- Ethical challenges in integrating patient-care with clinical research in a resource-limited setting: perspectives from Papua New Guinea. [REVIEW]Moses Laman, William Pomat, Peter Siba & Inoni Betuela - 2013 - BMC Medical Ethics 14 (1):29.details
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Ethical and legal implications of whole genome and whole exome sequencing in African populations.Galen E. B. Wright, Pieter G. J. Koornhof, Adebowale A. Adeyemo & Nicki Tiffin - 2013 - BMC Medical Ethics 14 (1):21.details
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Moral and scientific boundaries: research ethics on the Thai–Burma border.Michael J. Parker - 2012 - Journal of Medical Ethics 38 (9):559-560.details
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Seeking consent to genetic and genomic research in a rural Ghanaian setting: A qualitative study of the MalariaGEN experience. [REVIEW]Paulina Tindana, Susan Bull, Lucas Amenga-Etego, Jantina de Vries, Raymond Aborigo, Kwadwo Koram, Dominic Kwiatkowski & Michael Parker - 2012 - BMC Medical Ethics 13 (1):15-.details
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Ethical issues in global neuroimaging genetics collaborations.Andrea Palk, Judy Illes, Paul Thompson & D. Stein - 2020 - NeuroImage 117208 (221):1-10.details
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Qualitative study of comprehension of heritability in genomics studies among the Yoruba in Nigeria.Rasheed O. Taiwo, John Ipadeola, Temilola Yusuf, Faith Fagbohunlu, Gbemisola Jenfa, Sally N. Adebamowo & Clement A. Adebamowo - 2020 - BMC Medical Ethics 21 (1):1-8.details
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(1 other version)Informed consent in genomic research and biobanking: taking feedback of findings seriously.Paulina Tindana, Cornelius Depuur, Jantina de Vries, Janet Seeley & Michael Parker - 2020 - Global Bioethics 31 (1):200-215.details
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(1 other version)Rules of engagement: perspectives on stakeholder engagement for genomic biobanking research in South Africa.Ciara Staunton, Paulina Tindana, Melany Hendricks & Keymanthri Moodley - 2018 - BMC Medical Ethics 19 (1):13.details
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“I passed the test!” Evidence of diagnostic misconception in the recruitment of population controls for an H3Africa genomic study in Cape Town, South Africa.Francis Masiye, Bongani Mayosi & Jantina de Vries - 2017 - BMC Medical Ethics 18 (1):12.details
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Ethical issues in the export, storage and reuse of human biological samples in biomedical research: perspectives of key stakeholders in Ghana and Kenya.Paulina Tindana, Catherine S. Molyneux, Susan Bull & Michael Parker - 2014 - BMC Medical Ethics 15 (1):76.details
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(2 other versions)Use of broad consent and related procedures in genomics research: Perspectives from research participants in the Genetics of Rheumatic Heart Disease (RHDGen) study in a University Teaching Hospital in Zambia.Jantina De Vries, Paulina Tindana, Janet Seeley, Rwamahe Rutakumwa, Michael Parker, Bongani M. Mayosi, John Musuku & Oliver Mweemba - 2020 - Global Bioethics 31 (1):184-199.details
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Participant Reactions to a Literacy-Focused, Web-Based Informed Consent Approach for a Genomic Implementation Study.Stephanie A. Kraft, Kathryn M. Porter, Devan M. Duenas, Claudia Guerra, Galen Joseph, Sandra Soo-Jin Lee, Kelly J. Shipman, Jake Allen, Donna Eubanks, Tia L. Kauffman, Nangel M. Lindberg, Katherine Anderson, Jamilyn M. Zepp, Marian J. Gilmore, Kathleen F. Mittendorf, Elizabeth Shuster, Kristin R. Muessig, Briana Arnold, Katrina A. B. Goddard & Benjamin S. Wilfond - 2021 - AJOB Empirical Bioethics 12 (1):1-11.details
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Education versus screening: the use of capacity to consent tools in psychiatric genomics.Camillia Kong, Mehret Efrem & Megan Campbell - 2020 - Journal of Medical Ethics 46 (2):137-143.details
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(2 other versions)Use of broad consent and related procedures in genomics research: Perspectives from research participants in the Genetics of Rheumatic Heart Disease (RHDGen) study in a University Teaching Hospital in Zambia.Oliver Mweemba, John Musuku, Bongani M. Mayosi, Michael Parker, Rwamahe Rutakumwa, Janet Seeley, Paulina Tindana & Jantina De Vries - 2020 - Global Bioethics 31 (1):184-199.details
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(1 other version)Rules of engagement: perspectives on stakeholder engagement for genomic biobanking research in South Africa.Ciara Staunton, Paulina Tindana, Melany Hendricks & Keymanthri Moodley - 2018 - BMC Medical Ethics 19 (1):1-10.details
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Legal implications of data sharing in biobanking research in low-income settings: The Nigerian experience.Simisola Oluwatoyin Akintola - 2018 - South African Journal of Bioethics and Law 11 (1):15.details
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Providing ethical guidance for collaborative research in developing countries.Nina Morris - 2015 - Research Ethics 11 (4):211-235.details
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Exploring researchers’ experiences of working with a researcher-driven, population-specific community advisory board in a South African schizophrenia genomics study.Megan M. Campbell, Ezra Susser, Jantina de Vries, Adam Baldinger, Goodman Sibeko, Michael M. Mndini, Sibonile G. Mqulwana, Odwa A. Ntola, Raj S. Ramesar & Dan J. Stein - 2015 - BMC Medical Ethics 16 (1):1-9.details
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Knowing who to trust: exploring the role of 'ethical metadata' in mediating risk of harm in collaborative genomics research in Africa.Jantina de Vries, Thomas N. Williams, Kalifa Bojang, Dominic P. Kwiatkowski, Raymond Fitzpatrick & Michael Parker - 2014 - BMC Medical Ethics 15 (1):62.details
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Voluntary participation and comprehension of informed consent in a genetic epidemiological study of breast cancer in Nigeria.Patricia A. Marshall, Clement A. Adebamowo, Adebowale A. Adeyemo, Temidayo O. Ogundiran, Teri Strenski, Jie Zhou & Charles N. Rotimi - 2014 - BMC Medical Ethics 15 (1):38.details
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Participant recall and understandings of information on biobanking and future genomic research: experiences from a multi-disease community-based health screening and biobank platform in rural South Africa.Janet Seeley, Emily B. Wong, Mark J. Siedner, Olivier Koole, Dickman Gareta, Resign Gunda, Dumsani Gumede, Nothando Ngwenya & Manono Luthuli - 2022 - BMC Medical Ethics 23 (1):1-11.details
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Predictors of consent to cell line creation and immortalisation in a South African schizophrenia genomics study.Megan M. Campbell, Jantina de Vries, Sibonile G. Mqulwana, Michael M. Mndini, Odwa A. Ntola, Deborah Jonker, Megan Malan, Adele Pretorius, Zukiswa Zingela, Stephanus Van Wyk, Dan J. Stein & Ezra Susser - 2018 - BMC Medical Ethics 19 (1):72.details
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The elusive ideal of inclusiveness: lessons from a worldwide survey of neurologists on the ethical issues raised by whole-genome sequencing.Thierry Hurlimann, Iris Jaitovich Groisman & Béatrice Godard - 2017 - BMC Medical Ethics 18 (1):28.details
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Sharing the Knowledge: Sharing Aggregate Genomic Findings with Research Participants in Developing Countries.Angeliki Kerasidou - 2014 - Developing World Bioethics 15 (3):267-274.details
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Seeking consent to genetic and genomic research in a rural Ghanaian setting: a qualitative study of the MalariaGEN experience. [REVIEW]P. Tindana, S. Bull, L. Amenga-Etego, J. Vries, R. Aborigo, K. Koram, D. Kwiatkowski & M. Parker - 2012 - BMC Medical Ethics 13 (1):15-15.details
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Genomic sovereignty and the African promise: mining the African genome for the benefit of Africa.Jantina de Vries & Michael Pepper - 2012 - Journal of Medical Ethics 38 (8):474-478.details
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All you Need is Trust? Public Perspectives on Consenting to Participate in Genomic Research in the Sri Lankan District of Colombo.Krishani Jayasinghe, W. A. S. Chamika, Kaushalya Jayaweera, Kalpani Abhayasinghe, Lasith Dissanayake, Athula Sumathipala & Jonathan Ives - 2023 - Asian Bioethics Review 16 (2):281-302.details
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Editorial – ethical practice and genomic research.Michael Parker & Janet Seeley - 2020 - Global Bioethics 31 (1):164-168.details
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Engaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa model.Paulina Tindana, Aminu Yakubu, Ciara Staunton, Alice Matimba, Katherine Littler, Ebony Madden, Nchangwi Syntia Munung & Jantina de Vries - 2019 - BMC Medical Ethics 20 (1):1-7.details
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Hidden concerns of sharing research data by low/middle-income country scientists.Louise Bezuidenhout & Ereck Chakauya - 2018 - Global Bioethics 29 (1):39-54.details
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“It’s all about trust”: reflections of researchers on the complexity and controversy surrounding biobanking in South Africa.Keymanthri Moodley & Shenuka Singh - 2016 - BMC Medical Ethics 17 (1):57.details
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Community engagement strategies for genomic studies in Africa: a review of the literature. [REVIEW]Paulina Tindana, Jantina de Vries, Megan Campbell, Katherine Littler, Janet Seeley, Patricia Marshall, Jennifer Troyer, Morisola Ogundipe, Vincent Pius Alibu, Aminu Yakubu & Michael Parker - 2015 - BMC Medical Ethics 16 (1):24.details
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(2 other versions)What constitutes good ethical practice in genomic research in Africa? Perspectives of participants in a genomic research study in Uganda.Rwamahe Rutakumwa, Jantina de Vries, Michael Parker, Paulina Tindana, Oliver Mweemba & Janet Seeley - 2020 - Global Bioethics 31 (1):169-183.details
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“That is why I have trust”: unpacking what ‘trust’ means to participants in international genetic research in Pakistan and Denmark.Zainab Sheikh & Klaus Hoeyer - 2018 - Medicine, Health Care and Philosophy 21 (2):169-179.details
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(1 other version)Debating the Cause of Health Disparities.Dorothy Roberts - 2012 - Cambridge Quarterly of Healthcare Ethics 21 (3):332-341.details
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Does science need bioethicists? Ethics and science collaboration in biomedical research.Angeliki Kerasidou & Michael Parker - 2014 - Research Ethics 10 (4):214-226.details
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Study of laboratory staff’ knowledge of biobanking in Côte d’Ivoire.Ambroise Kouamé Kintossou, Mathias Kouamé N’dri, Marcelle Money, Souleymane Cissé, Simini Doumbia, Man-Koumba Soumahoro, Amadou Founzégué Coulibaly, Joseph Allico Djaman & Mireille Dosso - 2020 - BMC Medical Ethics 21 (1):1-6.details
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A qualitative study exploring stakeholder perspectives on the use of biological samples for future unspecified research in Malawi.Limbanazo Matandika, Ruby Tionenji Ngóngóla, Khama Mita, Lucinda Manda-Taylor, Kate Gooding, Daniel Mwale, Francis Masiye & Joseph Mfutso-Bengo - 2020 - BMC Medical Ethics 21 (1):1-10.details
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Regulation of genomic and biobanking research in Africa: a content analysis of ethics guidelines, policies and procedures from 22 African countries.Jantina de Vries, Syntia Nchangwi Munung, Alice Matimba, Sheryl McCurdy, Odile Ouwe Missi Oukem-Boyer, Ciara Staunton, Aminu Yakubu & Paulina Tindana - 2017 - BMC Medical Ethics 18 (1):1-9.details
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“The keeping is the problem”: A qualitative study of IRB-member perspectives in Botswana on the collection, use, and storage of human biological samples for research.Francis Barchi, Keikantse Matlhagela, Nicola Jones, Poloko M. Kebaabetswe & Jon F. Merz - 2015 - BMC Medical Ethics 16 (1):1-11.details
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(2 other versions)What constitutes good ethical practice in genomic research in Africa? Perspectives of participants in a genomic research study in Uganda.Janet Seeley, Oliver Mweemba, Paulina Tindana, Michael Parker, Jantina de Vries & Rwamahe Rutakumwa - 2020 - Global Bioethics 31 (1):169-183.details
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Regulatory Landscape of International Direct-to-Participant (DTP) Genomic Research: Time to Untie the Gordian Knot?Mark A. Rothstein, Ma'N. H. Zawati & Bartha Maria Knoppers - 2019 - Journal of Law, Medicine and Ethics 47 (2):336-341.details
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Equitable Access to Human Biological Resources in Developing Countries: Benefit Sharing Without Undue Inducement.Roger Scarlin Chennells - 2015 - Cham: Imprint: Springer.details
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Awareness, experiences and perceptions regarding genetic testing and the return of genetic and genomics results in a hypothetical research context among patients in Uganda: a qualitative study.Joseph Ochieng, Betty Kwagala, John Barugahare, Marlo Möller & Keymanthri Moodley - forthcoming - Journal of Medical Ethics.details
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Understandings of genomic research in developing countries: a qualitative study of the views of MalariaGEN participants in Mali.Karim Traore, Susan Bull, Alassane Niare, Salimata Konate, Mahamadou A. Thera, Dominic Kwiatkowski, Michael Parker & Ogobara K. Doumbo - 2015 - BMC Medical Ethics 16 (1):1-10.details
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Community Members' Engagement with and Involvement in Genomic Research: Lessons to Learn from the Field.Morenike O. Folayan, Kolawole S. Oyedeji & Olawunmi A. Fatusi - 2013 - Developing World Bioethics 15 (1):1-7.details
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