Health.Hub Zwart & Mira Vegter - 2021 - Biosocieties 16.
    This paper focuses on Precision Public Health (PPH), described in the scientific literature as an effort to broaden the scope of precision medicine by extrap- olating it towards public health. By means of the “All of Us” (AoU) research pro- gram, launched by the National Institutes of Health in the U.S., PPH is being devel- oped based on health data shared through a broad range of digital tools. PPH is an emerging idea to harness the data collected for precision medicine (...)
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  • Business Ethics and Quantification: Towards an Ethics of Numbers.Gazi Islam - 2021 - Journal of Business Ethics 176 (2):195-211.
    Social practices of quantification, or the production and communication of numbers, have been recognized as important foundations of organizational knowledge, as well as sources of power. With the advent of increasingly sophisticated digital tools to capture and extract numerical data from social life, however, there is a pressing need to understand the ethical stakes of quantification. The current study examines quantification from an ethical lens, to frame and promote a research agenda around the ethics of quantification. After a brief overview (...)
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  • The “Right to Be Forgotten”: Negotiating Public and Private Ordering in the European Union.Roxana Radu & Jean-Marie Chenou - 2019 - Business and Society 58 (1):74-102.
    Although the Internet is frequently referred to as a global public resource, its functioning remains predominantly controlled by private actors. The Internet brought about significant shifts in the way we conceptualize governance. In particular, the handling of “big data” by private intermediaries has a direct impact on routine practices and personal lives. The implementation of the “right to be forgotten” following the May 2014 decision of the Court of Justice of the European Union against Google blurs the boundaries between the (...)
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  • Can Blockchain Solve the Dilemma in the Ethics of Genomic Biobanks?Valérie Racine - 2021 - Science and Engineering Ethics 27 (3):1-14.
    In discussions on the ethics of genome collections and biobanks, the main worry about whether we are permitted to collect and use individuals’ genomic and genetic data is the potential for the violation of individuals’ right to informational privacy. Yet, if we do not permit these endeavors, we risk giving up on the future benefits of biomedical research. In this paper, I describe a private venture in blockchain genomics that seeks to provide an apt solution to concerns about potential privacy (...)
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  • Digital, politics, and algorithms: Governing digital data through the lens of data protection.Rocco Bellanova - 2017 - European Journal of Social Theory 20 (3):329-347.
    Many actors mobilize the cognitive, legal and technical tool-box of data protection when they discuss and address controversial issues such as digital mass surveillance. Yet, critical approaches to the digital only barely explore the politics of data protection in relation to data-driven governance. Building on governmentality studies and Actor-Network-Theory, this article analyses the potential and limits of using data protection to critique the ‘digital age’. Using the conceptual tool of dispositifs, it sketches an analytics of data protection and the emergence (...)
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