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  1. Moral structuring of children during the process of obtaining informed consent in clinical and research settings.Anderson Díaz-Pérez, Elkin Navarro Quiroz & Dilia Esther Aparicio Marenco - 2020 - BMC Medical Ethics 21 (1).
    BackgroundInformed consent is an important factor in a child’s moral structure from which different types of doctor–patient relationships arise. Children’s autonomy is currently under discussion in terms of their decent treatment, beyond what doctors and researchers perceive. To describe the influential practices that exist among clinicians and researchers toward children with chronic diseases during the process of obtaining informed consent.MethodsThis was a cross-sectional, qualitative study via a subjective and interpretivist approach. The study was performed by conducting semi-structured interviews of 21 (...)
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  • Moving It Along: A study of healthcare professionals’ experience with ethics consultations.Nancy Crigger, Maria Fox, Tarris Rosell & Wilaiporn Rojjanasrirat - 2017 - Nursing Ethics 24 (3):279-291.
    Background:Ethics consultation is the traditional way of resolving challenging ethical questions raised about patient care in the United States. Little research has been published on the resolution process used during ethics consultations and on how this experience affects healthcare professionals who participate in them.Objectives:The purpose of this qualitative research was to uncover the basic process that occurs in consultation services through study of the perceptions of healthcare professionals.Design and Method:The researchers in this study used a constructivist grounded theory approach that (...)
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  • Specific Trends in Pediatric Ethical Decision-Making: An 18-Year Review of Ethics Consultation Cases in a Pediatric Hospital.Yaa Bosompim, Julie Aultman & John Pope - forthcoming - HEC Forum:1-17.
    This is a qualitative examination of ethics consultation requests, outcomes, and ethics committee recommendations at a tertiary/quaternary pediatric hospital in the U.S. The purpose of this review of consults over an 18-year period is to identify specific trends in the types of ethical dilemmas presented in our pediatric setting, the impact of consultation and committee development on the number and type of consults provided, and any clinical features and/or challenges that emerged and contributed to the nature of ethical situations and (...)
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  • Evaluating assessment tools of the quality of clinical ethics consultations: a systematic scoping review from 1992 to 2019.Nicholas Yue Shuen Yoon, Yun Ting Ong, Hong Wei Yap, Kuang Teck Tay, Elijah Gin Lim, Clarissa Wei Shuen Cheong, Wei Qiang Lim, Annelissa Mien Chew Chin, Ying Pin Toh, Min Chiam, Stephen Mason & Lalit Kumar Radha Krishna - 2020 - BMC Medical Ethics 21 (1):1-11.
    BackgroundAmidst expanding roles in education and policy making, questions have been raised about the ability of Clinical Ethics Committees (CEC) s to carry out effective ethics consultations (CECons). However recent reviews of CECs suggest that there is no uniformity to CECons and no effective means of assessing the quality of CECons. To address this gap a systematic scoping review of prevailing tools used to assess CECons was performed to foreground and guide the design of a tool to evaluate the quality (...)
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  • Organizational Influences on Health Professionals’ Experiences of Moral Distress in PICUs.Sarah Wall, Wendy J. Austin & Daniel Garros - 2016 - HEC Forum 28 (1):53-67.
    This article reports the findings of a qualitative study that explored the organizational influences on moral distress for health professionals working in pediatric intensive care units across Canada. Participants were recruited to the study from PICUs across Canada. The PICU is a high-tech, fast-paced, high-pressure environment where caregivers frequently face conflict and ethical tension in the care of critically ill children. A number of themes including relationships with management, organizational structure and processes, workload and resources, and team dynamics were identified. (...)
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  • Inclusive Consultation: A Hermeneutical Approach to Ethical Deliberation in the Clinical Setting. [REVIEW]Andreas Vieth - 2011 - HEC Forum 23 (4):295-304.
    The problem of ethical consultations in the clinical setting should be reasonable, but it cannot be reduced to reason and philosophical theory alone. I will argue that emotions are constitutively and discursively relevant features of the evaluative experience of persons. Ethical consultations should include emotions. Emotions like shame and guilt are complex and learned reactions of persons, which form one basis of ethical reflection. I argue that ethical consultation can rely neither on a strict theory or method nor on a (...)
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  • Enhancing patient safety by integrating ethical dimensions to Critical Incident Reporting Systems.Annette Rogge, Alena Buyx, Rainer Petzina, Eva Kuhn & Kai Wehkamp - 2021 - BMC Medical Ethics 22 (1):1-8.
    BackgroundCritical Incident Reporting Systems (CIRS) provide a well-proven method to identify clinical risks in hospitals. All professions can report critical incidents anonymously, low-threshold, and without sanctions. Reported cases are processed to preventive measures that improve patient and staff safety. Clinical ethics consultations offer support for ethical conflicts but are dependent on the interaction with staff and management to be effective. The aim of this study was to investigate the rationale of integrating an ethical focus into CIRS.MethodsA six-step approach combined the (...)
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  • Physicians’ Perspectives on Ethically Challenging Situations: Early Identification and Action.Carol Pavlish, Katherine Brown-Saltzman, Kevin M. Dirksen & Alyssa Fine - 2015 - AJOB Empirical Bioethics 6 (3):28-40.
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  • Ethical climate in contemporary paediatric intensive care.Katie M. Moynihan, Lisa Taylor, Liz Crowe, Mary-Claire Balnaves, Helen Irving, Al Ozonoff, Robert D. Truog & Melanie Jansen - 2021 - Journal of Medical Ethics 47 (12):14-14.
    Ethical climate (EC) has been broadly described as how well institutions respond to ethical issues. Developing a tool to study and evaluate EC that aims to achieve sustained improvements requires a contemporary framework with identified relevant drivers. An extensive literature review was performed, reviewing existing EC definitions, tools and areas where EC has been studied; ethical challenges and relevance of EC in contemporary paediatric intensive care (PIC); and relevant ethical theories. We surmised that existing EC definitions and tools designed to (...)
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  • What kinds of cases do paediatricians refer to clinical ethics? Insights from 184 case referrals at an Australian paediatric hospital.Rosalind J. McDougall & Lauren Notini - 2016 - Journal of Medical Ethics 42 (9):586-591.
    Clinical ethics has been developing in paediatric healthcare for several decades. However, information about how paediatricians use clinical ethics case consultation services is extremely limited. In this project, we analysed a large set of case records from the clinical ethics service of one paediatric hospital in Australia. We applied a paediatric-specific typology to the case referrals, based on the triadic doctor–patient–parent relationship. We reviewed the 184 cases referred to the service in the period 2005–2014, noting features including the type of (...)
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  • Can UK Clinical Ethics Committees Improve Quality of Care?Leah McClimans, Anne-Marie Slowther & Michael Parker - 2012 - HEC Forum 24 (2):139-147.
    Failings in patient care and quality in NHS Trusts have become a recurring theme over the past few years. In this paper, we examine the Care Quality Commission’s Guidance about Compliance: Essential Standards of Quality and Safety and ask how NHS Trusts might be better supported in fulfilling the regulations specified therein. We argue that clinical ethics committees (CECs) have a role to play in this regard. We make this argument by attending to the many ethical elements that are highlighted (...)
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  • Development and Retrospective Review of a Pediatric Ethics Consultation Service at a Large Academic Center.Brian D. Leland, Lucia D. Wocial, Kurt Drury, Courtney M. Rowan, Paul R. Helft & Alexia M. Torke - 2020 - HEC Forum 32 (3):269-281.
    The primary objective was to review pediatric ethics consultations at a large academic health center over a nine year period, assessing demographics, ethical issues, and consultant intervention. The secondary objective was to describe the evolution of PECs at our institution. This was a retrospective review of Consultation Summary Sheets compiled for PECs at our Academic Health Center between January 2008 and April 2017. There were 165 PECs reviewed during the study period. Most consult requests came from the inpatient setting, with (...)
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  • Ethics Consultation in Pediatrics: Long-Term Experience From a Pediatric Oncology Center.Liza-Marie Johnson, Christopher L. Church, Monika Metzger & Justin N. Baker - 2015 - American Journal of Bioethics 15 (5):3-17.
    There is little information about the content of ethics consultations in pediatrics. We sought to describe the reasons for consultation and ethical principles addressed during EC in pediatrics through retrospective review and directed content analysis of EC records at St. Jude Children's Research Hospital. Patient-based EC were highly complex and often involved evaluation of parental decision making, particularly consideration of the risks and benefits of a proposed medical intervention, and the physician's fiduciary responsibility to the patient. Nonpatient consultations provided guidance (...)
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  • Perceived Benefits of Ethics Consultation Differ by Profession: A Qualitative Survey Study.Annie B. Friedrich, Elizabeth M. Kohlberg & Jay R. Malone - 2023 - AJOB Empirical Bioethics 14 (1):50-54.
    Background: There are numerous benefits to ethics consultation services, but little is known about the reasons different professionals may or may not request an ethics consultation. Inter-professional differences in the perceived utility of ethics consultation have not previously been studied.Methods: To understand profession-specific perceived benefits of ethics consultation, we surveyed all employees at an urban tertiary children’s hospital about their use of ethics committee services (n = 842).Results: Our findings suggest that nurses and physicians find ethics consultations useful for different (...)
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  • Frequency of Perceived Conflict between Families and Clinicians at Time of Clinical Ethics Consultation in Hospitalized Children.Aleksandra E. Olszewski, Chuan Zhou, Jiana Ugale, Jessica Ramos, Arika Patneaude & Douglas J. Opel - 2024 - AJOB Empirical Bioethics 15 (1):60-65.
    As a well-established service offered at many hospitals internationally, clinical ethics consultation (CEC) is increasingly recognized as a tool to improve patient care quality (Fox et al. 2022; Ta...
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  • Institutional Challenges for Clinical Ethics Committees.Andrea Dörries, Pierre Boitte, Ana Borovecki, Jean-Philippe Cobbaut, Stella Reiter-Theil & Anne-Marie Slowther - 2011 - HEC Forum 23 (3):193-205.
    Clinical ethics committees (CECs) have been developing in many countries since the 1980s, more recently in the transitional countries in Eastern Europe. With their increasing profile they are now faced with a range of questions and challenges regarding their position within the health care organizations in which they are situated: Should CECs be independent bodies with a critical role towards institutional management, or should they be an integral part of the hospital organization? In this paper, we discuss the organizational context (...)
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