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  1. Varieties of Minimalism About Informed Consent.Gopal Sreenivasan - 2021 - American Journal of Bioethics 21 (5):66-68.
    In their latest contribution to a series of important joint papers on informed consent, Joseph Millum and Danielle Bromwich analyze and reject what they call the “standard view” on informed...
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  • Informed Consent: What Must Be Disclosed and What Must Be Understood?Joseph Millum & Danielle Bromwich - 2021 - American Journal of Bioethics 21 (5):46-58.
    Over the last few decades, multiple studies have examined the understanding of participants in clinical research. They show variable and often poor understanding of key elements of disclosure, such as expected risks and the experimental nature of treatments. Did the participants in these studies give valid consent? According to the standard view of informed consent they did not. The standard view holds that the recipient of consent has a duty to disclose certain information to the profferer of consent because valid (...)
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  • Incorporating Biobank Consent Into a Healthcare Setting: Challenges for Patient Understanding.T. J. Kasperbauer, Karen K. Schmidt, Ariane Thomas, Susan M. Perkins & Peter H. Schwartz - 2021 - AJOB Empirical Bioethics 12 (2):113-122.
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  • Structural Racism in the COVID-19 Pandemic: Moving Forward.Maya Sabatello, Mary Jackson Scroggins, Greta Goto, Alicia Santiago, Alma McCormick, Kimberly Jacoby Morris, Christina R. Daulton, Carla L. Easter & Gwen Darien - 2020 - American Journal of Bioethics 21 (3):56-74.
    The COVID-19 pandemic has taken a substantial human, social and economic toll globally, but its impact on Black/African Americans, Latinx, and American Indian/Alaska Native communities in the U.S....
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  • Return of Results in Population Studies: How Do Participants Perceive Them?Hélène Nobile, Pascal Borry, Jennifer Moldenhauer & Manuela M. Bergmann - forthcoming - Public Health Ethics.
    As a cornerstone of public health, epidemiology has lately undergone substantial changes enabled by, among other factors, the use of biobank infrastructures. In biobank-related research, the return of results to participants constitutes an important and complex ethical question. In this study, we qualitatively investigated how individuals perceive the results returned following their participation in cohort studies with biobanks. In our semi-structured interviews with 31 participants of two such German studies, we observed that some participants overestimate the nature of the personal (...)
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  • Electronic Informed Consent in Mobile Applications Research.John T. Wilbanks - 2020 - Journal of Law, Medicine and Ethics 48 (S1):147-153.
    The article covers electronic informed consent from different dimensions so that practitioners might understand the history, regulation, and current status of eIC. It covers the transition of informed consent to electronic screens and the implications of that transition in terms of design, costs, and data analysis. The article explores the limits of regulation mandating eIC for mobile application research, and addresses some of the broader social context around eIC.
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  • From “Informed” to “Engaged” Consent: Risks and Obligations in Consent for Participation in a Health Data Repository.Elizabeth Bromley, Alexandra Mendoza-Graf, Sandra Berry, Camille Nebeker & Dmitry Khodyakov - 2020 - Journal of Law, Medicine and Ethics 48 (1):172-182.
    The development and use of large and dynamic health data repositories designed to support research pose challenges to traditional informed consent models. We used semi-structured interviewing to elicit diverse research stakeholders' views of a model of consent appropriate to participation in initiatives that entail collection, long-term storage, and undetermined future research use of multiple types of health data. We demonstrate that, when considering health data repositories, research stakeholders replace a concept of consent as informed with one in which consent is (...)
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  • What Should We Be Asking of Informed Consent?Ellen Wright Clayton - 2020 - Journal of Law, Medicine and Ethics 48 (1):185-187.
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  • The Meaning of Informed Consent: Genome Editing Clinical Trials for Sickle Cell Disease.Stacy Desine, Brittany M. Hollister, Khadijah E. Abdallah, Anitra Persaud, Sara Chandros Hull & Vence L. Bonham - 2020 - Ajob Empirical Bioethics 11 (4):195-207.
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  • Understanding (in) Consent for Governance.Michael A. Lensink, Sarah N. Boers, Karin R. Jongsma & Annelien L. Bredenoord - 2019 - American Journal of Bioethics 19 (5):43-45.
    Volume 19, Issue 5, May 2019, Page 43-45.
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  • Disruption, Diversity, and Global Biobanking.Edwina Light, Miriam Wiersma, Lisa Dive, Ian Kerridge, Christine Critchley & Wendy Lipworth - 2019 - American Journal of Bioethics 19 (5):45-47.
    Volume 19, Issue 5, May 2019, Page 45-47.
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  • Rejecting “Understanding”: An Ethical Proposal Whose Time Has Come.Stephanie Solomon Cargill - 2019 - American Journal of Bioethics 19 (5):41-42.
    Volume 19, Issue 5, May 2019, Page 41-42.
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  • What Is Adequate Understanding?Gopal Sreenivasan - 2019 - American Journal of Bioethics 19 (5):38-40.
    Volume 19, Issue 5, May 2019, Page 38-40.
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  • Reciprocity and the Quest for Meaningful Disclosure.Ma’N. H. Zawati & Bartha Maria Knoppers - 2019 - American Journal of Bioethics 19 (5):36-38.
    Volume 19, Issue 5, May 2019, Page 36-38.
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  • Understanding as an Ethical Aspiration in an Era of Digital Technology-Based Communication: An Analysis of Informed Consent Functions.Stephanie A. Kraft, Nanibaa’ A. Garrison & Benjamin S. Wilfond - 2019 - American Journal of Bioethics 19 (5):34-36.
    Volume 19, Issue 5, May 2019, Page 34-36.
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  • Being Polite: Why Biobank Consent Comprehension Is Neither a Requirement nor an Aspiration.Berge Solberg & Lars Ursin - 2019 - American Journal of Bioethics 19 (5):31-33.
    Volume 19, Issue 5, May 2019, Page 31-33.
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  • Measuring Understanding and Respecting Trust in Biobank Consent.T. J. Kasperbauer & Peter H. Schwartz - 2019 - American Journal of Bioethics 19 (5):29-31.
    Volume 19, Issue 5, May 2019, Page 29-31.
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  • Informed Consent Requires Understanding: Complete Disclosure Is Not Enough.Thaddeus Mason Pope - 2019 - American Journal of Bioethics 19 (5):27-28.
    Volume 19, Issue 5, May 2019, Page 27-28.
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  • Moving From Understanding of Consent Conditions to Heuristics of Trust.Michael M. Burgess & Kieran C. O’Doherty - 2019 - American Journal of Bioethics 19 (5):24-26.
    Volume 19, Issue 5, May 2019, Page 24-26.
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  • Ignorance Isn’T Bliss: Retaining a Meaningful Comprehension Requirement for Consent to Research.Paul S. Appelbaum - 2019 - American Journal of Bioethics 19 (5):22-24.
    Volume 19, Issue 5, May 2019, Page 22-24.
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  • The Value of Consent for Clinical Research Does Not Always Hinge on Understanding.Neal W. Dickert - 2019 - American Journal of Bioethics 19 (5):20-22.
    Volume 19, Issue 5, May 2019, Page 20-22.
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  • The Unbearable Requirement of Informed Consent.Ellen Wright Clayton - 2019 - American Journal of Bioethics 19 (5):19-20.
    Volume 19, Issue 5, May 2019, Page 19-20.
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  • Informed Consent: A Matter of Aspiration Since 1966.Sarah Wieten, Jacob Blythe & David Magnus - 2019 - American Journal of Bioethics 19 (5):3-5.
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