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  1. Electronic Informed Consent in Mobile Applications Research.John T. Wilbanks - 2020 - Journal of Law, Medicine and Ethics 48 (1_suppl):147-153.
    The article covers electronic informed consent from different dimensions so that practitioners might understand the history, regulation, and current status of eIC. It covers the transition of informed consent to electronic screens and the implications of that transition in terms of design, costs, and data analysis. The article explores the limits of regulation mandating eIC for mobile application research, and addresses some of the broader social context around eIC.
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  • From “Informed” to “Engaged” Consent: Risks and Obligations in Consent for Participation in a Health Data Repository.Elizabeth Bromley, Alexandra Mendoza-Graf, Sandra Berry, Camille Nebeker & Dmitry Khodyakov - 2020 - Journal of Law, Medicine and Ethics 48 (1):172-182.
    The development and use of large and dynamic health data repositories designed to support research pose challenges to traditional informed consent models. We used semi-structured interviewing to elicit diverse research stakeholders' views of a model of consent appropriate to participation in initiatives that entail collection, long-term storage, and undetermined future research use of multiple types of health data. We demonstrate that, when considering health data repositories, research stakeholders replace a concept of consent as informed with one in which consent is (...)
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  • What Should We Be Asking of Informed Consent?Ellen Wright Clayton - 2020 - Journal of Law, Medicine and Ethics 48 (1):185-187.
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  • Understanding (in) Consent for Governance.Michael A. Lensink, Sarah N. Boers, Karin R. Jongsma & Annelien L. Bredenoord - 2019 - American Journal of Bioethics 19 (5):43-45.
    Volume 19, Issue 5, May 2019, Page 43-45.
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  • Disruption, Diversity, and Global Biobanking.Edwina Light, Miriam Wiersma, Lisa Dive, Ian Kerridge, Christine Critchley & Wendy Lipworth - 2019 - American Journal of Bioethics 19 (5):45-47.
    Volume 19, Issue 5, May 2019, Page 45-47.
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  • Rejecting “Understanding”: An Ethical Proposal Whose Time Has Come.Stephanie Solomon Cargill - 2019 - American Journal of Bioethics 19 (5):41-42.
    Volume 19, Issue 5, May 2019, Page 41-42.
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  • What Is Adequate Understanding?Gopal Sreenivasan - 2019 - American Journal of Bioethics 19 (5):38-40.
    Volume 19, Issue 5, May 2019, Page 38-40.
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  • Reciprocity and the Quest for Meaningful Disclosure.Ma’N. H. Zawati & Bartha Maria Knoppers - 2019 - American Journal of Bioethics 19 (5):36-38.
    Volume 19, Issue 5, May 2019, Page 36-38.
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  • Understanding as an Ethical Aspiration in an Era of Digital Technology-Based Communication: An Analysis of Informed Consent Functions.Stephanie A. Kraft, Nanibaa’ A. Garrison & Benjamin S. Wilfond - 2019 - American Journal of Bioethics 19 (5):34-36.
    Volume 19, Issue 5, May 2019, Page 34-36.
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  • Being Polite: Why Biobank Consent Comprehension Is Neither a Requirement nor an Aspiration.Berge Solberg & Lars Ursin - 2019 - American Journal of Bioethics 19 (5):31-33.
    Volume 19, Issue 5, May 2019, Page 31-33.
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  • Measuring Understanding and Respecting Trust in Biobank Consent.T. J. Kasperbauer & Peter H. Schwartz - 2019 - American Journal of Bioethics 19 (5):29-31.
    Volume 19, Issue 5, May 2019, Page 29-31.
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  • Informed Consent Requires Understanding: Complete Disclosure Is Not Enough.Thaddeus Mason Pope - 2019 - American Journal of Bioethics 19 (5):27-28.
    Volume 19, Issue 5, May 2019, Page 27-28.
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  • Moving From Understanding of Consent Conditions to Heuristics of Trust.Michael M. Burgess & Kieran C. O’Doherty - 2019 - American Journal of Bioethics 19 (5):24-26.
    Volume 19, Issue 5, May 2019, Page 24-26.
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  • Ignorance Isn’T Bliss: Retaining a Meaningful Comprehension Requirement for Consent to Research.Paul S. Appelbaum - 2019 - American Journal of Bioethics 19 (5):22-24.
    Volume 19, Issue 5, May 2019, Page 22-24.
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  • The Value of Consent for Clinical Research Does Not Always Hinge on Understanding.Neal W. Dickert - 2019 - American Journal of Bioethics 19 (5):20-22.
    Volume 19, Issue 5, May 2019, Page 20-22.
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  • The Unbearable Requirement of Informed Consent.Ellen Wright Clayton - 2019 - American Journal of Bioethics 19 (5):19-20.
    Volume 19, Issue 5, May 2019, Page 19-20.
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  • Informed Consent: A Matter of Aspiration Since 1966.Sarah Wieten, Jacob Blythe & David Magnus - 2019 - American Journal of Bioethics 19 (5):3-5.
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